What Worked for Me

Discussion in 'Fibromyalgia Main Forum' started by ProHealth, Oct 23, 2006.

  1. Faith, Family, Friends, -Supportive and positive atmosphere
    Helping others in need with chronic illness
    Ganoderma/Chinese Antivirals Astra Isatis / Gan Mao Ling/Zhong Gan Ling/ Agastaches
    Zofran
    Vitamin D
    Iron rich diet
    Oxygen
    Antivirals
    Hormones
    Accupuncture/Massage
    Organic food/ pesticide/ chemical free
    Lactose free milk
    no eggs
    no gluten
    Paleo Diet - Fruits/Vegetables/Meat
    Writing a blog for just me
    Writing a book for just me
    Teacher/Mentor/Confidant
    Read or Listen to Tapes
    Music /Inspirational/Relaxing/Hawaiin
    Visualize /Meditation Healing
    Dr. Bernie Siegel
    Faith/Worship/Church services online podcasts
    Foundation for a Better Life
    Inspirational quotes
    7 dimensions of health and wellness
    Occupational/Environmental/Spiritual/Physical/Mental/Emotional/Social
    Gentle Yoga/Walking outdoors
    Small breaks throughout the day outdoors or stationary bike 3-5 minutes
  2. denipink56

    denipink56 Member

    What is methionine and where do you buy it? How much does it cost?

    Thank you, Denise
  3. denipink56

    denipink56 Member

    I have transitioned to a mostly vegetarian diet and i also do my best to eat gluten free. I make a huge effort to walk outside as much as possible. I am a large lady and walking is painful for me but i push through and i am losing weight and getting stronger.

    Fish oil
    B12
    Multi V & M
    D3
    Lakota joint care
    Vit C

    I have a vegan doctor that treats me as if i were his own family. I also have a really good and active spiritual life. Friends and family are very supportive.

    Denise
  4. Windytalker

    Windytalker Member

    By avoiding gluten, anything containing MSG (and there are a ton of hidden forms), limiting nitrates/nitrites, and attempting to eat as organic as possible, I do pretty well. HOWEVER, along with this...

    I feel I also have "Multiple Chemical Sensitivities" and this includes anything with a petroleum base. This includes all forms of soap/detergents, makeup, lotions, etc. I avoid all herbicides/pesticides (as much as possible). I absolutely avoid prescription medications and most OTC's. I also avoid multi-vitamins since they contain many artificial vitamins.

    When I do laundry (as an example), I do a standard wash. But, then, I do another entire cycle using plain water to make sure all the soap is rinsed out well. Today's detergents are very concentrated and I also only use 1/3 of the recommended amount. Just doing this, my body no longer feels like it's burning and my internal quakes have eased.

    I do not put plastics to my mouth in any form. I carry paper straws with me since most food establishments use plastic glasses. I also carry metal eating utensils if I'm somewhere where plastic utensils are used. Avoiding plastic is hard...if I purchase something in plastic, I get the largest container I can buy. I never, ever cook in plastic (microwave). Foods in "boil in" bags are pure poison in my book. I will not drink water from a plastic bottle. I've saved glass bottles, fill them and carry them with me. "Teflon"-type cookware is totally avoided. "Consuming" plastics causes inflammation.

    If I buy a supplement, I try to find one with the least ingredients. My supplements are:

    Magnesium Malate
    Vitamin D
    Vitamin C

    I learned a lot just by reading here on ProHealth. My "a-ha" moment came when I compared FM to reactions to chemotherapy. A woman, who was an RN, replied...yes, it was. Chemotherapy, of course, in any form is nothing but pure chemicals. I then began to focus on eliminating "chemicals" in my life.

    By combining suggestions, like the above, I do "control" my FM. I seldom flare. My downfalls are: storm fronts and eating "hidden" MSG (eating out is difficult). When I eat MSG (et al), I can't sleep, develop restless leg syndrome, become depressed and, of course, flare.

