What does a Rheumy Do For FM?

Discussion in 'Fibromyalgia Main Forum' started by Kellyslaw, Feb 15, 2007.

  1. Kellyslaw

    Kellyslaw New Member

    Hello Everyone: I am curious to know what a rheumy does for treatment of FM that a gp can't? Where I live, my regular doctor told me that there are only 5 rheumys in all of the Northern part of my state and they won't even see anyone with a diagnosis of FM because of the limited resources available. My dr is wonderful and she has assurred me that she will work with me to get the treatment I need. She dx'd me on 1/19/07.

    Any info would be great. I am just curious to know that I am doing what I need to be doing to get over this flair and get back to work by 4/2/07.

    Hugs,
    Kelly
  2. dononagin

    dononagin New Member

    Mine did nothing but confirm the diagnosis, prescribe cymbalta and send me back to my reg doc.

    hugs!
  3. momof471

    momof471 New Member

    My Rheumy diagnosed me ordered tests and continues to follow me very closely, he is very interested in FM, very knowledgeable. My pcp on the other hand while very good, knows nothing about FM and defers to the Rheumy. Also if disability ever becomes an issue for you a specialist carries more weight.
  4. caffey

    caffey New Member

    I have both ra and fm. My rheumatologist won't do anything for it. Says it is the least of my problems. The pain specialist gives me pain meds and something for sleep and says it is the least of my problems. My gp stays neutral. Sorry I can't be of more help.
    Cath
  5. meowee

    meowee New Member

    After three visits, I quit him. He told me to take motrin and live with it. Easy for him to say..

    God bless
  6. Suzan

    Suzan New Member

    Was confirm for my GP what he already knew. The rheumy told me that his patients with fms that improved...did so on their own with no help from him. He also said that what my doctor was doing ( at that point he was only giving me scrips for vicoden) was the same thing he would do for me.
    Not much help for $400.
  7. lbuchanan3

    lbuchanan3 New Member

    My Rhuematologist was consulted as part of my disability case, according to both my PCP and my lawyer the SSD considers a diagnosis from a PCP as not adequate proof of Fibromyalgia.

    The Rhuematologist was able to confirm that I had all 18 points of the tender points needed to confirm my diagnosis, 11 is a minimum to confirm a Fibromyalgia diagnosis, he also helps my PCP with my treatment plan as he is much more knowlegeable than she is.

    Just keep in mind that if this disease or a combination of this disease plus others ever leads you to not be able to work again that you need the confirmation from a Rhuematologist. I later found out that I also have arthritis throughout my spine and ruptured disk with nerve involvment on both sides of my neck at C5-6 and a ruptured disk at my lumbar level. Had it not been for the Rhuematologist taking my complaints seriously my PCP, who thought my complaints of pain were all stress related, would have stopped looking for underlying causes and was not giving me any treatment for my pain.
  8. bellagirlc4

    bellagirlc4 New Member

    found a rummy that is very nice and seems to understand my problem and i go every two months. I really can't tell you what he is doing much different than my regular doctor except that he has me on gabatine (sp?)on top of my cymbalta that my regular dr. gave me. I am thinking of going to a pain clinic tho.
  9. Kellyslaw

    Kellyslaw New Member

    I am so impressed by all of the people I have had the opportunity to converse with on this board. You guys truly are wonderful. I will keep all of your suggestions in mind. If I do have to file for SSDI, I will go to see a Rheumy even if I have to go somewhere else to do.

    Thank you again,
    Kelly
  10. suzette1954

    suzette1954 New Member

    Like the others, he runs tests and touches my neck and squeezes my fingers. He is making me call his office every 15 days to get a refill on my darvocet. Last visit, he told me I was taking way too much darvocet.The bottle tells me to take 2 tabs every 8 hrs. I get 90 tabs at a time. He told me I should be taking 1 tab 3times a day.

    I felt like a drug addict and when my husband found out, he called our primary care dr who then called the rheumy who then called me and apologized about the visit.

    They dont know what to do with us or for us. We basically are on our own and have to fight for any meds we can get.

