What Do Rhuemotologists Actually Do?

Discussion in 'Fibromyalgia Main Forum' started by pookieruth, Oct 13, 2006.

  1. pookieruth

    pookieruth New Member

    After they diagnose your particular problem, what do they do? I'm serious here people!! Mine recommended that I "talk" to someone about my stress/issues. Then I had to argue with her just to give me some ultram, which is worthless as far as I can tell. Then she sent me to physical therapy.

    It just seems to me that all they really do is write prescriptions and refer you to another specialist!! So why bother? I think I'll just go to my PCP in the future.

    Does anyone else feel this way?

  2. tandy

    tandy New Member

    They make ALOT of money!


    probably sleep alot better than us too :)
  3. springrose22

    springrose22 New Member

    And, they do virtually nothing for people with CFS/Fibro. I believe that they all left regular medicine so they wouldn't have to work so hard. I saw two and couldn't believe how uninformed and uninterested they seemed to be. Marie
  4. tandy

    tandy New Member

    They specialize in arthritic conditions and thats where Fibro has been put.
    But most don't know alot about it.
    My dr. is fairly good but still won't treat my pain with narcotics.
    Many members here get narcotics from their drs.

    The few times I was given Lortabs/ or percocette for other reasons,...
    (like after surgery) They helped alot with my FM pain.

    I've found ALL drs. are more apt to treat pain that will go away in a week than to treat ongoing chronic pain.
    Nobody wants us!! lol
    not funny really but it sounds funny :)
  5. Adl123

    Adl123 New Member

    Yep!!! I feel just as you do.

    Terry :)
  6. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    just diagnose you and send you along.

  7. abcanada

    abcanada New Member

    I've just been referred to a Rheumatiologist, and after reading some of these posts am discouraged. It'll be a good 5-6 month wait, but I thought I'd finally be seeing the right doc. It has taken me a year and a half to get through my family docs head what I go through. That included composing a very large letter with my fam history, symptoms, drugs tried, and a little bit about how it affects my life and the lives of my family. I saw a Neurologist the other day who said he'd treat my migraines, but didn't know what the heck was wrong with me.... he's sending me to the Rheumatologist. Anyone have any advice for my Rheumatologist appointment?
  8. maedaze

    maedaze New Member

    My rhuemotologist diagnosed me with fibro 4 yrs ago and told me he didn't want to see me again as I wasn't 'bad' enough to be in any trials!!!!!!!!

    Hmmmmmmm ok then!!!

  9. ladykew

    ladykew New Member

    My Rheumatologist will not let me be in any trials because he says I am TOO ill. He has treated me for 20 years and gives me light narcotics to treat the pain and muscle relaxers for the spasms. He started a FMS rehab program in Dallas. I went through it three times.

    I'm still very ill and stay in flares almost constantly; however, he takes FMS and CFIDS very seriously and does a lot of research on it.

    He's definitely one in a million. I wish all of you could find someone who took such an interest in our pain, fatigue, and sleep disorders.

    By the way, I don't live in Dallas anymore, but I still travel 350 miles one way to see him every six months. I don't drive anymore, but I have someone who drives me.

    I am blessed.

  10. Redwillow

    Redwillow New Member

    For me a rheumatologist diagnosed me with FM and wrote a wonderful report that got me accepted for disability. After that she said she wasn't accepting anymore FM patients but at least she did help me.

    I now see another rheumatologist who at least gives me credibility for my GP. After 2 rheumy's dx'd me with the same thing he had to believe it. She is also very sympathetic and listens when I describe my symptoms. She also checks me for arthritis conditions because I have a strong family history of both RA and OA.

    To be honest I don't find that doctors in general are a lot of help for me except to write prescriptions and give you the same old advice like "get more exercise" and "try to relax".

    hugs Redwillow
  11. fieldmouse

    fieldmouse New Member

    I feel pretty much the same as everyone else. Mine diagnosed me,gave me meds and told me to come back if I have more problems. I asked him about SSDI and he told me I would have to go to my PCP for this and sent me away. It is very discouraging and frustrating but at least my PCP is very interested and concerned about my issues. She calls me a couple times a month in between visits just to see how I am doing. At least I am thankful that I have her even if she don't know much about FM/CFS she is very willing to try new things that I mention and works very close with me on all my issues. If I find something in my research is is always willing to test for it or try new meds. I really love here!! Hugs!! Mick!!
  12. FM_DD

    FM_DD New Member

    Hi, I have a good Rheumy, she's a she....very understanding, a great listener. Sometimes this helps me
    when I can't get anyone else to listen. She will also give
    me Trigger point injections. And will sometimes try things I suggest. She likes to give anti-depressants to help w/ the pain but I'm already on it for migraines. I can bring printouts, websites and such to her and she'll check it out and get back w/ me.

    If yours won't give you pain meds maybe suggest she refer you to a Pain Mgt Specialist and then give you something to hold you over til you get into one.

    Hope this helps,

  13. pookieruth

    pookieruth New Member

    Many thanks for the replies!!! For Abcanada - don't let us discourage you!!! My rhuemy DID diagnose me, which in itself is a relief - knowing there is a reason I feel this way, that it actually has a name - well, it's nice to know I'm notcrazy after all! So keep that appointment!!

    But after that first visit, what can she do? And her being about 15 years old has nothing to do with it!! Well, okay, I'm exaggerating a little - she might be in her late twenties. But still, she refuses to give me any pain pills, and I wonder why I bother with her.

    I'm going to call a few doctors on Monday, get their nurses on the line and ask them point blank if Dr. So and So treats fibro, and how?

    For those of you that have found good rhuemy's and PCP's, you are very lucky. And probably the minority here. Good for you!

    Goodnight All,

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