Went to FM doctor yesterday...

Discussion in 'Fibromyalgia Main Forum' started by waxdiva, Sep 19, 2006.

  1. waxdiva

    waxdiva New Member

    I had my second appt w/FM doctor in Pgh yesterday. He was mostly concerned with getting a deep, restorative sleep. He explained that the deep sleep is necessary to feel better. He gave me flexeril to take an hour before bed and this will help me sleep. He also wanted to give me cymbalta to help the pain, but I've been taking it for over a year and, obviously, has not helped.

    Today I am sitting before my computer with a heating pad wrapped around my back and have the usual pains all over. The flexeril made me feel "druggy" when I woke up this AM and I don't like to feel that way. I didn't sleep any better either. He wants me to come back in 6 weeks. I just cannot go on like this for 6 more weeks.

    Thanks for listening...I needed to vent. Any comments are welcome.
  2. GBHope

    GBHope New Member

    I tried Skelaxin for about 5 days straight and had a really rough reaction to it after a while. I seem to do best with just straight lorazepam 1 mg. It is very mild. I had a slight hangover in the beginning, but not now. I sometimes even take 1.5 mg, but very rarely. I have tried ADs and they make me feel horrible, so they are out of the question. There is not much I can take. I feel so weird already with this disease, I don't need to feel any worse. I am going through a flare right now, so I feel your pain. I also am having an interstitial cystitis/yeast flare too. I was having so much inflammation and pain recently I had to take naproxen several days in a row which I don't like to do, but it was necessary. You feel better. I know what you mean about the sleep though!

    GBHope
  3. jaime13

    jaime13 New Member

    Flexiril does nothing for me. When are these Dr. going to realize the deep pain we are in and give us something to block the pain. My Dr. gives me oxycodone and oxycontin along with numerous other meds. Although last time he cut me back, for 2 weeks I feel he will bring me back up again. He truly understands the pain that fibromyalgia brings, and tries his best to treat it. He also gives me adderall for the fatigue-so you see he is awesome but he is few and far between- I don't think there is another Dr like him in Virginia. If there is let me know because he is so booked that he has stopped taking insurance-and lots of people want to see him he has a waiting list-even without taking insurance.
  4. sueliza

    sueliza New Member

    Flexeril also knocks me out and leaves me "hungover" in the morning. I would call your doctor back in a couple days if it still leaves you with that feeling.

    I have been taking Ambien for about 5 months and it works really well. I don't wake up groggy, I can't say I wake up refreshed, but at least my head is clear! :) It enables me to mostly sleep through the pain.

    I also take Ultram in the late afternoon for pain.

    Good luck,

    Sue

  5. Mini4Me

    Mini4Me New Member

    Flexeril did nothing for me, and cymbalta is obviously not helping your pain. Get a doc that will not be afraid to put you on a real pain killer (opiate, preferably long-acting). You are in real pain and need real pain relief!
    Lorazepam helps me sleep too. Also soma.
    Hugs...
    Mini
  6. NyroFan

    NyroFan New Member

    waxdiva:

    I know how you feel. I can not seem to get a deep, restorative sleep. I feel sleep-deprived. I have been waking up several times during the night. It is causing me great pain. Today I can hardly move.

    It is good to vent. I feel the same way. I also use Flexeril, but need the max dosage to feel any different.

    I am trying some new sleep med and had to call the doc today to call the pharmacy to give me an increased strength.
    I hope it helps.

    And I hope you get some real good rest to get rid of some of the pain.

    nyrofan
  7. waxdiva

    waxdiva New Member

    Thanks so much for writing. I will not be going back to that doctor.
  8. tonakay

    tonakay New Member

    Saw your reply on my thread so popped over here to see what you wrote. I took flexeril a year or two ago and didn't do squat for me either, felt a little dopey come morning and like alot of the other meds it made me crave carbs so I quit taking it.

    I'm with ya with the heating pad, jeez this is awful. Oh, I tried cymbalta too, gave it four months and it didn't do anything but add 10 pounds so I quit it too, copay was too high to pay for something that wasn't helping. Right now I just stick with my lortab which is mainly for my back and the topamax....

