What should I tell my dr. about Provigil?

Discussion in 'Fibromyalgia Main Forum' started by Ellen_B, Jul 5, 2003.

  1. Ellen_B

    Ellen_B New Member

    My primary care dr is providing my FMS care and is not as up-to-date on new treatments. He is hesitant to Rx Provigil b/c I already have to take sleep meds. What should I tell him? Should I push to try it? Thanks for any input.
  2. Mikie

    Mikie Moderator

    If taken during the daytime, it should have no effect on your ability to sleep. It works in a smaller region of the brain which is a big improvement over previous stimulants. Just how it works is not known. It has worked really well for some but not for everyone.

    For anyone on Klonopin, it might not work. I don't know if that's why it didn't work for me, but I had a paradoxical reaction to it. It made me sleepy and dull.

    The effects of it are about the same as with caffeine. Some people cannot tolerate caffeine, but it's a lot cheaper than Provigil.

    The FDA is considering the use of Provigil for shift workers to help them stay alert. Some pilots use it for that as an off-label use.

    Your doc should be able to give you some samples of it to try. Mine did and I'm glad I didn't spend the $50 co-pay for it.

    The Provigil works in the area of the brain resonsible for dopamine and is used for treating Parkinson's patients as well as those with narcolepsy.

    Love, Mikie
  3. Ellen_B

    Ellen_B New Member

    I will ask my doctor about samples. A $50 co-pay? Yikes!!
  4. Applyn59

    Applyn59 New Member

    Hi Ellen,

    Just thought I would share my experience with it.

    I tried it three years ago and and I only started
    with 1/4 of a pill and worked up to 1/2 a pill.
    The first time I took it I had a lot of tingling going on
    in my arms and hands and legs. I felt like I was having
    a heart attack. That went away after several days.
    I stopped taking it after a month or so.

    During the time I was on it I was very agitated
    and confrontational. My mother thought my voice
    sounded spunkier on it so we thought it was
    helping. However, I don't reallly think it's the
    greatest thing in the world. This is not meant
    to scare you, but to warn you.

    My former dr. gave it to several FMS/CFS patients
    and said out of 12, it really helped 10 and the
    other two could not continue it due to headaches.

    Many seem to do well on it and like anything else,
    we are all different.

    Just start very slowly and don't take it after
    noon or it will keep you awake. We sure
    don't need that, do we?

    Good luck,
    Lynn