Well, I'm about to give up

Discussion in 'Fibromyalgia Main Forum' started by glendamarie22, Oct 3, 2002.

  1. glendamarie22

    glendamarie22 New Member

    on the doctor search. I am so sick of all the dead ends and dissapointments. Some of you read my post, "horrible experiance with new doc." If you haven't, look it up and you'll see what I've been going thorugh in the past few years.
    A friend of mine with FMS goes to a doctor who has done wonders for her and she encouraged me to see him. I found out that you have to be referred to him by your current physician.
    Since I don't have one, I called our family doc (whom I never go to see anymore -when I was 11, he said I was pretending to be sick because I was "lazy.")He wouldn't refer me because the doc is a Neurologist and I should be goin to a Rheumotoligist. There is no other way I can get in to see this guy............... the other doc I wanted to see can't get me in because she has a "closed panel," right now. I am so sick of this... I'm not even going to think about going to another doctor again. I get so dissapointed every time. Forget 'em.
  2. glendamarie22

    glendamarie22 New Member

    on the doctor search. I am so sick of all the dead ends and dissapointments. Some of you read my post, "horrible experiance with new doc." If you haven't, look it up and you'll see what I've been going thorugh in the past few years.
    A friend of mine with FMS goes to a doctor who has done wonders for her and she encouraged me to see him. I found out that you have to be referred to him by your current physician.
    Since I don't have one, I called our family doc (whom I never go to see anymore -when I was 11, he said I was pretending to be sick because I was "lazy.")He wouldn't refer me because the doc is a Neurologist and I should be goin to a Rheumotoligist. There is no other way I can get in to see this guy............... the other doc I wanted to see can't get me in because she has a "closed panel," right now. I am so sick of this... I'm not even going to think about going to another doctor again. I get so dissapointed every time. Forget 'em.
  3. blondieangel

    blondieangel New Member

    Unfortunately we've all been through 'the run around'-

    Your PCP should not be refusing to allow you to see any doc you'd like. I know w/ HMO's you've gotta have that referral. I just go in and get a pile of them! Maybe you need to change PCP's!Just a thought!

    It's your health and no one can manage it but you. YOU live in your body. Don't give up! You deserve to explore ALL avenues to better health!

    BTW - I see a neurologist, who specializes in pain mgmt., NOT a rheumatoligist.

    You have a right to see what ever sort of doctor you want. Stand up for yourself, don't get discouraged, and just move on to another PCP. I do not know how a doctor can 'refuse' letting a patient see whatever specialist they want! This makes me angry. Have you explained to the doc WHY you need the referral?
  4. JP

    JP New Member

    These are very challenging times, both for finding a doctor and living with an invisible condition. After reading your post, I am moved to coach a bit. Please forgive me if this is inappropriate. If the coaching seems helpful, take what you like and leave the rest.

    Don't give up. Try a different approach to get what you need. Depending on your insurance or coverage, you may be able to go directly to a specialist. Most PPO insurance plans allow for direct access to specialists without referrals. If not, establish with a new doctor however your plan allows...come in slowly. Make an appointment for a physical. Don't give the receptionist your health history over the phone. He/she can influence the doctor in a way that keeps you out of the practice. Generally speaking, when a doctor hears FM, they also hear high maintenance, can't help, don't want the patient, I have too many high need patients right now. I don't believe in the condition anyway. I know this because I am "in" the circle with doctors as friends. Generally speaking again, most doctors do want to help you; they are very much human. New doctors are sometimes better because they are not so hardened by the failing system and still have some of their "purpose" in sight.

    My family doctor does not believe in FM, which is fine with me. She believes that my symptoms are very real and thinks something treatable is causing all the trouble. So, she helps me with with my symptoms. She has also discovered, with labs, that I do have other problems causing symptoms. So, in short, I could care less about her disbelief in FM. I don't push the issue. A Rheumatologist gave me the dx after my first appointment this summer. She had suggested that I see this specialist because of my positive labs. I did not tell him what I had; I let him tell me.

    I hope this helps. I am really sorry to hear about the pain this is causing you.

    Hang in there,
    Jan
  5. pamela

    pamela New Member

    I work for Insurance at U.T. maybe I can help you. You need to do what blondieangel said and find another PCP. I gues you have a HMO? Who is your Insurance carrier, if you don't mind? Well, if we are not allowed to ask that then e-mail me at p.campbell@uhs.utexas.edu and I will respond!!! I don't know if you work but if you do then ask some of your work buddies about a good PCP. If you do not work then get the list from your insurance co. for PCP's and start calling around asking if they know about FMS and if they are understanding doc's!!! Write me if you so wish and I will do all I can.. Hang in there it took me 3 PCP dudes to go through until I found one that will listen to me. See Ya!!! Pamela