Want to get pregnant within a few years.Detox? Deal w/ pain? ACK

Discussion in 'Fibromyalgia Main Forum' started by RedHeadEMT, Dec 28, 2006.

  1. RedHeadEMT

    RedHeadEMT New Member

    Hi everyone...

    So, this is something that I have done a lot of thinking about, talking about with my husband, but am still very nervous, scared about. I wanted to see what some of your thoughts/experiences were on the subject.

    I am 25. I have a Bachelor's degree. I finished at the top of my class, cum laude (don't ask me how because I do not know HOW I did it in the shape that I was in!). I am an EMT and am planning on applying to medical school within the next few years.

    I am married to my soul mate, to an incredible, amazing man, who just happens to be my best friend and my most loyal and supportive fan. We have been married for over three years now, together for six. He works as a social worker and is finishing his degree to become an engineer.

    We plan on buying our first home within the next year or year and a half, hopefully.

    I have been sick with FMS since a teen, but dxed at 17, and only really began to deal with it about 4 years ago, when it brought me to my knees, making it so that I was immobile, unable to walk without assistance. In high school, I was always sore and always tired, but always the life of the party, always with straight a's, always involved in one million activities. Shortly after becoming engaged, my life changed 180 degrees for the harder, for the worse.

    I also have to deal with a degenerative nerve disease, which has been concentrated in my left arm, and will most likely progress throughout my life, called RSD (or reflex sympathetic distrophy aka chronic regional pain syndrome).

    So now that you have the background...

    We want to have a baby within the next few years. HOWEVER, the only reason why I had gotten my life back, been able to finish college, get my EMT cert, work in an extremely grueling, emotionally/physically demanding job - in the back of an ambulance, maintain a household, etc., has been because I have been on some sort of combo of meds.

    I really want to detox off all the meds for a certain period of time before we start trying to get pregnant, but I am so afraid of what my life will become again once I am unable to take any meds. I tried EVERYTHING before I turned to western meds; they were my last resort, and ultimately, the only reason why I have been able to be somewhat productive in the last few years.

    I want a healthy baby, and my doc is VERY progressive and believes that a woman can safely have a baby while still taking certain opioids and he swears then the baby can be slowly and safely detoxed off the meds once it is born. He says that he has done it with hundreds of patients, but there is something about that which I just cannot go along with. I think that if anything were to EVER go wrong in the pregnancy or at any other time in my child's life, I would always blame myself and think back to that time during my pregnancy. I just CAN'T do it.

    So, what CAN I do? For months to a year, be off the meds, and be close to immobile again, be in pain during the sex in which I am trying to get prego with with my husband (ironic...), and be unable to take care of my home, nevermind not being able to work?

    What about my symptoms DURING the pregnancy? I have read and heard thru the grapevine that some women with FMS have a miraculous remission of the disease during the pregnancy, that can even go into the time of breastfeeding...Anything like that happen to anyone? I have also heard that for some women the pregnancy causes the most brutal flare-up for 9+ months...

    Please, if you have any ideas, or especially if you have ever been pregnant with this dreadful illness, please share your experiences, advice with me. I would be so very grateful.

    Thanks for taking the time to read this...


  2. millennia

    millennia New Member

    I've been thinking about this a lot lately too. Interested to hear what you guys have to say.
  3. RedHeadEMT

    RedHeadEMT New Member

    bumpity bump bump
  4. deliarose

    deliarose New Member

    I am 38, CFS for 11 years, finally treating the root causes and slowly getting better.

    Also thinking about having a baby.

    Don't know what is going on in FM from a biochemical point of view, but I've discovered that a lot of us CFSers are toxic.

    We're dealign wiht stealth viruses, and a broken detox system and years of accumulated toxins.

    So my point is.. I think it's just as well I didn't have a baby before and I certainly wouldn't want to have one now until I am completely clear of all this stuff.

    I assume if the mother was toxic, it would have some effect on the baby.

    So,if I were you, I would try and get to the root causes of your illness, or at least get tested for heavy metals and other toxins, before you begin in earnest trying for a baby.

    I sense you are anxious to start a family, but you are YOUNG, you have time to figure out what is wrong with you and hopefully put it right, adn then focus on children.

    I hope this doesn't come off as crazy talk.. I have to admit I was completely befuddled by all the talk of stealth viruses and heavy metals toxicity etcc..., when I first started investigating the causes.

    But I've finally realised that Cheney and Nicolson and Kane and all those people are correct.. by virtue of testing..and also because I am recovering wiht the help fo transfer factor.

    If only I had found out this stuff earlier, but I was seeing your typical ignorant doc who only knew how to treat the symptoms!

