what does you dr do at a visit

Discussion in 'Fibromyalgia Main Forum' started by ellie5320, Jun 29, 2008.

  1. ellie5320

    ellie5320 New Member

    I go to my GP when I need my blood pressure checked or need meds sometimes 6 months apart he will sometimes ask how the "fibro" is but doesn't actually treat me for it only pain meds or sleeping tablets .
    are most dr like this as they do not know what to do with us?
    edited to say he sent me to a rheumy to confirm his diagnoses he actually diagnosed fms but i now feel I am on my own
    he has been my dr for about 30 yrs[This Message was Edited on 06/30/2008]
    [This Message was Edited on 06/30/2008]
  2. lurkernomore

    lurkernomore New Member

    Told me straight up that since I have a rheumatologist treating me for the fibromyalgia, he would leave all possible fibro-related problems to him. My biggest mistake was not walking out right then. Because...what am I supposed to do, sit here, when something is hurting or bothering me and try to discern whether it is fibro-related or not?

    Besides that, I have a standing four month appt. with my rheumy. I do not make it a point to go calling him up or make appts. to see him in between those visits if I am fairly sure something IS fibro-related. That said, it would be awfully nice to have a GP who would be willing to check me if I am having chest pains and attempt to acknowledge or try to find out whether said pains are from fibro or something else...like say..my heart? I do happen to have SVT as well, so if I go to see him-I'm sure it will never be acknowledged to be fibro-related anything.

    I'm sorry to ramble on like this, but in answer to your question, I'm afraid my answer would have to be a big yes. It is frustrating and,I'm sure, a big blow to the ego when a doctor is unsure as to how to treat anything and they will go to a lot of trouble trying to avoid admitting they don't have the answers. Do you have a rheumatologist? If not, please consider finding one, and ask around to try and find one who is fibro-knowledgeable/friendly. I wish you luck and good treatment. This is not an easy road to travel, but a good doctor can make things so much easier.
  3. lurkernomore

    lurkernomore New Member

    I apologize for posting and going off on the GP, yet never answering your question. When I see my rheumatologist, he begins the exam by asking me some questions, such as what has been giving me the most trouble since I saw him last, etc. He also asks how my meds are working for me and if I feel that we may need to "tweak" anything.

    Then he sits on a stool and slides over to where I am seated and begins the trigger point exam. He goes from the top of my neck all the way down to my ankles, noting any areas which are more tender than others. I also have Sjogren's, so my exams have become a bit trickier now with trying to differentiate which is fibro and which is Sjogren's-related.

    Then he asks me what refills I need and writes out an order for my bloodwork to be drawn to check on my Sjogren's, i.e., inflammation levels, organ involvememt and Sjogren's med levels. He gets in no hurries and I never leave there feeling frustrated or rushed. I wish everyone had a rheumy like him, I really do.
  4. frosty77

    frosty77 New Member

    Unfortunately, I find that most doctors are not very useful. I bought a blood pressure thing to test my own BP, and I request med refills online in an effort to avoid the doctor.

    My GP is of the opinion that Fibro is very common and simply means you get a little tired and achy. The rheumatologist confirmed the diagnosis of Fibro, said there was nothing he could do, see ya later. The pain clinic I went to only likes to treat pain that can be fixed and refuses to treat intractable pain. I actually wound up with the best Fibro treatment from my gastroenterologist - but he has a 6 month waiting list and you only get to see him for 10 minutes max.

    HURTIN New Member

    Hi Ellie. I'm pretty much on the same page as LURKERNOMORE. I check in with my GP every 6 months for a physical, or sometimes in-between, if I have any un-fibro related issues; such as a cold etc. In coordinating my care; she prescribed multiple tests & referred me to several specialists to confirm my diagnosis. Once my condition was validated, my Rheumy took over the Fibro part of my care.

    When I visit with my GP, she inquires in what appears to be the utmost sincerity about my treatment with my Rheumy. Depending on my responses, she may call him to offer suggestions although she doesn't interfere with his treatment plan. They have an open line of communication and both appear to be genuinely concerned about my well being. She loads me up with samples of the meds that my Rheumy prescribes, but she leaves the prescription writing to him.

    It took a lot of time, trials and errors to find the perfect doctors, but it was worth it. Although my condition hasn't improved much, it's a good feeling when you have the confidence of knowing that your doctors are giving you their best.

  6. justlooking

    justlooking New Member

    He's great. He's been my Dr for about 15 years. He spends as much time as you need and is NEVER in a rush. This does mean however that sometimes you have to wait to see him as his time schedule can get messed up.

    I see him every 3 months. He does a full blood work up every 3 months, he does an exam, he asks questions about how I feel, any changes in symptoms, answers questions and even will perform any test I request. If I ask for a specialist, he will personally find one and call them before I see them to make sure they understand my medical conditions. He won't send me to them if they don't take FM, CFS and Headaches seriously. He has been a fantastic DR!!! He is always honest and willing to try anything and if he hears of something new, he has been known to call me at home. Very caring, compassionate, great bedside manner and he's a listener!

    I also have a Pain Management Dr who I see every 2-3 months who is great.
  7. ellie5320

    ellie5320 New Member

    thank you for your replies
  8. greatgran

    greatgran Member

    I feel my doc does nothing. I guess he just doesn't know what to do. I see a PA which at least listend but once again I feel I am wasting my time.

    They ck the blood pressure and weight and ask if I need any refills, that is about it. I have to ask for blood work.

    Very discouraging.
  9. ellie5320

    ellie5320 New Member

    thanks gran what is a PA?
  10. greatgran

    greatgran Member

    A PA is a physician assistant. Sometimes they are better than the doctors.

    Have a good day.
  11. ellie5320

    ellie5320 New Member

    thanks gran
  12. ironspine

    ironspine New Member

    Mine is a GP who asks how I'm doing, then I just tell him if what I'm on is working or not. It not, he'll suggest something new. If mine are working, I get refills. Any problem I have is addressed. Then I am asked to come back in 2-3 months. If I need to see him earlier, I can always get in the same day.
  13. Leaknits

    Leaknits New Member


    He waddles into the cubbyhole where I've been awaiting his arrival for too long, doesn't read the file notes re that day's weight, bp, temp.

    He complains because I can't use a lot of the medications he says "I'd like to try THIS on you..."

    Thanks but I've been guinea-pigged and harmed enough by the Let's Try This school of "medicine."

    When I need a refill of pain med, he invariably says "You do know this stuff is really hard to get off of, right?"
    It would be nice if he'd listen to me explain I can wean myself down when the pain isn't horrible, but he doesn't.

    And what the ____ makes him think I'm even minimally interested in "getting off" something that helps a little with pain until the pain is totally gone?

    Ellie, please forgive my rant. He's just annoying, that's all.