What is it with doctors?

Discussion in 'Fibromyalgia Main Forum' started by GinnyB, Nov 7, 2005.

  1. GinnyB

    GinnyB New Member

    What IS it with doctors? Yesterday my gastroenterologist told me I "may" come back if I have blood in my stool, but not for my problems with fibro because "there is nothing we can do for it." I've run into the same attitude with GPs, and even at Johns Hopkins. "It's all in your mind" and "come back when you're really sick." (Hopkins was more subtle--they just displayed decreasing interest in me.)

    Well, I am really sick. I had to hire a cleaning lady--I'm too tired to clean my own home. I'm too tired to keep up with the laundry, to cook an entire meal by myself, to do the dishes. Some days I'm even too tired to get dressed. I can't sleep at night (or during the day), but it took me 18 months to coax a sleeping pill out of my doctor. I ache from head to toe. I'm anxious and depressed (gee, I wonder why?), but the medicines my doctor gives me aren't strong enough because "you're at the highest dosage they recommend." So let's try something with a recommend dosage that IS strong enough. Oh no, seems I might become addicted to that. So let's do some research, find something that's strong enough that's not addictive. If fibro were cancer or heart disease, or if it gave you either of those things, you can get bet the medical profession would be able to do something. But fibro doesn't kill you. It just makes you miserable for life.

    Sorry, I needed to vent today. The worst of it is--I haven't eaten breakfast yet!

    Ginny
  2. beth0818

    beth0818 New Member

    just wanted you to know that i read your post and i am soooo sorry.
  3. Jen102

    Jen102 New Member

    good vent! you let it all hang out. hope you feel better. I have been where you are but thankfully have found what some may term more "alternative" docs. These are MD's who have treated my sleep, pain, hormones, nutritional deficiencies, etc. I've got a long way to go, but it is such a relief to be believed and have my complaints taken seriously. I feel sorry for your docs. How much job satisfaction can they have when they admit they have no idea what to do. Others at least feel they can help a bit. Find one of the other docs. You might look at jacob teitelbaum's website and see if he has any trained docs in your area. blessings to you. Jen102
  4. libra55

    libra55 New Member

    First, I'm sorry you're feeling so badly. You mentioned a gastroenterologist and blood in the stool. I had the same symptoms as you do and I just found out I have Crohn's Disease in addition to the FM. I was bleeding internally and not aware of it. It didn't show up visible in the stool but I lost little tiny amounts of blood over a long period of time. I also had the terrible fatigue and constant diarrhea.

    I had episode after episode where I had to go to the ER, and the attitude was "it's just Fibro" so nothing ever got done for me. Finally all hell broke loose, I had fever, diarrhea, broke out in sores all over my body and my joints so stiff and sore I could not move, that's when they diagnosed the Crohn's.

    So honey it could be something more than Fibro, although we don't need any more than that because it in itself is bad enough to deal with.

    I would follow up with the gastro dr. and find out what exactly is he looking for if he doesn't want to treat the FM.

    ((((Hugs))))))
    Michelle
  5. GinnyB

    GinnyB New Member

    Thanks everyone for your support. Jen, I have Dr. Teitelbaum's book and will visit his website. Thank you so much. Ginny
  6. zoose

    zoose New Member

    when i first started going to my gp for fm symptoms he sent me to all the specialists and had all the tests done. When they all came back negative he told me to go home and loose weight then my symptoms would go away. I fired him. I now have a great gp, chiropractor, nutritionist and massuse. I discoved I had a wheat allergy that was giving me the gastro problems and I finally got the fm diagnosis. Not once did he send me home and tell me that if I just lost some weight then all of my aches and pains would go away. You need to find someone that specializes in fm so they will take you seriously.

    zoose
  7. LittleBluestem

    LittleBluestem New Member

    I think your doctors deserve some credit for letting you know that they don't know how to treat FM. (Those who also imply that it isn't a real disease deserve a slap up side of the head.) At least you know now that you need new health care practitioners. Some people have written about being strung along and drained of money by docs who didn't know what they were doing, but pretended that they did.