    Thanks for your reply and hope there is help for us soon... these days and nights are surely gettin long!!

    Hugz,
    Tona
  9. Empower

    Empower New Member

    What is the name of the doctor you went to in Pittsburgh?

    I am in need of a good doctor.

    BTW - I am suffering too from bad leg pain. It seems to happen mostly in the morning. It is a very deep ache and I cannot stay in bed with it.

    After I get up and walk around, it is better.

    This doesn't feel like FMS pain to me
  10. waxdiva

    waxdiva New Member

    Again, thanks to everyone for writing back.

    Empower...I went to Dr. Pollock; he is listed on the UPMC website as a FM "specialist."

    Who have you seen??
  11. Empower

    Empower New Member

    Waxdiva

    I went to Dr Starz in Oakland. Even though he really understands FMS, I had to stop going to him.

    My first appointment, I was there over 4 hours, mostly waiting for him. I cannot do that, I do not have the energy.

    Also, if you are familiar with Oakland, you know that the parking is terrible there, and you have to park in a garage. Unless you have someone to go with you and drop you off, it is really hard to walk the distance.

    I just read some info on a Dr Sherwood Chetlin at AGH. I may look into him
  12. waxdiva

    waxdiva New Member

    Dear Empower,

    Starz: He's really terrible and a total ripoff. I don't blame you for not going back. I went to him three times. At the third appt, after waiting in his antique waiting room for EVER, I told him that I would never be back. He asked me why. I told him that he was never on time (each time I went I had to wait hours), that his staff was rude (I would call to ask if he was running behind and they would tell me that he's on time), his exam rooms were filthy (he explained that he was having a problem with his cleaning people), his office constantly smelled like fast-food leftovers, and that he was not listening to me.

    My impression is that Starz and Pollock are making their money by making FM people get x-rays and bloodwork. Both Starz and Pollock had x-ray equipment and a bloodlab in their offices.

    When I went to Starz he gave me Bextra and Vioxx!!! Both have been taken off the market, btw, but I called him after taking each of them to tell him that they were not doing anything for me. His reply was to just keep taking them...I stopped.

    Since he was supposed to be the be-all end-all in rheumatoid circles (I did a lot of internet research) in Pgh, I figured if he couldn't help me then I better go elsewhere. I went to the Cleveland Clinic to Dr. Anna Koo, who was wonderful.

    This time I just thought I would give a local doctor a shot and, again, did my research. That is how I ended up w/Pollock. Like I said, he's just like Starz. Anyway, I'm going back to Dr. Koo on Oct 4.

    What was your experience like? And, have you seen anyone else in the area? Also, where do you live in Pgh? I live in Ross.
  13. waxdiva

    waxdiva New Member

  14. waxdiva

    waxdiva New Member

  15. Empower

    Empower New Member

    Thanks for the info

    Yeah, I don't think I will be going back to Starz. He made me keep calling him every week about the meds, and when I would tell him this that and the other side effect, he didn't believe me

    I had also tried Dr Elizabeth Young, and first she was very nice and compassionate, and then the attitude was, you have FMS, deal with it!

    I have better luck with my PCP. He will try new drugs if he thinks they are safe, and he listens to any new info on FMS that I find.

  16. waxdiva

    waxdiva New Member

    I guess the FM doctors in Pgh are a small group.(?) Would you please let me know what you think of the doctor at AGH if you do see him?

    Thanks!
  17. Empower

    Empower New Member

    I think good rheumatologists and endicrinologists are hard to find in Pittsburgh

    There are several holistic centers opening in Pittsburgh

    I went to The Nuin Center in PIttsburgh to try to eliminate allergies. I couldn't continue because of the cost.

    I will let you know if I go to the new rheumy
  18. NyroFan

    NyroFan New Member

    Waxdiva:

    I am also on a heating pad today (bad flare).

    Regarding your doctor: maybe just a phone call to him and some explaining it is possible he could change your meds.

    Or maybe you could get a second opinion from someone else.
    I have had to do this in the past and it worked out well for me.

    I hope all works out well for you.

    nyrofan