    Hugs,

    Suzette
  11. California31

    California31 New Member

    Nice person....supportive...but not much info on FM...and second rheumatologist...."anti depressants....strong sleep meds..."....I was not interested. Pain specialist helped the most....It is important to have a rheumatologist on your side...
  12. kirschbaum26

    kirschbaum26 New Member

    Hi:

    I saw an older, more experienced Rheumatologist on and off for about 5 years. He gave me prednisone, which really helped me. I had to go off when I had my daughter. I would love to go back on it, but my current rhuematologist is not likely to do so. I have had problems with medications for more than a year now...tried ENBREL, worked great for 5 months and then suddenly stopped working. Tried HUMIRA and had a series of infections. I am now taking sulfasalazide and was taking plaquenil, but since I have some liver issues (due to 12+ years of taking more than the daily max dose of advil) and some lung and heart issues (most likely due to the RA), so I do not have many choices as far as medications go.

    I like my current rheumatologist, as he is treating me as a whole person, and not just someone with RA. Fortunately, most of my FMS symptoms have been mild over the years.

    Not sure I this was much help, but rheumatologists are important for a long list of reasons. If you are unable to work, documentation from a rheumatologist is taken more seriously than that from your FP doctor.

    Good luck.

    Ingrid
  13. Mini4Me

    Mini4Me New Member

    said it best. You need a Rheumy for Soc Sec approval. Other than that, mine was worthless.
    Mini
  14. discoverygal

    discoverygal New Member

    The first reumy I saw said I have hypermobility syndrom...what?

    Then a year later my pain got worse so I saw a ruemy in boston who dx'd me with FMS...which I knew I had. He said deal with it and sent me back to my gp. I cried and didn't know what I was going to do.

    MY gp had gone to a seminar done by a reumy at newton/welsley hospital near Boston who is a specialist and expert on FMS, Don Goldenberg. He wrote "Fibromyalgia, a leading expert's guide to understanding adn getting relief from the pain that won't go away". A great book. He knows and understands our pain. What a relief.

    I think that it doesn't matter what type of doc we see. We need to find the doc that knows and understands the pain and the syndrom.
  15. suzetal

    suzetal New Member

    making plans for his vacation to SPAIN for the holidays 3 years ago.

    My DH and I were waiting for 2 hours in the waiting room with other patients could hear him through the walls making his vaca plans.

    I fired him and told him we could all hear him and to leave me sitting there in PAIN was awful and that I would continue my treatments with my GP.

    I was seeing him once a month for 6 months at 40.00 co pay a pop.He did nothing for me my GP did.The worst part he is listed on this sight as a doctor to see for FM.Well he stinks.Cares more about how to spend his money he gets from us instead of helping.

    So now I see my GP every 2 months and my neurologist and shrink every 3 months.

    Sue
  16. Dixie_Amazon

    Dixie_Amazon Member

    "The first reumy I saw said I have hypermobility syndrom...what?"

    I have read that people with hypermobility syndrome are more prone to FM. I was never diagnosed with hypermobility syndrome, but I am so flexible it kinda freaks my husband out.
  17. mujuer

    mujuer New Member

    useless, and more useless. I have seen three and they haven't helped me alot. I think these dr.s got dumped with this auto-immune diseases and they don't have a clue. I hope there is some teachings at medical schools these days that teach drs. about the auto-immune diseases that more and more people have to deal with because this is NOT working.
  18. katvwolf

    katvwolf New Member

    OMG! I can't stop laughing after reading your reply! Thanks so much! I needed for my sides to hurt in a good way for a change! (((HUGS)))

    Kat
  19. suzyQ44

    suzyQ44 New Member

    Hi, Kelly
    I am SORRY to say that my Rheumy DOC has done NOTHING to help me at all at first I think he made it even worse by all the antidepressant's he had me on almost 400mg a day. It was awlful.I seen him several times but After awhile I took myself off of them and it was almost a year before I went back to see him. I went back a few week's ago to see if he would perscribe me Tens machine just to see if it would help me alittle, but he would'nt do it he said test showed it was a low % of people that it helped but it only took him a few minutes to write me a perscription for the antidepressant Wellbutrin and as far I can tell antidepressant's maybe only helping a small % of people. Don't make scence to me. As yo can tell I am upset I take nothing for this awful pain I hurt all the time. I hope you find better help than I have Good Luck, Suzyq44
  20. HurtsToMove

    HurtsToMove New Member

    just like any other. If you like your doctor, stay with her. The specialization isn't nearly as important as the treatment. If you feel she's doing good by you then there's no reason to change.

    I love my rheumatologist. He gives me pain pills and really listens to what I say--he's very compassionate. We just seemed to click personality-wise, too, which also helps.