Dr. Appt. for Jordan today. We needed make sure his sinus was still clear and to re-up or switch his amitriptyline. Anyway we talked to the doc again about Jordans symptoms. Dr. visits go so fast you don't really have time to concentrate. But I mentioned the need to re-up or switch from amitriptyline. I think it knocks him out but still not good sleep. Wanted to try Klonopin but I'm still feeling my way with the Doc to see what he believes or how far he'll go. Doc told us he thought we needed to get away from drugs now. ?? But, do you need to withdraw slowly from that? I need to search that. Jordan will miss this. It gets worse. Doc thinks he has some sort of damage from the West Nile. He told me & Jordan that it's a good possibility there's permanent damage and he'll probably never be able to recover full functioning or go back to school. I was shocked pretty much speechless. I lacked ability to process that quickly. And I'm not good at standing up to "the Man (or women)". But I have been pushing so will keep on. Next thing I know he says he's referring us to a Neural Psychologist. I'm assuming to test his brain function. That would be fun. Not too bad cognitive for Jordan but does have some issues. Particularly when trying to do schoolwork. Then he asked Jordan if he had experienced any bullying at school or been depressed. OMG. I put in a call tonite for a phone conference with the doc. He could call anytime til about 11pm. He might not even call. I almost feel guiltly. That docs office was slammed today. I hope we didn't carry anything home. I want serious attention and don't think we'll get it under these conditions. Sad. I almost feel like he was trying to scare Jordan out of it. I hope I can handle my end of the conversation and stay strong. I really do strongly believe that West Nile may have been a player, but I don't think Jordan has or had the typical West Nile encephalitus. For lack of anything better for all intents it is CFS unless we find otherwise. I'm going to have to know if he'll work with me on the CFS or not. Research for/with me? Am I being delusional or does it not sound like he will? There's an infectious disease doc here that will diagnose CFS. But not treat. What good is that? Unless he has recommendations. There is also another regular M.D. on the 'good doctor list' It's just all so much. I'm overwhelmed. But I feel guilty about that too. I'm not sick like you all and Jordan. It makes me so sad. Jordan thinks I spend to much time researching. But after today he understands why I do. I told him not to listen to what the doc said. I didn't believe it. Dos aren't always right. But he is bummed out. He was really wanting to believe the doc when he said it just might take up to a year to recover. It could happen. Now he's saying it's permanent? He can get better. He is young. Should we see the Neural Psychologist? Whatever they do. Or not waste our time? Hoping for good days for all.