    I'm a big advocate for the labeling of GMO foods. Again, these foods are full of chemicals.

    This is not an easy way to live, but neither is living with the feeling you're walking through mud, wanting to stay in bed and having to deal with all the pain...
  5. Abdulrahman

    Abdulrahman Member

  6. joshkz

    joshkz Member

    Hi Josh,

    There are`nt many people lp works properly for i know 2 versions of it, but it does`nt work that well for me....i could explain that as "my brain doesnt like it that much" . I also saw so called therapists to help me with it , who were crap.....most of these people only had a few months training (or weeks), i dont think nearly any of the eft/lp/mt/ etc etc people are well trained.. I also find the lp attitude of "oh do it 100 times of day & you`ll be fine" again a contradiction, why? well if i could do that 100`s of time a day i would NOT have ME!!!! makes me angry.....surprised you got well,as it really does sound like u had ME......

    Josh...............

    p.s if anyone wants to try lp try ashok guptas` program its £100....or u can go see someone at a so called therapist center & pay 500........

    Last edited: Feb 20, 2014
  7. Minifarmmom

    Minifarmmom Member

    Where did you her about Transfer Factor? It was developed by Dr. Hennen. It's made with marine phytoplankton
  8. Minifarmmom

    Minifarmmom Member

  9. Minifarmmom

    Minifarmmom Member

    Is anyone knowledgeable about Microdose cortisol Therapy? There is a company here that manages the treatment but would like to speak to someone that has experience with it to fine out if it worked for them.
  10. I’ve been following Dr. Jacob Teitlebaum’s SHINE protocol (SHINE stands for Sleep-Hormones (includes thyroid and adrenals)-Infections-Nutrition-Exercise) well over several years. In addition to a full-time job, I can cook, clean, do laundry, go grocery shopping, can walk and run for at least 3 miles at a time, attend church on Sunday, travel longer distances, and practice trumpet--a physically demanding instrument--for over 2 ½ hours every night. I’ve learned to add things back into my life slowly and one at a time.

    Here is a list of what I take. I’m proud that I’ve been able to make this as cost effective as possible.

    Sleep
    - FibroSleep - 1 @ bedtime; 1 more if awaken in the middle of the night
    - Magnesium w/ SRT - 3 @ bedtime
    - 5-HTP – 200 mgs. @ bedtime

    * prepare myself for sleep – meditation, play relaxing music, guided imagery, make sure that the clock is away from bed
    * be in bed for at least 7-8 hours every night

    Hormones (Adrenals + Thyroid)

    Thyroid ( I needed a lot of work in this area)
    - Liothyronine SR (T3) - SR form protects the heart; get at Irmat Pharmacy in NYC; at a compounding pharmacy the dosage can be gradually increased at 5 mcg; might want to have heart checked out first before taking; taken in AM one hour before eating
    - Armour Thyroid - combination of T3 +T4; taken in AM one hour before eating

    Adrenals
    - Adrenal Stress End - 2 tablets in AM
    - Pregnenolone - 10 mg 2x daily
    - also drink herbal tea, Ginseng Vitality, throughout the day. It provides a variety of Ginsengs. It contains Astragalus, which is good for the immune system. It also contains Dong Quai which is good for the hot flashes that I was having with peri-menopause.
    - learned to develop a more relaxed attitude

    Infections
    - Astragalus (found in the Ginseng Vitality tea) for the immune system

    Nutrition
    - High protein, low carbohydrate, low sugar diet; eliminated any suspected food allergens
    -Inositol (for depression and anxiety) – 4 grams 3X’s daily
    - Protein shake – 32 grams 1x daily (after running and before music performances)

    Exercise
    - Walking
    - Running - 3-5x’s week for 30 minutes each week

    Energy
    - Energy Revitalization System - 1 scoop in AM
    - D-Ribose – 2-3 scoops daily; 1-2 in AM; 1 w/ dinner – there is a bed-ridden dosage of 4-6 scoops/daily according to one of my doctors (also works for pain)
    - Acetyl L-Carnitine - 1 in AM 500 mg in AM; 1 500 mg @ dinner

    Deficiencies:
    - Iron
    - Vitamin D

    Psychotherapy – dealt with childhood abuse and self-esteem issues

    I also found that listening to music and playing music certainly helps.

