Well wouldn't you just know it......

Discussion in 'Spirituality/Worship' started by MusicTeacher, Sep 24, 2004.

  1. MusicTeacher

    MusicTeacher New Member

    there I was feeling so good last night and praising the Lord for all his goodness to me.

    Well, I'm still trying to do that but I'm in not such a good place tonight as I saw my doc today and she tells me she's had a report from the Rheumy I saw two weeks ago and he thinks my CFS/FM could be Mixed Connective Tissue Disease instead. Well, even if it is, I shall stay with this prayer board if you'll let me?!

    So, here we go on the merry-go-round again: more tests, more scans, more x-rays, more medication trials.

    I had just got totally reconciled to Fibro/CFS and now the medics aren't sure.

    I should value your prayers that this indecision on the part of the medics could be resolved for once and for all. I've had enough of it, my other half has certainly had enough of it!

    But hey, God IS good - I know that and I trust in him and I'm certainly not in the business of letting the enemy win!

    God bless you all
    Music Teacher (UK)
    [This Message was Edited on 09/24/2004]
  2. Milo83

    Milo83 New Member


    I will definetly be keeping you in my prayers...But if there is a chance it's Mixed Connective Tissue Disease, please let them do their tests...........

    I don't have MCTD, but do have Scleroderma, and without proper treatment and meds, I could be in real danger, even with it, you never know...BTW, Scleroderma is a connective tissue disease, just in case you didn't know... Try, not to get too upset yet, because there are many things with Fibro that mimic MCTD - try to hang on there a litle while longer.........
    WILL BE KEEPING YOU IN MY PRAYERS AND HOPE THAT YOU GET THE STRENGTH TO GET YOU THROUGH ALL THE NECESSARY TESTS.....

    Take Care.......Love, Donna God Bless......
  3. MusicTeacher

    MusicTeacher New Member

    as always for responding and encouraging me.

    Yes, I shall hang in and get the tests done. I recognise it is important and that if MCTD is confirmed, I will probably need extra meds etc.

    Thanks again for your support - this is a great place of friendship, help and prayer.

    Love you all
    Music Teacher (UK)
  4. PrayerWarrior316

    PrayerWarrior316 New Member

    YES, OF COURSE WE WANT YOU TO STAY WITH US ON THIS BOARD !!!

    I know what you are going through, Before I was diagnosed with FMS, I had all kinds of test ran and they found nothing. But with the tender points they finally figured out that I had FMS.

    I will certainly be praying for you.

    Love, Judy <a href='http://www.smileycentral.com/?partner=ZSzeb008' target='_blank'><img src='http://smileys.smileycentral.com/cat/17/17_1_22.gif' border=0></a>
  5. cinnabarsib

    cinnabarsib New Member

    You had better not leave this worship board! We will get our Prayer Warriors to stop you from leaving!Please get necessary tests~I did not sleep one hour last night & don`t know/remember what Mixed Connectiv Tissue Disease is. Can you tell me? I will be praying for you~~with love and hope,Sib



  6. Milo83

    Milo83 New Member

    Mixed Connective Tissue Disease is a name given when you have some symptoms of Lupus, Scleroderma, and others...The docs just can't pinpoint and say, YES, you have Lupus for sure, or yes you have SD for sure, but you are showing signs of such diseases - possiblity of a little bit of both.......

    Someone please correct me if I'm wrong.........

    Have a great Saturday.....God Bless...Love, Donna
  7. jill5050

    jill5050 New Member

    I will keep you in prayer also. The ups and downs of all of this try the best of us. Just when you resolve yourself, you may have to readjust.

    Yes, stay on the board. This isn't a clique :)

    I pray the doctors will have some sort of definitive answer and a good course of care for you to get better.

    Blessings,Carlie