What has a Pain Center done 4 U?

Discussion in 'Fibromyalgia Main Forum' started by luv2float, Aug 2, 2008.

  1. luv2float

    luv2float New Member

    I keep going into such flare ups so often now that I have to try something different.

    My meds just aren't doing the job when I get this bad off!

    I have an appointment with a pain center this month and was wondering what they have done for you. What worked and what didn't?
  2. dragon06

    dragon06 New Member

  3. homesheba

    homesheba New Member

    my third time- i think at a pain center-
    one dr would only go up to lortab and no further
    so i had to leave
    ,cause that stopped wking of couse
    after a year or so for me...
    and another told me that since he couldnt 'cure' me-
    he didnt want me.
    ..pride pride pride...
    and lets see..
    i think actually there was another one someplace,
    but anyway-
    the one i have now i have to travel quite a ways
    to go to which is a bummer
    but hes helped me more .
    after about 2-3 years of shots
    and lortabs and all that,
    he finally put me on fentanl
    and that has helped me so much!
    except now i am needing to go up on it
    and trying to hold off as long as possible.
  4. caffey

    caffey New Member

    I have been really fortunate. I have been going to a pain clinic for about 1.5 yrs. I have been treated with dignity and compassion. My doc and I work together and he listens to any suggestions that I have. I forget what it is but he is in chronic pain so he knows how I feel to some degree. He gives me enough narcotics for a month at a time and his approach to me as I am considered a complex case is that he can't cure me but if he can give me a couple of good days a week then he will be happy. Did I answer your question? BTW my heating pad is my best friend. All the best.
  5. mompain

    mompain Guest

    I don't know where you are from, but my Pain Clinic is FANTASTIC!! Their goal is to keep you free from pain, but teach you ways to handle it and things you can do to lessen itin the meantime. I can call them with ANY problem and they return my call withing hours. Like I said, they CARE about me!!

    I see a number of different doctors there - psychologist (She specializes in Fibromyalgia.), physical therapist (Planned exercise program on a one-on-one basis for me to do at home and at the water aerobic facility close to my home.), a pain medicine doctor (Takes care of coordinating all my medicines to make sure that I am not in pain and that they don't interact.), Doctor who does injections and epidurals for back and neck pain, Biofeedback Specialist, and a Vocational Rehabilitation Specialist. They also have on staff a Pain Pump Doctor and other doctors who help and work with the different needs of the different patients.

    I truly feel that what I go to is an actual Pain Clinic in the true sense of the word. Many clinics claim to be this, but they either just want to give more and more meds and send you home or the just want to give injections but not enough meds to help the pain so you have to come back for more injections.

    I have been to both of these kinds in my search for what I needed. You may have the same kind of situation. It may take a long time for you to find the right clinic and/or doctor for you. I searched for 5 years to find this one. I hope your search does not take as long. Maybe with this kind of knowledge, it won't. I did not have this knowledge beforehand so it took a very long time.

    Good luck with your doctor and maybe you will find what you need in this one. If not, remember to not give up and keep searching for the perfect one for you.

  6. luv2float

    luv2float New Member

    Thanks for the input.

    Anybody else??

    Wish me luck, will post after my appt.
  7. BlueSky555

    BlueSky555 New Member

    Gosh, I wonder what kind of predicament I would be in if I had not "met" this doctor. Actually, I was seeing a Neuro-Surgeon that had done a cervical fusion on me and he referred me to the pain management doctor that worked in his office. I really liked that pain management doctor but he left that office and another doctor took his place. Then, this pain management doctor opened his own practice, which was a little closer to where I live.

    At first I didn't like his attitude; kind of "cocky" like; you know the kind; Doctor Know It All, Patient Knows Nothing. Anyway, he was treating me for neck/shoulder/back problems and after seeing him every month, I began to like him. (He told me that he had the same back problems). He has tried several kinds of meds on me for pain and even other issues that I have. Also, FM after I was dx. He has even assisted with getting me "free" meds through some companies and saved me money. He also gives the injections, which I will try if/when I get SSDI. (Boy, I can't wait and hoping I'll get even more relief).