    Hope that this really helps someone! Dr. T’s protocol has helped me immensely.
    Last edited: Jan 25, 2015
  11. 195Austin

    195Austin Member

  12. arthur564

    arthur564 Member

    I was diagnosed with Fibromyalgia and Chronic Fatigue but found out that i was poisoning myself with certain foods. In fact it was Soya and Milk Proteins. When I came off all them, my symptoms disappeared after 3 weeks of abstinence and I can bring them back now by eating certain foods. There is a strong link between food intolerances and immunogenicity. I also developed ankle arthritis but fortunately I found a brilliant video that helps explain it to me starring Radagast from the Hobbit, Sylvester McCoy - - I would recommend this to anyone.
  13. GvMeStrgth

    GvMeStrgth Member

    Metagenics Thyrosol and Magnesium for starters.

    If you go with the Thyrosol give it a good 1-2 months of continuous intake to see results.

    I did something foolish by not buying more for a month thinking I could survive for a few weeks without until I bought more. Stupid! Stupid! Stupid!

    I'm finally feeling better and will make another attempt to try working at least part time for beginners.
  14. Just carry on and hope you'll find your expected result.
  15. nancyhul

    nancyhul Member

    I had been extremely sick, was bed bound & in pain for 30 years (sometimes the pain was so extreme that I wanted to end my life, even though I would never do it) - am now healing gradually. I had tried everything listed on this website. Some helped but I never got well until now. Do the Dr. Teri Wahls version of the Paleo diet! The purpose is to get lots of vitamins & minerals into your body every day. It took 7 months for me to see changes in my health & it's not easy, but DO IT! Read her book & go to utube & watch her videos. I will stay on this for the rest of my life b/c it is healing my body.
  16. Alyssa-Admin

    Alyssa-Admin Active Member

    Bumping. This is an excellent thread and provides a lot of great info and ideas out there. We're all different... One thing that works doesn't necessarily work for the next... But I believe in the 'suck it and see' philosophy. Unfortunately... That can't be an expensive philosophy to follow.

    For me, I know most of my meds don't work very well (if ever). Eating a low carb, higher fat and protein diet. No fruits other than berries... All so high in sugar. I avoid night shade veg. I always have St least 2 hot baths a day...


    However, the one thing that had helped me and many others is low dose naltrexone (LDN) their website is www.ldnresearchtrust.org and there is a Facebook page. Because I volunteer for them, I've been privy to many incredible stories of things like MS, AIDS, crohns... Cfs and Fibro either going into remission or at the least, having a better quality of life.

    I've also reduced a lot of stress in my life. I'm a believer in the Universe, so we have a 5ft Dreamboard where we out pictures, write down our dreams, you name it. We also have a 'gratitude jar'.

    I refuse to watch the news...I think it's important to be abreast of current situations... But if there is nothing I can do about it, other than let it upset me ...It's not worth it. My husband deals with all the post. (When I became really unwell was during the recession... And our business was lost.... So basically I hid in bed for a year scared of sheriffs show at our door. Of course the combo of stress, lack of money, eating crap but easy and cheap food has been my life til two years ago.

    I decided it was time to take control back. Got the debt agency on board. Kept our home and started on focusing on me (and my husband). I don't use sweeteners, I use a slow cooker and get several meals out of it and freeze some for down time.

    For me, the biggest thing I've learned (other than my meds other than the LDN don't work) is to say 'No'. I refuse to not let this illness hold me back in regards to going out now and again. But believe me, I pace myself... There's usually a hefty payback. But I'm ready for it.

