What Worked for Me

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by ProHealth, Oct 23, 2006.

  1. Faith, Family, Friends, -Supportive and positive atmosphere
    Helping others in need with chronic illness
    Ganoderma/Chinese Antivirals Astra Isatis / Gan Mao Ling/Zhong Gan Ling/ Agastaches
    Zofran
    Vitamin D
    Iron rich diet
    Oxygen
    Antivirals
    Hormones
    Accupuncture/Massage
    Organic food/ pesticide/ chemical free
    Lactose free milk
    no eggs
    no gluten
    Paleo Diet - Fruits/Vegetables/Meat
    Writing a blog for just me
    Writing a book for just me
    Teacher/Mentor/Confidant
    Read or Listen to Tapes
    Music /Inspirational/Relaxing/Hawaiin
    Visualize /Meditation Healing
    Dr. Bernie Siegel
    Faith/Worship/Church services online podcasts
    Foundation for a Better Life
    Inspirational quotes
    7 dimensions of health and wellness
    Occupational/Environmental/Spiritual/Physical/Mental/Emotional/Social
    Gentle Yoga/Walking outdoors
    Small breaks throughout the day outdoors or stationary bike 3-5 minutes
  2. denipink56

    denipink56 Member

    What is methionine and where do you buy it? How much does it cost?

    Thank you, Denise
  3. denipink56

    denipink56 Member

    I have transitioned to a mostly vegetarian diet and i also do my best to eat gluten free. I make a huge effort to walk outside as much as possible. I am a large lady and walking is painful for me but i push through and i am losing weight and getting stronger.

    Fish oil
    B12
    Multi V & M
    D3
    Lakota joint care
    Vit C

    I have a vegan doctor that treats me as if i were his own family. I also have a really good and active spiritual life. Friends and family are very supportive.

    Denise
  4. Windytalker

    Windytalker Member

    By avoiding gluten, anything containing MSG (and there are a ton of hidden forms), limiting nitrates/nitrites, and attempting to eat as organic as possible, I do pretty well. HOWEVER, along with this...

    I feel I also have "Multiple Chemical Sensitivities" and this includes anything with a petroleum base. This includes all forms of soap/detergents, makeup, lotions, etc. I avoid all herbicides/pesticides (as much as possible). I absolutely avoid prescription medications and most OTC's. I also avoid multi-vitamins since they contain many artificial vitamins.

    When I do laundry (as an example), I do a standard wash. But, then, I do another entire cycle using plain water to make sure all the soap is rinsed out well. Today's detergents are very concentrated and I also only use 1/3 of the recommended amount. Just doing this, my body no longer feels like it's burning and my internal quakes have eased.

    I do not put plastics to my mouth in any form. I carry paper straws with me since most food establishments use plastic glasses. I also carry metal eating utensils if I'm somewhere where plastic utensils are used. Avoiding plastic is hard...if I purchase something in plastic, I get the largest container I can buy. I never, ever cook in plastic (microwave). Foods in "boil in" bags are pure poison in my book. I will not drink water from a plastic bottle. I've saved glass bottles, fill them and carry them with me. "Teflon"-type cookware is totally avoided. "Consuming" plastics causes inflammation.

    If I buy a supplement, I try to find one with the least ingredients. My supplements are:

    Magnesium Malate
    Vitamin D
    Vitamin C

    I learned a lot just by reading here on ProHealth. My "a-ha" moment came when I compared FM to reactions to chemotherapy. A woman, who was an RN, replied...yes, it was. Chemotherapy, of course, in any form is nothing but pure chemicals. I then began to focus on eliminating "chemicals" in my life.

    By combining suggestions, like the above, I do "control" my FM. I seldom flare. My downfalls are: storm fronts and eating "hidden" MSG (eating out is difficult). When I eat MSG (et al), I can't sleep, develop restless leg syndrome, become depressed and, of course, flare.