    I apologize for getting long-winded. I do hope you can find a good pain doctor. When in pain, finding a good doctor is like finding gold, "oh what a relief".

    Take care and God Bless,

  8. TinaJones

    TinaJones New Member

    I've had some of my best and worst experiences at pain clinics. Every clinic is different - in their approach, their services and so forth.

    In Colorado - I went to a horrible clinic at first. The doctor had the "I am God" attitude... When my first visit was over, she said to schedule a follow-up appt. with her assistant, Nicole. She said "You'll get to know Nicole really well; and she's an excellent pill-counter". Point being, this clinic required you to bring in your bottles each visit and your supply would be counted. Not that I have anything to hide - but I knew at that point, that clinic was not for me.

    I finally found a great pain clinic. My doctor was an anesthesiologist (many pain docs are). So, not only did he work with me on my meds - but he did trigger point injections for me (in office); nerve blocks (blocked my occipital nerves because of severe headaches; done in hospital); tried the TENS machine, tried something called PNT and so forth.

    When we moved back to California - after a couple of negative experiences - I found a great clinic, similar to the set-up in Colorado. Doctors are anesthesiologists; there are many services offered similar to what I mentioned before. There is an in-house psychologist. Etc.

    Couple of thoughts - one of the main benefits of going to a pain clinic (at least my experiences in CO and CA) is they are much more liberal with trying meds than a normal doc. Many docs here in CA are worried about even prescribing vicodin. Pain clinic docs (the good ones) should be up-to-date on the newest meds and such.

    Contracts - some pain pain clinics make you sign a contract. The contract basically says you won't get meds from any other doctor; that it is your responsibility if your meds are lost, stolen or used up too quickly; and so forth. I had a BIG problem with this issue years ago - because I hated feeling "guilty" of something before I even started. Now, I understand why it is necessary and that it wasn't something "personal" towards me. In fact, even though I have signed doc at my current clinic, it is the most liberal clinic I've gone to. He trusts me and it really shows in what he's willing to do for me.

    Last - I think the most important thought I would tell someone new to going to a pain clinic is - that all clinics are different; as you can tell from my experiences, you can have a completely different experience from one clinic to the next. I don't know where you live - but if you have more than one pain clinic in your area...remember to keep an open mind if this appointment doesn't go well. When we lived in CO, I had to drive 45 minutes to get to the "good" pain clinic (where as the horrible one was 15 minutes away). But it was worth it to get quality care.

    I really hope your pain clinic appt goes well. I'm sorry you are having frequent flare-ups... but hopefully you'll have a good appointment and get some relief. Let us know how it goes.

    Take good care -Tina Jones
  9. frosty77

    frosty77 New Member

    The first one I went to basically told me I had FM and there's nothing they could do for me. Apparently lots of so-called pain centers only treat pain for things that can be cured like sports injuries.

    I went to a 2nd one and they want to implant something in my head - I meet with their shrink (required by my health insurance) next week to discuss.
  10. ranger22

    ranger22 New Member

    I am in so much pain, an the pain doctor I have is terrible. where is your pain doctor at. I am in auburn ca. I need help so bad
    thank you

  11. ranger22

    ranger22 New Member

    please help me to find a good pain clinic in ca, I live in auburn ca near sacramento and roseville ca. do you live anywhere near that area. I have to find someone who cares. the one I have is terrible and I cant take going to him much longer.
    please let me know if you can help me.
    thank you

  12. swollen

    swollen New Member

    I think that the pain center is a coping device and not a real treatment for taking your pain 100% away, I have pain management and it was physical therapy and it did not help my pain maybe for 1 hour then the pain start again even if I took a muscle relaxer or some type of narcotics before I start my session. I think that being active in your own way helps, like walking and maybe napping before you cook or clean the house. If it's possible steady moving is the best thing you can.