    Getting a doctor that is caring, compassionate and wants to help is critical. Prioritising.... Many of us are over achievers... And I'm guessing quite a few with OCD as well. This makes it very hard to see a task that needs to be done and making a decision on its urgency.

    Be prepared. Have everything in Stock from tinned soups to kleenex.

    Keeping my mind busy had been key to recovering... Not fully, but I'm getting there. The thing I realised is that, just as bugs bunny says 'if you can't beat them, join them'. So I Co authored a book for young families where the parent or carer had an invisible illness. My husband and I created an app to help people gain a better understanding of their patterns for cfe/me and FM (ProHealth version due out shortly!). And I've discovered yogalates.

    My/our next stage I feel is to move. We live in Scotland. Beautiful, majestic, damp, dull, dark, depressing Scotland. And I know that if we were living in the sun it would help us both substantially.

    All I can say is YOU do have control over your life.... Maybe not the pain... But, maybe it is something as easy as potatoes causing you such pain? (Obviously, I'm not saying cut out the tatties and you'll be fine!). Just got to keep going! And try to find enjoying the little things in life. For me it's our cat, cooking, baking and I used to crochet until my hands decided that wasn't a good idea.


    A. X
    RadioFM likes this.
  17. adz15

    adz15 Member

    I have my up days and at time I crash, but mostly thank God I'm better than what I was a year ago

    Supplements:

    -Kefir ( probiotic) * Big improvement with this
    -Vit D *Big improvement with this
    -Vit C
    - Magnesium
    - Pantothenic acid ( Vit B5)
    - Kelp ( iodine) * Big improvement with this
    - Chinese herbs * big improvement with this
    - Apple cider vinegar periodically

    Nutrition:
    - No sugar
    - Green smoothies
    - Liver ( bone broths with pulses and beans)
    - No fried food
    - Steamed veg
    -

    Exercise:
    - tai chi /chi gong * big improvement with this
    - Yoga daily *maintenance
    - Gentle walking * good for the soul
    - Gentle swimming

    Spiritual:
    - Meditation daily
    - Prayer
    - Journal-ling
    - keeping a notebook on my advances and crashes * helps me feel more in control and keep track of triggers and things that work
    - Music
    - Nature
    - Video diary *sometimes you just need to vent
    - Getting rid of debt/unnecessary financial drains, simplifying life

    Other:
    - Wearing uggs in bed * protects kidney points at the ankles
    - keeping the kidneys wrapped in lots of layers most of the time, especially when it's cold
    - Urine therapy * really helps me to recover from a crash
    - Avoiding wifi/cell towers ( I Have EHS)
    - Cutting back on work
    - Focusing on myself instead of continually giving to others
    - Avoiding stress and toxic people
    - Acupuncture
    - Gentle massage
    - Regular magnesium and sea salt baths /foot baths
    - Acceptance. * recovery is not a straight line
    Last edited: Apr 10, 2015
    Recovered ME likes this.
  18. Alyssa-Admin

    Alyssa-Admin Active Member

    Sounds like you've really taken control over your life... And it's making a difference. I can't say much more at the moment, but shortly, Prohealth will be introducing a nifty little tool that will help you even more in understanding patterns and gaining more control. X
  19. Recovered ME

    Recovered ME Member

    I am using Aloe vera, argi+ and omega 3 from forever living, but after I started using a mouth spray that increase my oxygen to my blood cells on a cellular level like 7 weeks ago I have gotten 95% better. My headaches are gone and I am not so tired anymore, I can even train again. Have looked lots online about the imortance of oxygen and the spray has to be the reason I got better. I use it more often that it says on the bottle. I got a tip from a friend of a friend and buy it now in a sport center.


    Hope this can help more people out there
  20. jkennedy

    jkennedy Member

    What is the mouth spray you are talking about, @Recovered ME? You can't post a link to a site that sells products here, but you can say the name of a product.