what do you think about Methodone?????

Discussion in 'Fibromyalgia Main Forum' started by sjogrens, Nov 29, 2005.

  1. sjogrens

    sjogrens New Member


    I have taken many pain meds in life. First vicodin then percocet now I am on oxycottin release. The problem is they don't seem to work as well anymore. My pain has almost been back full force. The doctors now want me to try methodone or the pain patch. I have read some stuff about methodone and I am kind of scared. One of the side efects were weight gain. Will I gain weight. I just lost weight from other meds and I don't want to gain it back. Also I have heard there are more deaths with these meds. My doctor says most fybro patients are on these. These are the pain clinic doctors I just saw the other day for the first time. He's writing a note to my rheaumy to recomend methocodone. I just don't know. Should I just stay with what I am already on?

    Thanks, Sjogren's
    [This Message was Edited on 11/30/2005]
  2. Fudge43

    Fudge43 New Member

    Hello sjogrens .. I can understand your indecision .. I have been through a few different meds in the past 4 years .. I research all I can (getting ideas from this board as well, from other people's experience) .. just lately I asked my GP about Mirapex .. she was not familar with the drug at all .. she is very open with trying new things .. BUT .. she wants me to see my rheumy to go over it with him since fibro is one of his specialties and he would be more up to date with new or different drugs.

    Now I'm thinking .. I seem to be ok with what I'm using .. time released oxycontin (a total of 20 mgs in 24 hours .. so quite a low dose actually) .. I have break through pain meds as a safety net too.
    So my thoughts are .. maybe I should not get into anything new until I really have to .. when my meds at the present STOP working for me .. it truly is difficult to know what to do .. so I understand what you are saying ..

    I don't know anything about the methodone .. but I had "filed" that away in my head when I read about it earlier for future possibilities.
    Are you seeing a rheumatologist ? (spelling is probably wrong) .. a specialist for fibro ? in other words or are these GPs that are recommending new drugs ? ..
    I think you should go with what you are comfortable with .. if you can stand how you feel with what you are taking now .. give it a little more time .. if not, then give a new drug a try but if you aren't happy with the affects certainly say so to the doctors ..

    I think I have been next to no help .. but I wanted to say I know how complicated things can get when trying new meds out etc .. research and ASK questions till you get the answers you are satisfied with !
    Good Luck
    Fudge : )
  3. Jana1

    Jana1 New Member

    When a low dose of Oxycontin quit working for me, my Dr. added 20 mg of methadone twice a day. I take it with the 20 mg of oxycontin. I also have Darvocet for breakthrough pain. I seldom need to take it. Anyway, this is the most pain free I have been for years. Still have killer mornings for about an hour, then I get more limber, etc.

    Anyway, this is my experience.

    Jana
  4. sjogrens

    sjogrens New Member

    I am seeing a rheumatologist. They are the ones that sent me to the pain clinic for another opinion. I am now on 20mg oxycontin in the morning and 20 in the after noon. I take a 10/500 vicodin in the after noon for breakthrough pain. Sometimes I take one at night. I guess I could stick with this routine for now but how do I know what is to much to take for breakthrough pain? I don't know what a safe amount is because sometimes I wish I could take a breakthrough pain pill in the morning. I don't want to overdose. My vicodins generic are the highest dose being 10/500. Thankyou for your response it helped me a lot.
    And refering to combination of methodone and oxycontin, I didn't think that could happen. I guess it can if you are. Only are you noticing weight gain? or is this a myth? I don't want to gain weight either.

    So confused, Sjogren's[This Message was Edited on 11/30/2005]
  5. Jana1

    Jana1 New Member

    Yikes! I hadn't ever heard that a combination of Oxy and Meth couldnt work! I guess my body doesnt know that, because I seem fine with it. Yes, I have had a weight gain, but I blame it on eating comfort foods at night. I am getting that under control even as I type. I haven't really thought that the med was causing it as I lost fine a year ago when I was eating right.

    Sometimes I really wish I had something to blame weight gain on instead of myself!
  6. unbalanced

    unbalanced New Member

    The pain clinic I was going to put me on Methodone I became sick to my stomach, felt like I was under water, extremely tired(more than normal) I had blurred vision, sweats, & yes I gained weight!! I refused to continue that medication!! And was put on Vicodin ES, I now take 10mg Vicodin, & that barely touches the pain!!! I take 4 a day but sometimes I take as many as 8, then of course I skip days & suffer because I have to make it through until my next refill. This is very hard on my family my husband works 3rd shift, I have a little girl in kindergarten, & a little boy in 1st grade, & an 11yr old who also suffers from IBS & unknown aches & pains!! I wish I could get a doc that would prescribe something stronger, so my & my families lives were a bit more "normal"!! I have to take care of my children, I refuse to depend on others to do what i should be doing & I want to, I would go crazy if I did not have my family to take care of!! It's a neverending search for help, all just to live without so much suffering.
  7. Yucca13

    Yucca13 Member

    Methadone made me very nauseus even though it helped considerably well with the pain. Then my doc suggested Avinza (time-released morphine sulfate) and it was the first medication that helped for an actual 24 hours. The constipation was a real problem though.My insurance does not cover it without a big hassle either.

    In the past three weeks, I switched to a 50 mg. Duragesic patch every three days. I have had no nausea or any other side effects. It works well for the pain, especially in the first 24 hours. Only drawback I can think of is no jacuzzi!! It is worth foregoing the soak for the pain relief
  8. PepperGirl52

    PepperGirl52 New Member

    I was switched from Oxycontin, 30mg/day to Methadone 20mg/day. Switching from one to the other was rough for the first few days, but I have adjusted well.

