What my doc said today

Discussion in 'Fibromyalgia Main Forum' started by romanshopper, Dec 12, 2006.

  1. romanshopper

    romanshopper New Member

    So today I was clear and went to my doc - he's a neurologist and a pain specialist - and I really think he's smarter than most...

    Anyway, he said that he felt almost sure that they would eventually find that fibromyalgia = while it was even hard for him to come to terms with, and that some doctors still were resistant to it - but that came, he felt - like it just not getting a lot of attention in previous generations - but anyway, he felt like they would eventually find out that it was related to sleep disorders - and that it might actually be the end result of long term sleep disorders that kept people from having delta sleep.

    He said he could not think of a patient of his with fibro without a sleep disorder - and that he did not think it was related to depression - many of his patients were NOT depressed, or they only became depressed after the illness set in.

  2. Toga

    Toga Member

    I had insomnia for years, I'm talking 20 years or more to some degree or another.

    Doctors would not give me anything for it because everything then was addictive.

    I think my body finally cracked. Now with Ambien and others, maybe some people won't get FM.

    I just wish there was something to be done to catch up on all that sleep and undo the damage. I'd be willing to sleep for a year if that would help.

  3. kjfms

    kjfms Member

    I suffered with sleep issues for several years before being diagnosed in 1998 with FMS and was told [by my DO at the time] that lack of restful sleep was a major player in FMS and agree with that.

    I cannot take sleeping pills however because they simply do not work 2-3 hours and I am wide awake if they do anything therefore I do not even bother with them.

    I am sleeping better since starting Lexapro which I am taking for anxiety due to a pituitary tumor. I take it around 7 pm and it helps with sleeping and I am not having grogginess during the day -- except when my thyroid is out of whack...

    I agree with your neurologist I have never met anyone with FMS who does not suffer with sleep issues and has not suffered with them for a long time.

    Take care,

    Karen :)
  4. NyroFan

    NyroFan New Member


    Like you, I have a sleep disorder and I hope you can at least have it checked to see if you have that kind of a problem.

  5. moab341

    moab341 New Member

    5 yrs ago my husband and I were separated and I went through more stress, anxiety and panic than a body should be able to endure. I was on so many meds to keep the panic at bay, I was vertually a zombie. I slept maybe 2 to 3 hours a night for over two years and went through the motions only of being alive during the day. I truly believe stress is the single most contributing component of my situation today. After two years of flu-like symptoms, exruciating stomach pain, and being so tired sometimes I can't stand, I was recently diagnosed with FM and CFS.

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