What works?

Discussion in 'Fibromyalgia Main Forum' started by suzieq72, Feb 18, 2006.

  1. suzieq72

    suzieq72 New Member

    What works for you when you're in a terrible flare up? I've tried everything I can think of to find relief from this horrible pain. I usually take Vicodin EX, Baclofen, Neurontin, and Mobic. During bad flares, I'm not able to find relief from any of my meds. Is there something else that would help with the pain? Even though I hate taking narcotics, right now I would consider morphine!

    It seems like I stay in flare ups most of the time. I usually have 2-4 days a week when I'm in a flare. Sometimes I stay in a flare for a few weeks with no relief. It's been this way for 5 years although I was diagnosed many years ago. I've always had symptoms, but it seems that I get worse as time goes on and I'm now considering quitting my part time job. (I work from home.) Do you all have flares that often?

    I haven't been to this board in quite a long time. I used to find refuge here. Any information that you can provide is so appreciated.

    One last thing.....A few years back, there was an article or a letter on this site (I think) that was intended for relatives and friends of FMS patients. It was to inform them and help them understand FMS and its symptoms. I have searched for it tonight but can't find it. Does anyone know what article/letter I'm talking about ?
  2. Hope4Sofia

    Hope4Sofia New Member

    I just found it today. If you type normal in the search you'll find it.

    As far as the flares go I don't really know. A trigger point shot helped me a lot on my specific pain but the general pain is just there. Sometimes I fill a bowl with ice-water and set it by the tub with all the lights off. I switch my feet back and forth between the hot and cold water. It helps the blood move away from the painful areas. Other than that, drugs haven't helped me. I tend to wait it out.

    Sorry, I don't have much help.

    Sofi
  3. sues1

    sues1 New Member

    IN THE Search box..........(leave it as title).....type in

    SPOONS after that type in THIEFS

    Both are excellent articles in there own way.........

    I have emailed them to many and I am not like Rodney Dangerfield anymore as I get respect.......(LOL).
  4. JLH

    JLH New Member

    This is a post by "ilovecats" now:


    Different Letter for Normals (FMS)

    If you were born with healthy genes, you may know me but you don't understand me. I was not as lucky as you. I inherited the predisposition to chronic pain, fatigue and forgetfulness. I was diagnosed with fibromyalgia (FMS) after months, years or even decades of mysterious physical and emotional problems. Because you didn't know how sick I was, you called me lazy, a malingerer, or simply ridiculous. If you have the time to read on, I would like to help you understand how different I am from you.

    WHAT YOU SHOULD KNOW ABOUT FIBROMYALGIA

    1. FMS is not the newest fad disease. In fact, it isn't a disease at all, and it isn't even new. In 1815, a surgeon at the University of Edenburgh, William Balfour, described fibromyalgia. Over the years, it has been known as chronic rheumatism, myalgia and fibrositis. Unlike diseases, syndromes do not have a known cause, but they do have a specific set of signs and symptoms which, unfortunately for the patient, take place together. Rheumatoid arthritis and lupus are also syndromes.

    2. The many physical and emotional problems associated with FMS are not psychological in origin. This is not an "all in your head" disorder. In 1987, the American Medical Association recognized FMS as a true physical illness and major cause of disability.

    3. Syndromes strike life-long athletes as viciously as they do couch potatoes. They can be disabling and depressing, interfering with even the simplest activities of daily life.

    WHAT YOU SHOULD KNOW ABOUT ME

    1. My pain - My pain is not your pain. It is not caused by inflammation. Taking your arthritis medication will not help me. I can not work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone. My pain is believed to be caused by improper signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is real.

    2. My fatigue - I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can't. Please do not take this personally. If you saw me shopping in the mall yesterday, but I can't help you with yard work today, it isn't because I don't want to. I am, most likely, paying the price for stressing my muscles beyond their capability.

    3. My forgetfulness - Those of us who suffer from it call it fibrofog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age but may be related to sleep deprivation. I do not have a selective memory. On some days, I just don't have any short-term memory at all.

    4. My clumsiness - If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.

    5. My sensitivities - I just can't stand it! "It" could be any number of things: bright sunlight, loud or high-pitched noises, odors. FMS has been called the "aggravating everything disorder." So don't make me open the drapes or listen to your child scream. I really can't stand it.

    6. My intolerance - I can't stand heat, either. Or humidity. If I am a man, I sweat...profusely. If I am a lady, I perspire. Both are equally embarrassing, so please don't feel compelled to point this shortcoming out to me. I know. And don't be surprised if I shake uncontrollably when it's cold. I don't tolerate cold, either. My internal thermostat is broken, and nobody knows how to fix it.

    7. My depression - Yes, there are days when I would rather stay in bed or in the house or die. I have lost count of how many of Dr. Kevorkian's patients suffered from FMS as well as other related illnesses. Severe, unrelenting pain can cause depression. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.

    8. My stress - My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I'm not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.

    9. My weight - I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My appestat is broken, and nobody can tell me how to fix it.

    10. My need for therapy - If I get a massage every week, don't envy me. My massage is not your massage. Consider how a massage would feel if that charley horse you had in your leg last week was all over your body. Massaging it out was very painful, but it had to be done. My body is knot-filled. If I can stand the pain, regular massage can help, at least temporarily.

    11. My good days - If you see me smiling and functioning normally, don't assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks or even months. In fact, the good days are what keep me going.

    12. My uniqueness - Even those who suffer from FMS are not alike. That means I may not have all of the problems mentioned above. I do have pain above and below the waist and on both sides of my body which has lasted for a very long time. I may have migraines or hip pain or shoulder pain or knee pain, but I do not have exactly the same pain as anyone else.

    I hope that this helps you understand me, but if you still doubt my pain, your local bookstore, library and the internet have many good books and articles on fibromyalgia.