What does everyone else use for pain?

Discussion in 'Fibromyalgia Main Forum' started by collegemom, Feb 9, 2006.

  1. collegemom

    collegemom New Member

    I use oxycodone 5/325 and wondered if anyone else uses it and how much. My doctor is worried that i use too much. I am up to 5 tabs a day but my pain is still there but it is bearable. Is this normal for anyone else?
  2. Crispangel66

    Crispangel66 New Member

    I take Vicodin 750mg 4 times per day.

    I am going to ask my dr to either up my dose or see if I can take it 5 times per day.

    Or I may see if he could just prescibe something stronger.

    I have been on this dose of this med for almost 3 yrs.

    But I always take a muscle relaxer at the same time when I take my pain med.

    Then at bedtime I take the Vicodin, Soma, Xanax, Trazadone, and Neurontin.
    Hope this helps you Pamela

  3. rockinrobin

    rockinrobin New Member

    I take Norco (another term for vicodin)10/325,(less tylenol that way) I am allowed up to 8 per day, I average 5. I also take morphine, 10 mg, 3 a day. There are times I might need 4, my doc. said it was OK. I have been on the same dose for 3 years now, I don't need "more", like alot of people think might happen. Especially regular GP's. I started out at a pain clinic 3 hrs away, & finally found an internist about 30 minutes away that will give me my meds. He has all my paperwork, he knows I have tried everything . And he knows I am not "abusing". He is a young doctor, & he told me that when he went to med school, they actually had a different stand then, that they know it is not dangerous when you have a chronic pain condition. It is going straight to the pain source nerve endings, not going to the brain for a "high". I only have to see him 1x a year. I can get the norco through mail order for 6 months worth, & the morphine, they only allow 3 months at a time, w/ no refills. So I get a new script every 3 months to mail in. Hope this helps. Take care :) PS. I also take muscle relaxants 3x a day, & Relafen (antiinflammatory) for my arthritis. Restoril at bedtime w/ my pain meds & m. relaxant
    [This Message was Edited on 02/09/2006]
  4. collegemom

    collegemom New Member

    Thank you
    I just dont feel like it is too much since i can still function like i go to work everyday and attend classes at a university. i also am a mom so i feel that if i need to take more i should be able to unless i start to fail
    i really appreciate your sharing your info with me
  5. collegemom

    collegemom New Member

    Wow you are very lucky to have found a doctor who believes you are not abusing. My doctor was very understanding at first but now i feel she is doubting me
    Thanx for taking the time to respond much appreciated

    YES I totally agree with not being able to take the mind altering meds They depress the hell out of me and make my life worse.I have tried the whole array of drugs and the only one that works is percocet. No it is not my choice to take them everyday but if i want to live a normal life then i have to.

    THANK YOU to everyone for responding to my thread I am glad it is helpful to others also. I was feeling like maybe i was becoming a junkie and i know i am not but you start to second guess your best judgement when your doctor starts to question you!!!!!! [This Message was Edited on 02/10/2006]
  6. marw

    marw New Member

    First, Janet, not all of us can take those meds such as Cymbalta (I had such a horrible reaction, I thought it would kill me) or SSRI's or other brain-altering meds. I did love Voltaren, but it tore hell out of my stomach and I cannot take it all, not even with food. I went through hell until I got a doc that would give me adequate pain meds, so I think I will copy these portions of the thread where people are taking strong meds for more proof for my doc if I need it ever.

    Right now I take Vicodin 5/500 and am allowed up to 6 a day. I usually only need 4 or 5, then sometimes might need 7. It varies. With it I take .5 mm Ativan for anxiety. At night, I take the Vicodin, and 1 mm Ativan and 2 to 5 mm. of Valium. Lately the nighttime meds are not working to put me to sleep, so I tried substituting Benadryl for the Ativan and Valium and just taking the Benadryl with a Vicodin instead. It works better for sleep. (I could not take any of the sleeping pills such as Klonopin and others...can't remember their names.) I also take Bentyl and Levsin for the IBS, but they don't seem to be helping.

    What I really, really wish I had is a time-released med for pain. I often wake up 4 hours after I take Vicodin at night, that's about how long it last. My doc tried Fentyl patch at the lowest dose and it was still too much....I had to go to the ER because it was causing an overdose.

    College Mom, you are fortunate that your doc gives you the meds you need. I have had such a hard time getting anyone to give me adequate medication, and every time I go to a specialist (such as for my herniated disk, or the IBS) those docs try to make me quit taking the Vicodin. Well, let them live with FM for a while and then see what they say!! This is a painful disease....it needs to be treated as such, is my feeling about it.

