What Has Given You Improvement?

Discussion in 'Fibromyalgia Main Forum' started by mme_curie68, May 29, 2006.

  1. mme_curie68

    mme_curie68 New Member

    I have experienced improvement that has enabled me to function at a significantly higher level than when I was first dx'd in Feb 06.

    Medications:
    Flexeral 10 mg at night and sometimes am if I wake super stiff - muscle relaxant for stiffness

    Naproxen - NSAID for pain, 500 mg 2x/day

    Prilosec OTC 20 mg 2x/day, to protect stomach on Naproxen

    Adderall - 10 mg am, 10 mg lunchtime, 10 mg about 3:30 pm symptomatic treatment of fatigue

    Supplements:
    Mega multivitamin with extended release I take 2x/day

    Magnesium - improved regularity, muscle function (dramatic reduction in burning) and RLS, 500 mg 2x/day

    L-Carnitine 500 mg 2x/day- metabolism of fatty acids

    Biotin 600 mcg/day - metabolism of fatty acids

    Omega 3 Complex 1000 mg 2x/day - antioxidants, reduction of triglycerides

    Acidophilus BioBeads (2 billion live organisms)- anti yeast, gut health

    Valerian Root 500 mg/night - sleep

    Melatonin - 3 mg/night sleep

    Evening Primrose Oil 1300 mg 2x/day - antiinflammatory (esp. w/fibrocystic breasts when the fibrosis is active)and anti-oxidant.

    CoEnzymeQ10 100 mg 2x/day- facilitator of energy cycle

    and just started 5-HTP, 200 mg 1x/day for energy, appetite supression.

    Lifestyle Changes:
    Trying to avoid processed foods as much as possible. Freshly prepared food, fruits and veggies.

    Yoga class 1 - 2 hours 3x a week - helps with the stiffness and to relax and destress.

    I gave up coffee and switched to Green Tea. I use honey to sweeten and have pretty much stopped using artificial sweetners just thinking not that they are "bad" but its one more chemical I could probably do without.

    I am down to two meds for my bipolar management, Cymbalta 60 mg am and Seroquel 600 mg bedtime - this also makes you sleepy.

    I take two meds for blood pressure - Norvasc 10 mg and Hydrochlorothiazide (Diuretic) 25 mg. Will probably need to go up on the Norvasc again since being on the Adderall, BP is staying higher. Unless I can find a supplement alterantive that will help.

    The only med I recently discontinued per my endocrinologists was the Levoxyl (thyroid hormone) 50 mcg.

    Well wouldn't you know, I had managed to lose 10 lbs while doing all these things on it, but I have gained 6 back while off it - with NOTHING else being different.

    So BACK on I go - I have sub-clinical hypothyroidism. As long as my function tests for suppression are low-normal, I now have a case for taking it versus going off it.

    Thanks and Hugs to Everyone on this board! You help me so much you have no idea!

    Hugs,
    Madame Curie








  2. NyroFan

    NyroFan New Member

    Madame Curie:

    You are chock full of good suggestions. I take Elavil for sleep and pain, Lexapro 10mg. to pick me up, Vicoprofen and Perecot for pain and many meds from specialist, including Klonopin and Lamicatal for nightime seizures.

    Not much.
    And I take a few more.

    We all have to find me. Thanks for the input.

    nyrofans
  3. matthewson

    matthewson New Member

    I am taking:

    tramadol 75 mg 3 times a day

    Neurontin 300 mg 3 times a day

    Magnesium about 500mg a day

    calcium 500mg rest from diet

    ZMA for sleeping which I order from this site
    It consists of magnesium, zinc and B-6 (part of the 500 mg, mag.)

    Flexeril 10 mg if I REALLY can't get to sleep with the ZMA.
    I don't use it too often.

    That is about it except I add a little vicoden on the days that I hurt bad, which if I pace myself okay, it doesn't happen that often now.

    I was doing a little bit of meditation from about 5-6 pm daily, but kind of got out of the habit lately. I need to get back into it though, as I think it did help with pain.

    I used to be on zoloft, but when I went on the tramadol, I weaned myself off of the zoloft because I felt like it was too much. Tramadol, I think does have some anti-d qualities to it, and that may be why I felt funny taking them both.

    Other than that, I don't do anything special for diet.

    I pretty much feel like I have my life back now!

    Take care, Sally
  4. libra55

    libra55 New Member

    Klonopin. I take .5mg at bedtime. I fall asleep and stay asleep. Because my sleep is better I hurt much less. I have more energy during the day; don't need naps. No hangover from it either.

    It has made a big difference for me.

    I am also a big water drinker. If I get dehydrated I am in trouble and I go straight downhill, no energy whatsoever and very little ability to deal with my pain level.

