What should I do

Discussion in 'Chit Chat' started by monica33flowers, Apr 1, 2008.

  1. monica33flowers

    monica33flowers New Member

    Ever since I had the Radiofrequency Nerve Ablation on my neck I've been in the worst flare ever and constant neck pain. Today, the pain is at the base of my skull and goes all the way into my shoulder blades.

    I did call the clinic where the procedure was done and they said I should expect the pain to increase for 3 weeks after the procedure.

    Well I am sheduled to go in for part II of this barbariac treatment on Thursday and I'm scared as heck. The nurse keeps reassuring me that it will get better but in the back of my mind is that this procedure does not have 100% results. Meaning, it may not work after all this pain.

    To top everything off --- I saw my pain dr. yesterday and she will not prescribe anything stronger than my Vicodin. So, if things get worse I just have to suck it up.

    I guess what I'm getting at is if this was you, would you go thru the second part of the procedure? They say, when the pain goes away I will feel like a new person. That is, if it works.
  2. Ouch4017

    Ouch4017 New Member

    I would like to help, but I'm not sure what the treatment you are going thru is? Could you explain a little further exactly what treatment you are going thru?
  3. monica33flowers

    monica33flowers New Member

    Wow, that is one nice crappie you have in profile pic. We are almost neighbors.....I live in Southern WI and I love fishing also. We fish for Northerns and Bass. Nothing is better than taking the boat out on a nice summer day and just going fishing!

    A little bit about the procedure. Basically, what they are trying to accomplish is killing the nerves that are sending the pain signals to my occipital nerves. I have chronice migraines and they say this procedure is "suppose" to stop the cycle of these migraines. Right now, it has increased the migraines and the pain. I hope that makes sense, I'm kinda in a fog today with the cold weather, flare and this darn headache.

    BTW, this procedure is only temporary the nerves will "regrow" themselves.
  4. sisland

    sisland New Member

    Oh! I'm So Sorry you have to go through this!!,,,,what a thing to have to worry about!,,,,Here's the way i look at it,,,,,

    The Dr.s and the specialists don't have to live in our bodies so how can they predict that the 2nd procedure will cure this pain!,,,,,,

    and since the nerve endings will eventualy regenerate themselves ,,,,it only makes since that you will have to repeat the procedure again and again!

    If it were me i would go with my gut feeling on this since you are the one who has to live with the pain and your pain Dr. seems to think that relieving the pain is not beyond Vicodin,,,,,,,,,,,,(Ridiculas!!)

    so my vote is NO!,,,,,Just my opinion!,,,,,,,,Hope you can find a way to relieve this pain!,,,have you tried a warm rice pack,,,?,,,,,,,,,,Sis
  5. Ouch4017

    Ouch4017 New Member

    Wow, that procedure sounds awful! I also get severe migranes. You probably have tried everything, but have you tried Frova? It's the only migraine med that works for me.

    I live a block away from Castle Rock Lake. We fish a lot during the summer and also do a lot of ice fishing in the winter. WI is a great state for us outdoor people!

    Also, have you tried anything stronger than Vicodin? I am on an opiat patch called Fentinal. It works well for me as it's constant, steady medication. It's just a patch you put on your back and it comes in different MG's. I use this and Vicotin as a backup. Maybe you could try it?

    I sure hope the decision you make is the right one. Good Luck.
  6. joyfully

    joyfully New Member

    I've had this done in my lower spine. The results were almost immediate. I don't know what to tell you because my pain level dramatically plummeted after the procedure.

    One procedure lasted me for about 6 months the first time. It is about a year for the second procedure (knock on wood) and it is still working.

    I didn't have a part I and Part II. I had the nerve ablation and then the spinal pain was gone for 6 months the first time.
  7. rockgor

    rockgor Well-Known Member

    Sorry to hear that the recovery period is so painful. I looked up spinal ablation, success rate. Got lots of widely varying statistics.

    I will not quote them since they may not be talking about the same procedure you had. And, of course, I don't know what patients were included in the study.

    Decisions are always hard when are trying to guess the future. All I can say is that I hope the best for you. I think you are very brave.

  8. ckball

    ckball New Member

    I don't know what else to say other than go with Elaine and Linda and waiting to see if the first one worked before doing part 2.

    I am sorry your Dr won't give you anything stronger then Vicodan and prob 5mg. Dr's are scared to death anymore to give out pain meds.

