What Worked for Me

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by ProHealth, Oct 23, 2006.

  1. XxRebeccaSxX

    XxRebeccaSxX New Member

    What works for me is more of an attitude remedy. I'm 23 and have been dealing with fibromyalgia for some time now, I went through major depression spells with a lot of anger at people who didn't understand that the pain was real for years before I accepted it in myself.

    It helps to appreciate my effort when I'm feeling more or less physical and understand that there isn't any personal judging going on. Sometimes it's easy to match discomfort with a criticizing thought towards myself like thinking that what I feel is what I'm projecting towards the world that is a downer to be around, but it really isn't taking energy from other people or about them or making me negative. Start to be more on your side by directing a nurturing attitude towards yourself and your uniqueness and right to be comfortable as much as you can be. Fibromyalgia can be a big part of your life but there are parts of yourself and your life that can remain in wonderful tact during the rough patches like love and thanks for all the support and understanding that exists in the world when it does exist.

    Trust me, self support goes a long way. If there are any attitudes that you have that make you suffer more than you have to by directing impatience with yourself at yourself (like feeling like you're a burden) let it go as much as you can each day. :)

    *Rebecca*
  2. Faith1968

    Faith1968 New Member

    Hi Stormy,

    you said you used Probiotics for candida....is this a perscription....or can you get it over the counter? I get alot of yeast infections. My first one I was only 11. Thanks!

    Faith
  3. Faith1968

    Faith1968 New Member

    I noticed you wrote green food drink and someone else wrote about it to. What is this?

    Faith
  4. Faith1968

    Faith1968 New Member

    Hi, you mentioned the thyroid....My younger sister has Graves Disease and my older sister has thyroid hypo....I have thought that maybe my fibromyalgia could be directly linked to the thyroid based on this fact alone...but my tests always come back normal. Is there something I am missing? Some particular test that I should ask for? Thanks!!

    Faith
  5. SAMIGIRL

    SAMIGIRL New Member

    could you tell me what d-ribose is. i have fibromyalgia and hurt all the time , my pain meds only take the edge off a little.


    and i am so tired of feeling the same way everyday
    any suggestions i'd appreciate

    thank you
    samigirl
  6. LuvQuilting

    LuvQuilting New Member

    As of today since I have tried many things!

    1. Quitting my very physical job!

    2. Learning to pace myself and not do much physical stuff for very long.

    3. Neurontin

    4. Praying for strength

    5. Meditation and relaxation tapes.

    6. Mild exercise (walking, stretching)

    6. Changing my thinking to be more positve so that the pain doesn't scare me as much.
  7. debbeachgirl

    debbeachgirl New Member

    This is my first time posting-not sure what I'm doing. I was curious as to what the shake consists of?
  8. HurtsToMove

    HurtsToMove New Member

    Hello and welcome!

    A few suggestions since you're new:

    Try posting your shake question on the general board, you'll get more answers. This board is just for "what worked for me", not really Q+A. You can also search on the general board by subject. If you put in "shake" I'm sure you'll find lots of info.

    Fill out your bio with whatever info you feel comfortable revealing. At the least, it would be a good idea to say what illness you suffer from, eg: FM or CFS.

    Hope this helps!


  9. exgolfer

    exgolfer New Member

    The dislocated first cervical vertebra, called the atlas, is the main cause of dysfunction in the body & the psych, of pain, disability, infirmity, & degeneration. I have been suffering with FMS/CFS for 6 years, also high levels of EBV. Tried both western medicine & alternative with no relief. For the last 2 years I have been pursuing the theory that the C1 vertebra is out of alignment & causing my symptoms. Several chiropractors confirmed that my C1 was out but the adjustments they made could not permanently keep it in. I even did long term chiropractic treatment in Tahoe with some success. Four months ago I was introduced to a new treatment for the dislocated atlas. It is a safe method by means of specific massage, spasm of the short muscles in the neck can be relieved, freeing the atlas to its natural position. A single session ($250) and the once dislocated atlas has been correctly repositioned, it cannot get out of place again. It is called the Atlas Pro-filax. The dislocated atlas causes a narrowing of the hole at the base of the skull & the spinal canal. As a result the spinal cord & some of the cranial nerves & nerve pathways are permanently compressed. Permanent pressure is placed on the vertebra & carotid arteries & associated blood vessels. My body
    is HEALING! I am getting stronger every week. Anxiety, depression, brain fog, fatigue & pain is gone. I still have some tight muscles on the right side of my neck, I continue to have massages. Numbness & tingling in hands and feet are gone. Headaches, dry mouth, blurred vision and a heavy head are gone. 2 months after this treatment I am sleeping. I have sent several fibro friends for this treatment and they are all healing. There are three practitioners, they are not chiropractors, in the US, all are in California. I am thrilled to share this information, I know it sounds too good to be true but my mind was open and I was ready.