    Yes, I'd say that I am hungrier, but I just do my best to fight the urge to eat all the time. It takes more effort and discipline, but it's worth it for me to have good pain control.

    The methadone isn't especially better than the oxycontin was, but it is a heck of a lot cheaper!! Even with insurance, I was paying over $300/month for the Oxycontin (!!), and now I pay $15/month for the methadone. THAT was the big plus for me, and the biggest reason my rheumy and I decided to switch. Good luck! PG
    PS I never had any nausea, but the constipation is horrid! You have to really work on that one!!
  9. kaiasmom

    kaiasmom New Member

    I tried methadone for a few days once, but it made me extremely angry. I had these outbursts where I would just scream I was so mad, even about little things. So, needless to say, I stopped taking it after only a few days. I now take long acting morphine sulfate 3 times a day w/o the anger issues!

    Good luck,

    Leanne
  10. MamaR

    MamaR New Member

    Is this the same that is given to people that have been on heroine?!

    Just wondering...because my son was addicted to heroine many years ago, and they sent him to a clinic to get him off of the heroine. There they gave him methodone. He was so anxious, almost violent on this! Many other bad side effects also. He is clean today....thank God!
    Plus, I read were it has serious side effects. If I'm not wrong it can destroy the liver!

    Am I speaking of same or is there two methodones??!!
  11. bigmh

    bigmh New Member

    Hi Sjogrens...I take 5-10 mg of Methadone every 12 hours. Sometimes I take 5 mg. in the morning and another 5 mg. around noon. I have to take it with food though, because otherwise I am very nauseous. It helps me much more with the pain than oxycontin or vicoden, and I can stand the residual pain as it doesn't take it all away. Will anything ever take it all away?? Constipation is a problem, though, and I use Citracel (Sugar Free) 1-2 X/day. That helps a lot. Good luck! I think that methadone is definitely worth a try. B
  12. sami

    sami New Member

    yes it is the same methadone..but it works very differently in our bodies...
    i would not be here if i couldn't take meth for my pain..it is the only thing that consistently works...it does make me constipated as does any narcotic, but i take 2-3 stool softeners a day and try to watch my fiber intake...the constipation can be dealt with but the pain can not be....if i get a super bad headache i will take fioricet and that works great..
    this dd has made us all into a bunch of pill poppers, but there is no other choice....
    sometimes i wish everyone could have fibro for 1 day to understand how we live all the time!!!!!!
    good luck.
  13. sjogrens

    sjogrens New Member



    These responses make me feel much better. I always thought I was taking so much pain relief, I never thought it was possible to take a little more (vicodin). I don't do anything without a doctors approval. I think maybe I'll stay a little longer on the oxy. I just started taking it in August. It just didn't seem like it was touching the pain. My 11 year old daughter has aches and pains too. More so than my other kids did. I use to think growing pains. The thing is she hasn't grown that much. I don't tell her I think anything though until I am sure. Just incase they are growing pains. (Back to the methodone) I don't know for sure you can't take methodone with other narcotics, I just read it in a methodone description. I'm not a doctor so I don't know. Thanks again.

    Sjogren's
  14. TFD

    TFD New Member

    My step son has a herion addiction. He is trying to get off of it with the help of a "meth-clinic". He is doing well on it and he has not gained weight.

    Best of luck and prayers are with you.

    TFD
  15. MamaR

    MamaR New Member

    I wasn't for sure if it was the same med. I hope that I wasn't misunderstood! I know that we have to take meds to relieve us....so I am not condemning anyone about it. I know that ALL of the meds now have side effects....but we have to live. We can't live in such severe pain! So each of us have to take what will help us.
    The meds that I am on don't help much, but I am going to a new doc now. I feel like she will help me.

    Sjogrens....I hope that your rhuemy will help you...as I know what PAIN is!


    BIG Hug....Mama
  16. suzetal

    suzetal New Member

    My first question to her was.

    Am I going to gain weight.Her response to me was " Sue do you want to feel better and be able to do some of the things you enjoy?".

    My reply was yes Ill try anything to get at least part of my life back.Then she said OK than don't worry about how you look think about how you feel.

    I have also been told by all 5 of my doctors to eat 6 small meals a day.Our metabolism has changed and what ever fat we take in the body is more likely to store it .In my case I was only eating once a day so my body would hold on to the fat .

    Now I eat 6 small meals am I am loosing a little of what Ive gained.

    I really do not care about my weight I just want to feel the best I can with these DD FM and CFS plus a lot more.

    Sue
    [This Message was Edited on 11/30/2005]
  17. southernrose

    southernrose New Member

    Hi Sjogren's;

    BOY' I didn't know what to think when I saw your post and your name is Sjogren;s, for I have a medical condition called and spelled exactly like your's. I do know that the doctor that discover this medical problem was name Sjogren's and lived in Germany. Was he by any chance kin to you? Not really being noisey just curious. GOD BLESS YOU.

    Southernrose
  18. petsrme

    petsrme Member

    My guess would be, and I could be wrong, that the name sjogren's comes from her having sjogren's syndrom herself. That is at least the way I took it. My rheumy tested me for it so that is how I am familiar with the syndrome.

    As to methadone, I never knew it could be used for our problems, but anything that works sounds good to me. If it helps you live a better, pain reduced life then it has to be better for you than nothing.
  19. sjogrens

    sjogrens New Member


    Hello everyone, Yes My rheumatolagist found I also have sjogren's syndrome. It probably contributes to all my pain with fybromyalgia. It also gives you dry mouth, dry skin you name it (it's dry) Even your organs can get dry.I take medication to help moistion things up. It also causes pain like arthritus. I think that I will stay with the oxycottin for a while and then maybe try the methodone.
    Thanks for every one responding.