    Just know we are here and understand, but I would ask one more time for another med for break threw pain.

    Have you tried stretching of your upper body and neck, hot baths/showers to loosen the muscles. When we are in pain, we tense up and makes it worse, breathing and stretching will help that part.

    I hope you find some relief soon and thank you for your advice for me-Take care-Carla
  9. monica33flowers

    monica33flowers New Member

    I called the clinic and they actually had the dr. call me back yesterday. I will meet with him and discuss everything "prior" to any procedure today. He still reassures me this is "normal" although I don't feel this much pain 2 weeks after the procedure should be normal.

    Elaine, I did talk to my pain dr. and tell her this would only be a one time thing. Her problem with the narcotics is the secondary rebound migraines....which I do get and this is a very valid concern. She did say that if the dr. performing the procedure is willing to give me something stronger just to call her office and she would be fine with that.

    OK, here is something weird. The bottom of my feet just hurt and ache. Is this part of also a flare? It is the strangest thing.
  10. Granniluvsu

    Granniluvsu Well-Known Member

    I agree with Linda and I think Elaine mentioned it to. I believe I would tell them to wait some more time before having the second procedure before have the other side done. Hopefully, you will just need some more time for the side already done to feel better.

    You need to see if the 1st side will ever feel better for you before having the seoond one done. However, when and if it does THEN I would have the other side done.

    So sorry to hear about all your increased pain and such. You do not need it at all !!

    More hugs and blessings,

  11. monica33flowers

    monica33flowers New Member

    OK, just got back from the pain clinic and meeting with the dr. Here is how it went.

    So, the dr. walks into the room and says, Hello, Monica how is the left side of your neck doing. I tell him how tender it is and of course he decides he has to grab a hold of the back side of my neck. I yelp in pain. He says, "I hardly even touched you". He decides that it is muscle tenderness that is happening to the left side of my neck. He states that I need to take my muscle relaxers every four hours for pain along with my vicodin and the ibuprofen. I then state, that the Vicodin did not help very much with my pain and he says I can take 4 vicodin each day along with 800 mgs of ibuprofen along with the muscle relaxer that should be able to keep you comfortable. Here is the spot for the real shock, then he states, I will let the nurse finish preparing you for the right side nerve ablation ---- huh, what? I had the ablation done on the left side. He states, yes, it was on the left side and I now have to do the other side. I say, I thought the last time was the bilateral ablation and only had to be performed once. Nope. Twice, once one each side. So he leaves the room.

    I'm sitting their just thinking about what happened and letting it sink in. I tell the nurse that I thought I was having the finishing touches on this procedure and not another ablation. I then tell her about the conversation I had with the triage nurse who reassured me that I was coming in for just some facet joint injections --- no more ablations --- the one that was performed was a bilateral ablation...no other ablation procedures were suppose to be performed. The nurse thought the same thing and looks thru the notes and then says, "Dr. ***** is correct, you will be having the right side ablation." Then she leaves the room. I'm sitting their and I begin to panic. I then get a nurse into the room and I tell her I will not be having the procedure done today. She then goes and returns with the dr. who is just mad as heck at me. He states, "you should have said your concerns when we were originally speaking, you have ruined our entire schedule for the day!" Then he was just downright curt and nasty after that point. I stated once again that I want to wait until the left side feels better before I continue and since they were not going to give me anything stronger than Vicodin to control my pain I did not feel I wanted to go thru this experience again at this point. He said I need to come back and see in 1 month to discuss this again. HA --- this girl will never go back to that damn clinic again.

    Sorry, for the rant --- I'm just so upset as to how I was treated today. Oh, then after the dr. left the room the last time I could hear him yelling at different nurses, etc. He must be a real "JOY" to work for. NOT!

  12. victoria

    victoria New Member

    So sorry it all turned out the way it did... you are right for refusing given his attitude alone, let alone your response to the 1st procedure; I think I'd wait too...

    If the left side does eventually improve enough for you to consider having the other side done, at least you will know not to return to him and you can hopefully find a more compassionate/understanding doctor.

    I really hope the one side does improve with some time and gives you relief tho! Take care!
    all the best,

  13. ckball

    ckball New Member

    Oh that is awful- I swear some Drs have that GOD complex and how dare we question them about OUR health and treatments.

    I would have done the same thing, just walk out and not go back. What a jerk. I am sorry you are having to endure this and hope you get some releif soon-Carla