Discussion in 'Fibromyalgia Main Forum' started by mindbender, Dec 19, 2006.
I tried looking it up and I can't find it.
When a cure is found, that often the patient feels worse before he feels better.
My doctor mentioned a herxheimer reaction, I think its just this forum that developed the short name: "Herx".
that makes sense now
Causes a huge dieoff of pathogens, they often turn toxic before the body can excrete them. The body will purge this toxic material with profuse sweating, vomiting and/or diarrhea from hell.
Prior to this Herxing, one will often have an immune response as the treatment stirs up the pathogens and the immune system, maybe for the first time, recognizes the pathogens as foreign to the body. The immune response feels like the flu with body aches and pains, fatigue, headaches, sore throat, and/or swollen lymph nodes.
Docs are not very good at telling people that they may feel worse before the drugs do their job. This is why people often stop taking antibiotics, which can lead to resistant strains of bacteria. One should always take ABX as directed and not stop until all the med has been taken.
Hope this helps.
I'm just starting to understand these things.
Do you get the feeling when the Dr see's you that with your knowledge, that you now know what he/she is thinking?
I'm not saying doing his/her job for them, that's bad, I'm saying almost knowing their next move.
Knowledge is definitely power.
Unfortunately, most of the time, the docs aren't thinking about much of anything. I've had really good docs but only because they have been willing to work with me. I've done the research. I am nowhere near as knowledgeable as the docs when it comes to medicine. I have spent a lot of time in the past doing some very narrow research in order to try to help myself. I see it as a partnership. The docs don't have the time to research and I don't have the medical background/knowledge. But, working together, we have been able to achieve a lot.
I think if a patient just walks into the doc, expecting the doc to know what to do, he or she will be disappointed. With managed care, these docs don't have any time to spend. You have to go in knowing what you want.
I have a specialist who did spend his time learning about all the new treatments in FMS and CFIDS. We would good naturedly compete to see who would know the newest. I wrote my own treatment plan and gave it to him. That was when using ABX, AV's, TF's, and Heparin were cutting edge. He agreed to oversee it and that was a real turning point in my healing. I am very grateful to him.
Unfortunately, he switched practices and his office was a mess. The Synvisc injections for my knees kept getting put off as no one was working with my ins. co. on a regular basis to get them approved. The doc made an appt. for me to specifically get the injections and when I got there, there was only one injection and it was given to a woman ahead of me. I didn't mind that but the nurse got into an arguement and told me that there never were injections for me for that appt. She went from being very nice to not so nice.
Then, they changed the rules and wouldn't give the injections without prior authorization. It took months for me to get them. Time is of the essence with this treatment and it left a sour taste in my mouth that they treated an old patient like this and that the nurse turned on me. I still think this doc is great and I recommend him. At my last appt. several years ago, he basically told me that he had done as much as he could for me and that I didn't need to come back unless something new cropped up. I haven't been back since.
I now have a PCP who basically knows my background and is willing to prescribe the ABX and AV's I need to keep on hand in case my infections reactivate. He also is fine with prescribing the Klonopin. He doesn't seem to have a particular interest in FMS/CFIDS but he believes in our illnesses. He's busy with a new baby in the house. I see him once a year and when I need something else, I see a specialist.
There is so much to learn about our illnesses and it can be overwhelming at first. Still, it's about the only way we can help ourselves unless we can afford to go to one of the specialty clinics or a specialist in our illnesses.
Some docs still have the God complex and others are humble and helpful. I think we need to find docs who can help us. I put up with a strange and arrogant doc for a while in the beginning because he did help me and was very helpful in my getting SSD. If a doc has nothing to offer, get rid of him or her. If a doc can help at all, it may be worth putting up with him, at least, until he can help.
If you come back to this, I've got another question.
Mrpain said he has trouble with yeast. Do men also have trouble with yeast, and how?
Dan, while you answer the question, I'll hang up and listen off the air.
Men do have yeast infections. They often don't have symptoms but are carriers and unless treated, can give it to their sexual partners over and over. Yeast is often a problem with those on ABX and taking probiotics goes a long way toward keeping the gut healthy.
I have found my zapper to be very effective at treating the fungal infection in my toenails. Down here in the jungle, most everyone gets it at some time or another. Mine was not nasty but produced little white spots under the nail--not thickness nor yellowing. When I started to use the zapper, I could see healthy new pink tissue under the nails and there were no white spots. Perhaps I didn't have yeast problems while on the ABX for 2 1/2 years because of the probiotics and my zapper.
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