    I'm a big advocate for the labeling of GMO foods. Again, these foods are full of chemicals.

    This is not an easy way to live, but neither is living with the feeling you're walking through mud, wanting to stay in bed and having to deal with all the pain...
  5. Abdulrahman

    Abdulrahman Member

  6. joshkz

    joshkz Member

    Hi Josh,

    There are`nt many people lp works properly for i know 2 versions of it, but it does`nt work that well for me....i could explain that as "my brain doesnt like it that much" . I also saw so called therapists to help me with it , who were crap.....most of these people only had a few months training (or weeks), i dont think nearly any of the eft/lp/mt/ etc etc people are well trained.. I also find the lp attitude of "oh do it 100 times of day & you`ll be fine" again a contradiction, why? well if i could do that 100`s of time a day i would NOT have ME!!!! makes me angry.....surprised you got well,as it really does sound like u had ME......

    Josh...............

    p.s if anyone wants to try lp try ashok guptas` program its £100....or u can go see someone at a so called therapist center & pay 500........

    Last edited: Feb 20, 2014
  7. Minifarmmom

    Minifarmmom Member

    Where did you her about Transfer Factor? It was developed by Dr. Hennen. It's made with marine phytoplankton
  8. Minifarmmom

    Minifarmmom Member

  9. Minifarmmom

    Minifarmmom Member

    Is anyone knowledgeable about Microdose cortisol Therapy? There is a company here that manages the treatment but would like to speak to someone that has experience with it to fine out if it worked for them.
  10. I’ve been following Dr. Jacob Teitlebaum’s SHINE protocol (SHINE stands for Sleep-Hormones (includes thyroid and adrenals)-Infections-Nutrition-Exercise) well over one year. In addition to a full-time job, I can cook, clean (yes, even vacuum), do laundry, go grocery shopping, can walk for at least 3 miles at a time (sometimes I can sprint run if I have to), attend church on Sunday, travel longer distances, take music lessons, and practice trumpet--a physically demanding instrument--for 2 ½ hours every night. I’ve learned to add things back into my life slowly and one at a time.

    Here is a list of what I take. I’m proud that I’ve been able to make this as cost effective as possible.

    Sleep
    - FibroSleep - 1 @ bedtime; 1 more if awaken in the middle of the night
    - Jigsaw Magnesium w/ SRT - 4 @ bedtime
    - Zolpidem Tartrate (Ambien) - 10 mg @ bedtime *** had high quality sleep study, which revealed that lost 100% of Stage 3 and 82% of Stage 4. These are the deep stages of the sleep cycle (hate to take this medication, but only did after exhausting all possibilities)
    * prepare myself for sleep - take Epsom salt bath before bed, play relaxing music, make sure that the clock is away from bed, and use a meditation and guided imagery CD that is for people with fibromyalgia right before bed.
    * be in bed for at least 7-8 hours every night

    Hormones (Adrenals + Thyroid)
    - Thyroid ( I needed a lot of work in this area)
    - Liothyronine SR (T3) - SR form protects the heart; get at Irmat Pharmacy in NYC; at a compounding pharmacy the dosage can be gradually increased at 5 mcg; might want to have heart checked out first before taking; taken in AM one hour before eating
    - Armour Thyroid - combination of T3 +T4; taken in AM; one hour before eating

    Adrenals
    - Adrenal Stress End - 2 tablets in AM
    - Siberian Ginseng - 1 @ 500 mg in AM
    - Pregnenolone - 10 mg 2x daily
    - also drink herbal tea, Ginseng Vitality, throughout the day (it also contains Astragalus which is good for the immune system. It also contains Dong Quai which is good for the hot flashes that I was having with peri-menopause. In addition, it provides a variety of Ginsengs).
    - learned to develop a more relaxed attitude