    Thank you starting the very helpful thread. I hope others reply too.

    P.S. I wish I could get long prescriptions. I can only get a month at a time, and am constantly having to get the doc's permission for refills.
    [This Message was Edited on 02/09/2006]
  7. rachel432

    rachel432 New Member

    i take a lot of meds it seems. i take vicodin for pain, robaxin as a muscle relaxant. i also take neurontin and elavil. they seem to help but my dr. always says how important sleep is which is why he put me on elavil and i still have so much trouble sleeping @ night and then i'm always tired during the day which just makes it harder to deal with pain. do the rest of you have a lot of trouble sleeping and have you found anything that helps?
  8. rachel432

    rachel432 New Member

    i take a lot of meds it seems. i take vicodin for pain, robaxin as a muscle relaxant. i also take neurontin and elavil. they seem to help but my dr. always says how important sleep is which is why he put me on elavil and i still have so much trouble sleeping @ night and then i'm always tired during the day which just makes it harder to deal with pain. do the rest of you have a lot of trouble sleeping and have you found anything that helps?
  9. jakeg

    jakeg New Member

    I take 1 10mg oxycodone at 10am and vicodin 5/500 thought out the day and this combo seems to be working pretty well for me. The oxycodone was prescribed before bedtime but did nothing for the daytime pain so I changed the time and by the time bedtime comes around Ican once again sleep. Before the oxycodone I was only getting on average of 2 to 3 hrs of sleep not very much but now I sleep from 10 Pm to 5 am big difference.

    Hope you find a combo that works for you

  10. natrlvr2

    natrlvr2 New Member

    I am only allowed to take 3 Vicodin a day(5/500mgs.)I am having issues with my dr. There is NO reason for me to have that much acetaminaphen.It does not do ANYTHING for me.Never has even when I used to take it for headaches many yrs. ago.
    I did have a nice pain management specialist but I only saw her twice and she went somewhere else.I am afraid to even look for another one because I would hate for them to take it all away.
    I need at least 4 Vicodin a day,more narcotic and less of that useless stuff.
    [This Message was Edited on 02/11/2006]
  11. patches25

    patches25 New Member

    I have had oxycodone when I was recouperating from broken bones and the pain relef just wasn't all that good. I did better on vicodin.

    One thing that my mother tried when she needed a change in pain meds was asking the doctor if she could have 2 of the vicodin ES and break them in half so she could have pain relief 4 times a day. It did really help her. For some reason 1/2 of the 750s worked better than the 500. Not sure why. Maybe the drugs have different carriers. She had been on the 500 vicodins at the time. Maybe you can talk to your doctor about a trying a different drug or changing the way you are taking it. Good luck. E.
  12. UPK5

    UPK5 New Member

    Hi CollegeMom!

    I am a collegemom with PAIN too! I have NEVER taken oxycodone. I have taken vicodin (as needed) and ultracet (when needed) to get through days of pain and help myself function in situations where I might not otherwise be able to manage.

    Recently I was asked by my ENT to have a neurological exam, because of my frequent & painful sinus infections. The neurologigist spoke to me like I was a drug addict. It was very demoralizing. He kept saying YOU are taking NARCOTICS!!! I explained to him, only when needed! He kept saying, you TAKE them WAY too OFTEN! However, that is the ONLY way I can function when I am in PAIN and need to do things. Most of the time, I work (part-time) come home rest on my thermophore (intense heating pad) and do a few minor things around the house. I usually don't feel well enough to do anything MAJOR. I do go to GRADUATE school once a week. I need to study, write, think, read, concentrate... I had stopped school for awhile when I found out I had fibromyalgia because it was throwing me over my edge or threshhold of pain. I was tied up in knots. Now, I have cut my work day in half, cut my course load in half, of course my pay check is cut in half too.
    It was refreshing to read your post and the responses you received. I just feel so perplexed as to where I should turn to handle my pain, what I should or should NOT be taking for it. I don't want to be addicted to any drugs, but I don't want to live my life in misery, stuck in bed, suffering. I am a fun, lively upbeat person, except when I am hurting so badly I can't do anything. My newest body part that has been afflicted with pain is my head. I have heard some people say IT IS ALL IN YOUR HEAD!!! Well, it is not all in my head, but even having some of the fibro in my head has been extremely rough for me.
    The neuro. told me yesterday, to continue to stay away from the NARCOTICS and to try MOBIC. It cost me $125.00 for 60 pills of Mobic. It is pricey stuff. Is that all there is? Is my life only going to be a "B", and then I'll die? I surely hope NOT!