    What a waste of a decade.
  5. deliarose

    deliarose New Member

    that your health problems started with a bout of what seemed to be MONO.

    Well, me too. Viral-onset is a red flag.. I would consult a doc who is knowledgeable about CFS/FM and up to date on the whole stealth virus thing.

    I see an infectious disease doc in Kansas City, MO, called Joseph Brewer.

    Or there is Jose Montoya at Stanford University who is doing a trial with Valcyte.

    I don't want to come off as too evangelical.. because there are so many different things going on in these illnesses.

    But after 4 months on Transfer Factor, antioxidants and glutathione, I have NO fatigue. I sleep well, adn my brain function is returning.

    I am an Ivy-league educated researcher for what it's worth. I've invested a lot in my education. I plan to make good on that investment.

    Good luck and pick your doctors wisely.
  6. RedHeadEMT

    RedHeadEMT New Member

    Thanks so much for the ideas and thoughts! I hadn't ever heard about toxic metals and such; actually, I'd never heard of it being a cause of Fibromyalgia.

    When I got sick initially, I had an incredible group of private docs working on me, but the primary one was a renowned infectious diseases specialist. I was tested for mono immediately, followed by tests for everything else under the sun, including toxins, EBV, other contagious viruses/diseases, etc. SO...that's that.

    ::sigh:: lol

    If you guys have any other suggestions on what I can do or be tested for, I'll all ears!! Thanks again for taking the time to listen/read and for your helpful responses. I reallllly appreciate them!

  7. RedHeadEMT

    RedHeadEMT New Member

    would REALLY appreciate some more input...
  8. Gothbubbles

    Gothbubbles New Member

    I'm in nearly the exact same boat you're in. I'm 25 also
    (but CFS, no FM), and I take two meds that would not be good for babies, although I'm not sure what to do. One controls my hardcore heart episodes, and the other controls my daily myoclonic spasms (like parkinson's).

    My biggest rush is that my boyfriend is 33, so I can't wait forever. We've discussed adoption if I don't get better.

    Have you thought about adopting?

    CFS 6 1/2 years --- 25 years old
  9. mindbender

    mindbender New Member

    I know there is a worship page here but I don't believe in group prayer. I think it should be between you and that person.

    You girls need a prayor, and I'm going to give you one. Father these girls need your help. Please consider thier dallima as they've fraised them. Please give these girls some kids. to be funny please give them so many that they ask you to stop please. Thank you Father In Jesus name I pray this.
  10. pam_d

    pam_d New Member

    Just throwing in my two cents....I had my baby long before the fibro (or Leukemia, my illness this year)...but I want to tell you about a friend's experience.

    She had Lupus, was diagnosed at age 26, on many meds including prednisone. When she and her husband decided they really wanted a child, she saw both her OB/GYN and her Lupus rheumatologist, and the two doctors correlated their treatment of her during her pregnancy; they took her OFF some medications that are known to cross the placenta, but kept her on certain other meds known to do the developing fetus no harm. As I said, her docs worked together as a team. Her pregnancy went well (she had a second child, in fact) and afterward, her Lupus symptoms seemed better, something she wasn't expecting. Her kids are now 14 and 9, normal & healthy.

    Lupus is not the same as fibro, granted, but often involves many of the same meds for treatment. I'd see a very good OB/GYN (and maybe get a second opinion from the doc you see who's advocating just keeping you on meds & dealing w/the consequences to the baby after birth---he may be right in that SOME meds can be continued, but again, probably not all---and the teamwork between your fibro doc and your OB/GYN is key...).

    But I truly believe it's possible to have a healthy child if you want one badly enough, only you can make that decision. Good luck whatever you decide to do...

  11. survivor13

    survivor13 New Member

    Hi there
    what an awful time of things you have had,but there is life at the end of it.I am 42, i have an 18 yr old daughter and a 3 yr old son. I discussed all the ins and outs at great length with my doctor who is a fabulous person by the way so agree with previous comment about pick your doctor wisely. I stayed on all my meds but cut down the stronger pain killers as much as i could during the 'trying' to get pregnant stage, i used them all spareingly unless needed. I must say though that from the minute i was pregnant i felt great,was like a breath of fresh air. all way through was healthy,relatively painfree and had a ball lmao. Even my specialist at the hospital said his advise to me would be to stay pregnant!!! old woman who lived in a shoe comes to mind.Many women find this to be so during pregnancy as a lot of the pain we feel with FMS is due to a lack of a growth hormaone so im told which repairs muscle tissue and in pregnancy your body is flooded with extra growth hormones eh? so from my experience it was a positive one altough i will say that when the symptoms recurr after the birth it is a traumatic thing to cope with as its like a smack in the face. I was lucky after my daughter was born i had a remission like state for nearly a year but after my sons birth it was only 7 weeks which completely polaxed me at the time as i was expecting to feel so fine for the year as i did before.
    so i hindsight,go into it with your eyes open,enjoy it while you are doing it and try to prepare yourself for the onset of it all over again after the birth.
    hope this helps even if only a little bit and happy baby making,thats the fun part xxxxxxxx
  12. gypsy101