    Energy
    - Energy Revitalization System - 1 scoop in AM
    - D-Ribose – 2-3 scoops daily; 1-2 in AM; 1 w/ dinner – there is a bed-ridden dosage of 4-6 scoops/daily according to one of my doctors
    - Acetyl L-Carnitine - 1 in AM 500 mg in AM; 1 500 mg @ dinner
    -CoQ10 - 100 mg; 2 in AM; total of 200 mg

    Deficiencies:
    - Iron
    - Vitamin D
    - Vitamin B (get shot at visit with doctor)

    Infections - see if there are any infections, including hidden

    Nutrition - high protein, low carb., low sugar diet; eliminated any suspected food allergens

    Exercise - walking

    Psychotherapy – dealt with childhood abuse and self-esteem issues

    I also found that listening to music and playing music certainly helps.

    In addition, protein shakes with high protein and low sugar for energy at times are helpful.

    Hope that this really helps someone! Dr. T’s protocol has helped me immensely.
    Last edited: Jul 15, 2014
  11. 195Austin

    195Austin Member

  12. arthur564

    arthur564 Member

    I was diagnosed with Fibromyalgia and Chronic Fatigue but found out that i was poisoning myself with certain foods. In fact it was Soya and Milk Proteins. When I came off all them, my symptoms disappeared after 3 weeks of abstinence and I can bring them back now by eating certain foods. There is a strong link between food intolerances and immunogenicity. I also developed ankle arthritis but fortunately I found a brilliant video that helps explain it to me starring Radagast from the Hobbit, Sylvester McCoy - - I would recommend this to anyone.
  13. GvMeStrgth

    GvMeStrgth Member

    Metagenics Thyrosol and Magnesium for starters.

    If you go with the Thyrosol give it a good 1-2 months of continuous intake to see results.

    I did something foolish by not buying more for a month thinking I could survive for a few weeks without until I bought more. Stupid! Stupid! Stupid!

    I'm finally feeling better and will make another attempt to try working at least part time for beginners.
  14. RadioFM

    RadioFM Member

    7 keys To My Recovery


    Oxidative damage may be the missing contributing factor in the mitochondrial dysfunction and pathogenesis of diseases we see today. Its critically important that we reduced oxidative damage and improve mitochondrial function.

    Protecting our mitochondria from infectious oxidative inflammation needs to be our first priority as these toxins created by these infections can be a hug contributing factor. Why? These infection can consume 10-15 time more sugar/carbohydrates than your body can absorb. They eat first and you pay the price.

    The Mitochondria can becomes damaged and leaky from an overload of oxidative stress and metabolic waste. I feel infectious oxidative cellular inflammation and possibly Pyroluria may lead too acetaldehyde toxicity as well as many other related toxins we see in chronic illness today.

    My research has convinced me that the inflammation, ROS, mitochondrial damage caused buy killing this infections may be more detrimental than the infections themselves. We need to limiting the collateral damage done to the body as our first priority is to protect the mitochondria from oxidative damage.

    We need to utilize antioxidants, anti-inflammatory and killing modalities type protocols all in one therapy. The goal is to turn inflamed infected cells back to normal cells without destroying the mitochondria in the process. It the immune response to the infections that creates the symptoms. Treatment must be focus immune modulation in order to achieve long term recovery.



    See more here:







    How important are diet and lifestyle in health and disease?



    These infections eat sugar, carbohydrates and arginine as there main food supply. How do we address this problem? We poison their food supply. I am working on utilizing a Tannin Diet as tannin can bind to these foods and help control these infections. My plan is to eat tannin foods and use tannin supplements as needed. I will post more info on this below.

    Also, I will be consuming no gluten or dairy. My sulfur vegetable will be consumed raw as they can cause too much oxidative stress in my body. Salmon is my recommended protein as it has good lysine arginine ratio. Remember these infections eat sugar, carbs and arginine. Tannin bind to these foods. Diet is the key to long term recovery as these infections will always be apart of the equation. I am also utilizing the Stephen Harrod Buhner ~ Healing Lyme protocol as well as the 7 keys to my recovery outline below.




