What's the point of getting tested for lyme really??

Discussion in 'Fibromyalgia Main Forum' started by suz9601, Feb 16, 2006.

  1. suz9601

    suz9601 Member

    I thought that if someone had lyme for years and years that their Igenex test could still come out negative, and actually is more likely to come out negative. Doesn't this give some people the impression that they don't have lyme, when they actually might? With the sympotms being the exact same in CFS and Lyme, how would one know? Just curious, I was even CDC positive on IGM, but wondered for other people.
  2. Jen102

    Jen102 New Member

    I suppose a benefit is if you clearly test positive, then it is a clear answer. However, if you have had it for several years, you may not test positive even if you have lyme. You must have someone who knows how to read the tests too, otherwise they have no value. I didn't get a real clearcut positive, but my doc says my test shows a likely positive. I really don't know what to think--wish it were clearcut. I am trying to decide on the abx treatment. the symptoms surely point to lyme, but I am uncertain. I had a car accident 5 years ago which really brought on the symptoms, but that doesn't exclude lyme either, as it can lie dormant and then be triggered.

    blessings to you. jen102
  3. hopeful4

    hopeful4 New Member

    It is my understanding that the testing is more likely to come out negative right after the person is infected (not always by a tick bite) because the body has not yet been able to produce anti-bodies.

    Even with the more reliable tests like Igenex or Bowen, false negatives are possible. That is why Lyme Disease is a CLINICAL DIAGNOSIS. It must be made by a doctor well-versed in all aspects of lyme disease. Not all doctors are knowledgeable enough to diagnose it. For example, would one go to a heart specialist to diagnose fertility problems?

    The clinical diagnosis takes into account the person's symptom picture, history, test for lyme disease AND testing for other things, such as co-infections (babesia, ehrlichia), mycoplasma, low NK cells, high RNase, hypercoagulation (fibrin in the blood).

    We need to use all the tools available to us for proper diagnosis, whether lyme disease, or other illnesses. Lab tests are not infallible.

    How many women have gone to their doctors with suspicious lumps, then told that their mammograms were normal, only to find out later that they in fact had breast cancer? I know women who could have been spared much suffering from just that scenario. We have to use our instincts and speak aloud what our inner voice is telling us as well.

    ***** ***** *****

    Here's an article excerpt:


    Kenneth B. Liegner
    Lyme Borreliosis and Related Disorders, Internal and Critical Care Medicine
    8 Barnard Road, Armonk, New York 10504
    Journal of Clinical Microbiology, Aug. 1993, p. 1961-1963


    "Acceptance of the possibility of seronegative disease makes empirical treatment for patients in whom Lyme disease is clinically suspected imperative, even if serologic tests are negative.

    Obviously, such commitment to therapy should occur only after thorough but expeditious efforts have failed to identify another cause for the symptoms. Early occurrence of irreversible neurologic injury, although rare (23, 28), may be avoided by prompt and specific therapy for such patients."

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