What are signs of CFS?

Discussion in 'Fibromyalgia Main Forum' started by pinsnneed1es, Jun 22, 2006.

  1. pinsnneed1es

    pinsnneed1es New Member

    What type of test do you have to do to make sure that you have CFS?
  2. Lolalee

    Lolalee New Member

    I hope this helps:

    The Centers for Disease Control (CDC) has established certain criteria for diagnosing Chronic Fatigue Syndrome:

    1. Fatigue that is persistent, relapsing or debilitating; does not improve with bed rest; and reduces or impairs average daily activity level by more than 50 percent for a period of at least 6 months. Patient has no previous history of fatigue.

    2. The patient has 4 or more of the following symptoms, which must have persisted or recurred during 6 or more consecutive months and predated the fatigue:
    Short-term memory or concentration problems
    Sore throat
    Multi-joint pain without joint swelling or redness
    Muscle pain
    Headaches of a new type, pattern or severity
    Non-refreshing sleep
    Post-exertional malaise lasting more than 24 hours

    In addition, a number of minor symptoms may also appear:

    Poor sleep
    Achiness
    Brain fog
    Increased thirst
    Bowel disorders
    Recurrent infections
    Exhausting after minimal exertion

    The CDC criteria should not be thought of as final guidelines in diagnosing Chronic Fatigue Syndrome. Research has shown the people with disabling fatigue who fit the Chronic Fatigue Syndrome criteria have the same immunologic changes and responses to treatment as those who don't fit the criteria.

    According to Edward J. Conley, D.O, author of America Exhausted, "At least 50 percent of the patients we see for Chronic Fatigue Syndrome do not have symptoms severe enough to be classified as Chronic Fatigue Syndrome, but that does not mean these people are healthy. They just don't fit a committee's definition for Chronic Fatigue Syndrome."

    "My experience also suggests that the underlying causes and the response to treatment are not affected by whether patients strictly meet CDC guides," says Jacob Teitelbaum, M.D. "I prefer to use the term Severe Chronic Fatigue States (SCFS) for these conditions."

    In his book, From Fatigued to Fantastic, Dr. Teitelbaum states that it is important to look for and treat all of the factors simultaneously. Chronic fatigue states are unusual in that each problem can trigger other problems. Because of this, it is rare to find only one single underlying problem by the time the patient seeks medical help.

    The process that occurs is analogous to an automobile with no battery and no starter. If you fix only the battery or the starter, the car won't run. If both the battery and the starter are fixed at the same time, the care would be fine. In the same way, if we treat all of a patient's problems simultaneously, the person feels well.
  3. findmind

    findmind New Member

    Besides the CDC site, the Canadian definitio listed at co-cure.org/cccdl.htm has a good guide to the criteria required to diagnose CFS.

    Let us know how you do.

    Many get tested for Epstein-Barr Virus and if their titers are high and stay that way, some drs. call it "chronic EBV"...my granddau was diag. that way.

    We care, keep in touch...
    findmind
  4. alaska3355

    alaska3355 New Member

    to be tested for lyme- it seems like they'll run a lot of tests on you, and a lot will come back normal. Kind of a process of elimination. Then they may say you have CFS. At least that's how it was for my son, who has had it for over a year and a half. Take care, Terri
  5. KMD90603

    KMD90603 New Member

    Unfortunately, there's no one definitive test to diagnose CFIDS. Your doctor will most likely draw alot of blood, however, that is done to rule out other diseases with similar symptoms. Many other illnesses mimic CFIDS, including lupus, MS, RA, thyroid disease, lyme disease, etc. So, before you can be diagnosed with CFIDS, they have to rule out other possibilities.

    Many people with CFIDS have some type of viral/bacterial infection going on, hence the low-grade fevers, sore throat, swollen lymph nodes, fever-related achiness and joint pain, etc. Some common infections to have the doctor check for is EBV, CMV, HHV-6, mycoplasmas, and lyme disease. These are just a few to start with, but they are often found in higher incidence in people with CFIDS.

    Other than that, diagnosis is really based on symptoms. These symptoms must be present for at least 6 months. I won't list them, as one of the previous replies has it there.

    Gentle healing hugs,
    Kim
  6. pinsnneed1es

    pinsnneed1es New Member

    I think I might have to go for test after the 6th of next month, I haven't had a regular doctors appointment sence 2002 because of my deforce from my frist marriage. But I just made one because I am showing unsual signs.
    I have learned how to treat FMS on my own before I had a deforce.
    [This Message was Edited on 06/23/2006]
  7. mrdad

    mrdad New Member


    For a general overview I suggest www.fmnetnews.com

    Hope you satisfy most of your present questions with

    the info. sources suggested!
    MRDAD