  13. patches25

    patches25 New Member

    Bumping for more responses on what people are doing for the pain. E.
  14. OvercomingFM

    OvercomingFM New Member

    It's good to be able to talk about these "drugs" with others who know how it feels to have your friends and loved ones look at you like you're a junkie. While I absolutely HATE having to take these things, I cannot survive without them. And I have a handicapped child to contend with - and he's getting bigger and stronger. Don't know what I'll do when he is a teenager. Well, we'll take it one day at a time. I started taking Tramadol in the beginning in 1999, and more than maxed out on that prescription. It was the only thing that would help get rid of the actual pain, but I was still too exhausted to move. A few years ago I began using Lortab 10/500 four per day along with the Tramadol, (as I saw recommended on the fibromyalgianetwork.com Dr. Robert Bennett recommended the combination, and it gives me some energy (or euphoria, as my family doctor says). My family doctor, however, is skiddish about giving the Lortab to me, but he gives me 240 tramadol per month. I don't know if any of you have ever had to come off of tramadol, but it is like climbing out of your skin. It is quite physically addictive. I really want to get off of the Tramadol, but don't want to end up just on the narcotics. I am beginning to feel like mush brain.....and my body is sweating like crazy at night, and it smells like tramadol. Anyone had this situation?
  15. claudiaw

    claudiaw New Member

    I take darvocet and valium when needed. On a daily basis I take Zanaflex in the morning and Flexeril ay night, I just got a sample of Lyrica that I have been taking before bed. It helps me sleep, but also has some side effects I don't like, so I am not going to take it for a few days and see how I do. I will take 3mg of melatonin for sleep again.
    What doctor's don't realise is we take these because we hurt! On days where the pain is tolerable I don't take them, They all have side effects and I would much rather not take them. They also tend to make me sleepy, if I was going to abuse anything it would bre something that gave me energy!:)
    Anyway many studies have been done that show people with chronic pain are no more likely to get addicted than anyone else.
    Of course there are always exceptions, but on the whole I would bet most of us would not be taking any of these meds if we truly did not need them.
    Maybe you can find a more understanding doc who really knows FM and the pain it causes.
    I hope you feel better, and get the treatment you need.
  16. gigio

    gigio New Member

    Wow I am so glad I found this site. I have been in pain since my mid twenties (now 47). It is nice to read about people that understand what you are going through. I think my husband just thinks I am faking it. I even give him books to read about it but he doesn't. I am now on percocet 5/325 1-2 pills every 4 hours. They have actually been helping. They don't even make me dizzy and tired. I have more energy than I have had in a long time. I would like to find out more about some of the muscle relaxant drugs that are available too.

  17. jen_miester27

    jen_miester27 New Member

    hi crispangel...

    my mother has fibro and we noticed that you live in northeast texas. where abouts? she was curious as to who your doctor is. her doctor is not doing to well with helping her for her pain. if you could please let us know...we would greatly appreciate it! thanks so much!
  18. marilynb

    marilynb New Member

    I take Norco 10/325 4-5 a day & Robaxin (muscle relaxer) 3 times a day. Then at night I take xanax to help me sleep. I have tried numerous meds to help me sleep, now am trying the xanax. So far, it is working.
    My Rheumatologist would not write me anything for pain & recommended I go to a pain clinic, which is where I now go for the meds. However, I have a Pharmacist in the family who thinks I have been on these long enough & need to stop. Sure wish I could. If I could find something else to help with the pain, I would gladly try it. If I don't take them, I can not function daily & I am expected to just keep going. I work 25 hours a week & sometimes it's pretty hard, but with the meds I can usually make it.
    Gotta get ready for work now...
  19. sunshineno2

    sunshineno2 New Member

    Hey Collegemom, my pain specialist prescribed methadone for pain about three years ago. I am still on it. It stays in your system a long time and truley does help with severe pain. It is suppose to be easier on the liver. I also use the durgesic patch if needed. But there are still some days that the pain is out of reach. And so I am going back to him the 27th to see what he thinks. I also have some bulging discs too. So that adds to the problem.Methadone is used a lot for fibromyalgia according to my pain specialist.(because it is so long acting)Hope this helps. sunshineno2

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