    Lena
  10. sula

    sula New Member

    Has anybody tried this ......the Guaifenesin Protocol.....I just found it in a book......."Everything your doctor has NOT told you about Fibromyalgia". This is related to removing phosphates from the body?????? Still researching and would appreciate any input????? Experiences????
  11. exgolfer

    exgolfer New Member

    I was on guaif for 2 years. I was a patient of Dr. St. Amand. I had some improvement but it was a tedious treatment to follow but I did it. About 14 months ago I
    went off of it and did chiropractic treatment. I am no
    longer on it, doing well after the Atlas Pro Filax treatment. Lena
  12. Jenga

    Jenga New Member

    OPC-3 is an all natural supplement that fights free radicals. It contains pine bark extract, red wine extract and grape seed extract. It allows your body to heal itself. I started taking it and every week I noticed improvement. I lucklily have very few symptoms now and it's only once in a while. The woman who introduced me to it said that I would see results by the end of one bottle and I really did. I started working again 2.5 months after starting to take OPC-3 and have now been at my job for almost a year and a half. Here is a link to information about OPC-3.

    http://www.marketamerica.com/jenga/index.cfm?action=shopping.uoProduct&storeID=8&prodID=13009
  13. elaineboot

    elaineboot New Member

    Over the past two years I have been eating a more healther diet and doing a lot of home cooking.

    I have found that pineapple, garlic, onions and other foods with nateral anti-infalmortorys, have helped me. I now have a lot more energy and i am more paine free.

    I make my own Pizzas, savery tarts, using wholemeal flour, free range and organic foods; because i have made it myselfe I know what is in it.They help me feel less tired.

    I have found the moment I go back to erating junk food or processed food I feel really ill; aso have nticed that foods high i suger and salt make me fell unwell too.

    I total recomend eating a good healthy diet, five potions of fresh fruite and veg a day,foos high in whle grans, plenty of water and using whle meal flouer to make things with.

    I am also going to try to eat more fresh fish rich in omega 3, so thats samon, tuna, sardiens and other oily fish, theses too are natural anti-infamoretries. Walnut are good too, sadly i can not eat nuts as I have an allergiey.

    hope this helpful, oh and try yoga or other gental excercise too, as I have found this helps with stiffness.

    Stay posative and take things one step at a time, and most inportanly have fun to.

    thanks for reading

    Elaine
    please do reply

  14. anniegal

    anniegal New Member

    Do you know of anyone in Northern Calif who does this treatment?
  15. exgolfer

    exgolfer New Member

    anniegal, there is a Michael Haene in Nevada City, CA. His phone number is on the website atlasprofilax.com

    Lena
  16. Guaima

    Guaima New Member

    Hey Everyone.

    I have started on Fibro Complete Multi and it seems to help me get that boost needed in the mornings. My pain is somewhat taken care of with Darvocet and Morphine, but am looking for an alternative.

    If you cannot work...DON'T! Get yourself well.

    I am starting on probiotics and will try to get back to you all on how it's working.

    Take care
    [This Message was Edited on 03/02/2007]
  17. novitality

    novitality New Member

    You struck a nerve! I get so tired of people (mainly my husband) saying that I just need to exercise. He just doeans'nt get it!
  18. novitality

    novitality New Member

    I have still not reached a level of health that I want, but I'm much better than when diagnosed a few years ago. I have been a vegetarian for the past year. I don't know if it is the cause, but I feel better. I do eat dairy food. Also, I try to get to bed at 10-10pm. I almost alwasy have a cup of hot chamomile (sp?) tea. My favorite is mixed with mango. Yum, and so relaxing. I eat fresh fruit several times a day and vegetables of some kind everyday, but not enough.

    I use the slow cooker a lot so I have a rice and bean or other dish ready to warm up. That way, when I'm not up to cooking and want to eat something not as good for me, I can reheat it and have a meal.

    I also take elavil, 25mg., tramodol, 50-100 mg. every night. Sometimes I take tramadol in the daytime too. Recently, I started taking Wellbutrin. It might help-but too soon to tell for sure. I tried other combinations of medication and different doses. This is the best for me. I am a little groggy in the morning, but not bad. Any less and I don't sleep and I hurt.

    I'm trying to be good taking vitamins. I just hate to take more pills of any kind.

    Oh yes, I get a lot of cramps, so I often sleep with a heating pad on my legs, especially if I wear a pair of shoes I haven't worn in awhile, day.

    Of course I need to run a fan or I get too hot.

    A hot tub or shower is great too.
  19. abbylee

    abbylee New Member

    Xyrem - 9 mls twice each night
    Oxycotin - 180 mgs every 8 hours
    Oxycodone - 30 mgs 4 times a day
    Singular once a day
    Zyrtec once a day
    Premarin 1.25 once a day
    Bentyl twice a day
    Phenergan twice a day
    Requip - one in the morning and one a bedtime
    Clonidine twice a day
    Xanax - twice a day
    Flexeril 4 times a day

    abbylee
  20. Islebabe

    Islebabe New Member

    When You used the "Green Food Drink" was it the one from the store here? I just wondered.

    I went off the provigil. I'm taking my multivitamin, my slo-mag and drinking Ensure so I won't lose anymore weight due to the ulcers on my tongue.

    No I don't have a linguring cold. Yes I do have CFS and I've had it since 1998 and Sept. 2005 until present has been the worst and my Dr. and I and my family and friends don't want it to get worse. The ulcers on the tongue are either A) Hives or B) A result of the Dry Mouth disorder (not cottonmouth) from meds and/or CFS. Also, Dry Mouth can cause you to lose your taste, and it has. So we don't think the sores and whelps on my tongue and on my outside of my face are going away anytime soon. My Dr. is going to start me on low-dose Heparin which worked for two friends of mine who have CFS.

    They went off of it after 2 years, but they had already started a strong regimin of suppliments and nutrition. And now they have one of the State of Virginia's largest Support Groups.

    Blessings and thanks for any help.~~Islebabe