    7 keys To My Recovery


    Low Carb Tannins Diet / Stephen Harrod Buhner herbal protocol

    Autonomic Response Testing


    Intensive Nutrition, Viracin, Plant Tannins
    tannin supplement

    Lipid Replacement Therapy: Experiences& supplement
    /Antioxidant Support Astaxanthin

    Low dose Methylation support/ KPU/HPU: A Major Piece of the Puzzle Support

    Walking/Detoxification Support

    Spiritual Wellness






    Radio:
    More related info below...









    Tanalbit Supplement?


    "The "active ingredients" in Tanalbit® are the "plant tannins" (condensed tannins), natural and powerful substances that act through their agglutinating/astringent effects. A "tannin" you might be familiar with comes in red wine... it is that biting taste you find in your merlots and cabernets. Another example is the redwood tree. The reason why redwood bark is so resistant to fungus and disease is because of the high "tannin" content of its bark. Tannins are well known for their antifungal properties."


    What is the action of Tanalbit®?


    "Rather than being absorbed by the body, the Tanalbit® tannin complex attaches itself to fungal/yeast/bacterial cells. This "attachment" prevents the unwanted tenants from colonizing and metabolizing, and the unwanted organisms die, exiting the body in the feces (The body itself "digests" out the Tanalbit®/yeast complex). Initially one may experience constipation/diarrhea due to the removal of unwanted yeast/bacteria, however, this quickly subsides (within 2-3 days). Tanalbit® will actually help diarrhea symptoms because its natural astringency helps to repair permeable and/or weakened GI cells, allowing them to regain their strength, normal activity, and thus also restoring normal peristaltic activity."



    What are other applications for Tanalbit®?


    "Tanalbit® is also extremely helpful in the following problems: toxicity buildup, bloating, gas, diarrhea, yeast and bacterial overgrowth, food allergies and/or food sensitivities/intolerance. As a result of its gastrointestinal support, Tanalbit® may help decrease debilitating fatigue."


    "The Tanalbit® formula is based on the powerful astringency and high antioxidant content (high proanthocyanidin content) of natural condensed tannins. The other component of Tanalbit® is lotus rhizome extract which provides synergistic activity in its ability to disable microbial/mycotic organisms. Use of Tanalbit® for yeast, fungal or bacterial issues is commonly 6 weeks, more or less depending on the individual."


    See more here: Tannin Supplement - Tanalbit® at ProHealth
    Last edited: Oct 30, 2014 at 9:16 AM
  15. RadioFM

    RadioFM Member

    Reverse Mitochondrial Damage 101

    Lipid replacement therapy
    can potentially help everyone in this forum. It does not matter which subgroup of CFS/ME you are in. The core of the problem has always been acquired mitochondrial damage. Repairing the Mitochondrial is the first step in healing.This is one of the missing links in the chain to recovery. At this point, the fact is, we need Mitochondrial support.

    The Mitochondria can becomes damaged and leaky from an overload of metabolic waste. Phospholipids and glycolipids can repair cellular membranes by increasing cell membrane fluidity. By repairing these membranes we allow our cells to increase their nutrient uptake so that the mitochondria may product more ATP.


    Acquired mitochondrial damage is a normal part of aging, but is accelerated in chronic fatigue syndrome and many other metabolic disorders. We must address this before complete healing can be initiated. Phospholipids replacement therapy and eating a super clean diet is the first critical steps in repairing this damage. Chronic deficiencies and Methylation imbalance destroys the mitochondrial membranes and lead to the modern day diseases we see today. See more here: http://forums.phoenixrising.me/index.php?threads/reverse-mitochondrial-damage-101.28175/


    7 keys To My Recovery (Simplified)



    This information is not intended to be medical advice. The information is meant to inspire and motivate you to make your own decisions surrounding your health care.
    Last edited: Oct 29, 2014 at 10:14 PM