What I tell people

Discussion in 'Fibromyalgia Main Forum' started by Andrew111, Dec 22, 2006.

  1. Andrew111

    Andrew111 Member

    When someone asks what's going on with me, I don't tell them I have chronic fatigue. I tell them how it feels and what the symptoms are. If they press on, I tell them what tests I've had and that doctors find no clear answer. If the person continues to ask questions, and seem very concerned, I will explain that some doctors have suggested chronic fatigue, that chronic fatigue is a syndrome, and that a syndrome is a collection of symptoms for which there is no clear explanation or treatment. I also tell them that I'm still trying to find answers.

    Of course, I don't do it as tersely as I did it above. But I've only gotten one snide remark in the year I've been doing it this way.
  2. AllWXRider

    AllWXRider New Member

    ppl scatter like its the plague. I know how you feel.

    I've gotten some better responses know that I'm researching heavy metal toxicity. I tell ppl that "CFS with mercury toxicity"...then I get sympathy.

    I mention to doctors that the CDC has recognized CFS but the AMA is awaiting for a standardized treatment.