    Michelle
    [This Message was Edited on 05/29/2006]
  5. ANNXYZ

    ANNXYZ New Member

    drugs : Valtrex & acyclovir for EBV HIGH doses - takes a few months before feeling better ( This is from DR Martin Lerner's protocol for chronic EBV . He is an infectious disease doc who had chronic EBV and treats others in Deroit . You can google him and get more info ) .

    Anitibiotics for LYME & MYCOPLASMA ; Like the ANTIVIRALS , you feel worse ( sometimes a lot ) before feeling better

    Olive leaf and turmeric for viral infections ( puritan & cheap ) and costochondritis ( vicks vapor rub also helps!)

    An aggressive approach to good nutrition :

    lots of vegetables , meat & protein
    Good vitamin regimen : B VITS , VIT C , MULTI vitamin , fish oil for brain health , SELENIUM ( 200 mg)
    minerasl , and N acetyl cysteine . NAC plus selenium really raises glutathione the livers big gun detox
    tool . ( Library has articles here )

    Just added : extra aminos tyrosine ( 1000 mg daily )
    and phenylalinine ( 500 mg ) I do not take HIGH doses of these bec I take zoloft , but believe me tHEY HELP SO MUCH ! More info at "The Way UP From Down" by Dr Priscilla Slagle . My concentration and mood improved noticeably in a week . Thanks to those who shared this !

    Other sources of help : " Cheap help" a site for sick folks w/o lots of money . Search Ken Lassesen " Cheap help" ( google ) .

    I am FAR from cured , but not always in bed . I am still battling lyme ( after not knowing I had it ten years ) .
    At one point , I would stay in bed sometimes for three weeks at atime without leaving the house , and constantly ran fever .

    I think the supplements and diet make a big difference . I almost never get other infections or colds . The lyme is a bear , but I am hopeful still for improvement .

    Other things that I know have helped :
    colostrum , mushroom complex , and some find transfer factor a help . Also , MANY FOLKS have posted visible benefits from Vit B 12 shots .
    [This Message was Edited on 05/29/2006]
    [This Message was Edited on 05/29/2006]
  6. kholmes

    kholmes New Member

    The only things that I know have helped me improve(out of the countless things I've tried) are:

    juicing (fresh veggie juices, on a frequent basis)

    wheatgrass shots

    Seriphos (a product which reduces cortisol output in the adrenal glands). It helps me sleep.

    tylenol--for pain reduction

    a diet with a lot of fresh vegetables (I eat a huge salad daily in addition to juicing); no dairy whatsoever; but with good proteins: buffalo, salmon, etc...

    grapefruit seed extract--for candida and mouldy toes

    resting and not overdoing!
  7. mme_curie68

    mme_curie68 New Member

  8. Dee50

    Dee50 New Member

    My hot tub:)
  9. julieisfree05

    julieisfree05 New Member

    The things that helped me the most over the years are:

    1. Having TWO INCREDIBLE DOCTORS, who "believe" in FM/CFS and were willing to treat my symptoms, even if they couldn't "cure" me!

    2. A high protien/low carb style of eating. I keep my carb intake at under 80 grams or so a day and stay away from processed foods, sugar, and no caffiene after noon. I'm not fanatic (hey, I like an occasional latte!), but I feel better when I eat like this. See www.mwilliamson.com for infomation about "Insulin Resistance" and these illnesses. Miryam helped me find a way of eating that helped me significantly.

    3. PACING! I learned this at the Cedars-Sinai FM Rehab Program. Learning to stop doing whatever I was doing BEFORE I got tired, so I wouldn't have "rebound" fatigue.

    4. USANA supplements. I've taken just about every "vitamin" out there, but USANA is the ONLY one that has caused a visible change in some of my problems. (www.USANA.com)

    5. Although these things helped, NOTHING stopped my illnesses until I started taking XYREM last year. Now my symptoms are virtually gone - and have been since September 2005. See my posts on XYREM for more info.

    Over the past 15 years, I've been on virtually EVERY medication that's used for FM/CFS, tried natural products, and alternative therapies, but these are the things that made a notable difference in how I felt on a regular basis.

    God Bless,

    - julie (is free!)

    If anybody asks
    (not that they would)
    I'll be down in Mississippi
    and up to no good.. - Sugarland
  10. ANNXYZ

    ANNXYZ New Member

    what are wheatgrass shots?
  11. usanagirl

    usanagirl New Member

    1. USANA supplements!

    2. Exercise, although if I over do it I still get those nasty neck and shoulder knots that I have a massager for.

    3. Low-glycemic meals and snacks

    4. Lots and lots of water

    usanagirl