What kind of doctor do i need?

Discussion in 'Fibromyalgia Main Forum' started by Mom2Hayley, Jun 2, 2008.

  1. Mom2Hayley

    Mom2Hayley New Member

    I have been diagnosed with FMS and OA. I strongly believe I have Chronic Fatigue Syndrome too because I have extreme exhaustion, sore throat, swollen glands, low grade fever, etc. and my Rheumy says those things are not symptoms of Fibromyalgia. So what doctor do I need to get a CFS diagnosis or do I even need one. I do have a PCP but she just writes prescriptions based on my Rheumatologist.

    Since I have been in a constant flare since the end of Janaury, I am thinking of applying for SSDI. Would it help to have this diagnosis of CFS too?

    Thanks! This board helps when I have no one to talk to and no where I can go.

  2. marti_zavala

    marti_zavala Member

    I have recently started seeing a Functional Medicine Dr. and I was very impressed. Better than mainstream and better than alternative.

    I would document and get a diagnosis for every issue that troubles you.

    Also, check out the SS post at the top of each page of the board (the sticky area)

  3. PVLady

    PVLady New Member

    There are many diseases that mimic CFS. The diagnosis of CFS is usually when they have eliminated any other cause such as cancer, diabetes, etc.

    I would start with my family doctor and have a complete physical to rule out as much as possible. The danger of a speedy CFS diagnosis is something life threatening could be going on and be overlooked.

    Also, you might want to be tested for Epstein Barr virus and other infections and viruses. I have seen a infectious disease specialist in the past who told me CFS is caused by stealth viruses that live in your digestive system. He tested many patients for viral DNA in biopsies from the stomach.

    This infectious disease doctor I saw (Dr. John Chia in Torrance, CA) will only see a patient referred by another doctor. He must have the entire file and all lab work confirming Epstein Barr etc. It then takes 6 months to see him.

    When I saw him, he had many CFS/ME patients. He was treating with Interferon, Gamma Globulin and other drugs I don't remember. These drugs are extremely expensive and often not covered by insurance.

    One month's treatment with Gamma Globulin is about $6,000. The Interferon is more expensive. Dr. Chia felt he did have some CFS patients in complete remission.