    gypsy101 New Member

    I am going to be on Minocycline for two years. I expect to be fully recovered at that point. I would encourage you to take your fibro history to roadback.org
  13. RedHeadEMT

    RedHeadEMT New Member

    You know, we have talked about adoption and although OFCOURSE I would love nothing more than to have a child of my and my husband's own, caring it in my body, feeling what it is like to be pregnant, to breastfeed, etc, we would definitely be open to adoption.

    There are so many unwanted children all over the world that I think often times God or Mother Earth, or whatever you choose to call your Creator, makes it so that certain women and men cannot have their own children, so that they will adopt those children that are desperate for parents of their own...just a thought.

    Thanks for the input!!

  14. RedHeadEMT

    RedHeadEMT New Member

    Thank you so much for the sweet prayer for us! I heard it and I also pray for the same thing...Thank you so much.

    I looked at your profile...did you draw that picture? My husband is Lakota/Seneca, so my life home are full Native artifacts, ceremonies, etc. Are you native?

    I'm so happy that you finally have a diagnosis. I think that just getting the affirmation that you care NOT crazy is incredibly helpful. I feel terrible knowing that there are so many of us out there that have gone most of their lives without an answer, listening to doctors call them hypochondriacs and such...So, hey, you're half-way there!! :p

    Again, thanks so much for the prayer!!

  15. RedHeadEMT

    RedHeadEMT New Member

    Thanks so much for your words and for sharing your friend's story with me. I think that it is a great idea to have both docs working together. In fact, now that you mentioned it, I think that it is imperative and it would be irresponsible not to have the two sharing info/ideas. Thanks so much for bringing up it up!! :O)

    I especially appreciate your encouraging words toward the end of your reply! I, too, think that whatever is supposed to happen, will, and all that I can do is go along with it, not fight against it, ya know?

    Again, thanks so much for your thoughts! I so much appreciate you taking the time to reply to my LONG post.

    I read your profile and am blown away by your spirit, considering how tough your last year has been! You are truly an inspiration. Often times when I am feeling sorry for myself, I just think about all the people who are dealing with health problems so much worse than mine. I can't imagine dealing with my FMS and cancer! Wow! You are an incredible woman, Pam!

  16. RedHeadEMT

    RedHeadEMT New Member

    Thank you so much for sharing your story; after reading it, I feel even stronger and more confident about the fact that this may really happen for me, and if for some reason it is not meant to be, I will find a way to be a mother, one way or another.

    It's amazing how the FMS symptoms go into remission during pregnancy and breastfeeding, isn't it? I sure hope that I have the same thing happen to me!! I have never heard the theory that you mentioned about the growth hormone, so thank you for sharing that idea with me as well.

    I am really lucky because I have the most amazing doc, too, and I have been working with him for about 2 years now--he has been the most supportive and patient doctor that I have ever come across. What I really like about him is that he is actively always including me in my healthcare, asking me questions and REALLY listening to me when I have concerns/questions, but what's even better is that he actually addresses them and we work out a solution. So, I am very comofortable in asking him to work with my ob/gyn thru my pregnancy.

    Once I get closer to that time, I will research more and decide what I will do then, in regards to the meds. But it is great to hear that you were able to take some meds during tough moments in your pregnancy and even when you were trying to conceive.

    Thanks so much for sharing your experience with me!!!!!


  17. mindbender

    mindbender New Member

    all white. I just thought the pic was kool
  18. RedHeadEMT

    RedHeadEMT New Member

    I'm curious to hear what Minocycline will do if you take it for two years? Do you have CFS and/or FMS and what should the Mino help fix?

    I'll definitely take a look at roadback.org and see what it's all about.

    Thanks so much for sharing your ideas with me!

    Take care,

  19. RedHeadEMT

    RedHeadEMT New Member


    Hey, white is good, too!! :O) I'm alllll white at 100% born and bred in Poland! ::wink:: And you're right, the picture IS pretty damn cool...


    OK, I'm on my way! Can't EVER hurt to get more info, right? Have a GREAT New Years!!


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