what doctor to see?? Opinions please!

Discussion in 'Fibromyalgia Main Forum' started by SICKim514, Jan 31, 2009.

  1. SICKim514

    SICKim514 New Member

    I believe I may be experiencing a flareup of my fibromyalgia. Ever since I had my baby in September, I've been in alot of pain. My muscles, joints, skin, etc all hurt. It's been years since I've seen a doctor for this, but when I did I saw a rheumatologist. I did, at one point, see a neurologist due to other symptoms I was having (migraines and muscle twitches). I was put on Topamax but ended up stopping it. I had also seen an infectious disease doctor who diagnosed me with CFS after I suffered with mysterious fevers for a couple months. Anyway, my question is, which doctor is best to see for fibro....a rheumatologist or a neurologist?
  2. sydneysider

    sydneysider Member

    I think it is lucky to find ANY doctor that can help.

    FM is Rheumy territory, but often they may be only useful to diagnose.

    It can be difficult to distinguish FM/CFS symptoms from something else. If the pain is in the joints as well of the muscles, it really makes me think you might have something else going on. The skin and joint pain sounds like something that needs a rheumatologist, however the fevers make me wonder if you might have some other infectious disease causing the pain. Have you read the lyme posts?

    Also bear in mind that you may have to see more than one of any type of specialist to get to the bottom of things. Unfortunately, even specialists can get it wrong, or miss things.

    Sorry I can't give a specific answer. A rheumatologist would seem best for the pain symptoms, and may be the first step in tryiing to get answers.

    All the best
  3. Nanie46

    Nanie46 Moderator


    I have had FM for 21 years. I always was convinced that my classic FM symptoms were caused by a virus....until I decided to have an Igenex western blot. Now I know that I have a bacterial infection called Borrelia burgdorferi...the bacteria that causes lyme disease.

    I couldn't help but notice that you have alot of symptoms from Dr Burrascano's lyme symptom list.....muscle pain, joint pain, skin pain (skin hypersensitivity, or tingling, or numbness, or burning, or stabbing sensations, or shooting pains), headaches, muscle twitches and fevers.

    The thing about lyme is that you don't have to have every symptom on the list...different people have different presentations. Some kids have even just had ADHD symptoms or personality changes.

    I have the FM presentation. I believe my daughter also has lyme and she will be having a western blot soon. She has the fatigue, migraines, muscle twitches, easy muscle injuries, trigeminal neuralgia, frequent sinus infections, etc.

    My hope is that through my own experience, I can prevent others from suffering for 21 years like I have.

    I strongly urge you to do some research at www.ilads.org, and read "Advanced Topics in Lyme disease-Diagnostic hints and treatment guidelines for lyme and other tick borne illnesses, October 2008 by Dr Joseph Burrascano...available online. The essay, "When to suspect lyme" by Dr John Bleiweiss ,also online, is an astounding, eye opening paper that I highly recommend.

    Don't get me wrong...my symptoms are EXACTLY that of fibromyalgia....like out of a textbook. The big question is "What caused those symptoms?"

    Your symptoms sound very suspicious to me of a borrelia burgdorferi bacterial infection. Please consider getting an Igenex western blot soon. You just need a Dr to sign the order. If you have one done, make sure to get a copy and compare each band result to the info in Dr Burrascano's paper, even if the overall interpretation says negative.....because it can be indicative of lyme even if it's interpreted as negative.