What's wrong with me?

Discussion in 'Fibromyalgia Main Forum' started by MelG, Jan 9, 2003.

  1. MelG

    MelG New Member

    I feel like I'm losing my mind. It feels like someone put me into a pot of water and the gas has been on for a year now.

    It feels like acid has been poured into my blood and is flowing through my body. I'm beginning to lose sensation in my feet. I guess from the overload it's like the brain is shutting down portions of the body which I can not longer tolerate pain from.

    Have to see the neurologist again on Tuesday. His receptionist said if it's central pain. Ever heard of this? Narcotics don't do much.

    Is this MS? Am I dying? Is this CFIDS? FM? How can I make it stop? I have a call into my pain specialist. I'm trying everything but I can't get it to stop.

    I don't even want to think about the ER. They think CFIDS is an imaginary illness.

    I guess it's just deal with it for a while longer.

    MelG :-(

    "With central pain, the pain signal apparently finds alternate routes to the brain. When the "wires are crossed," the brain seems unable to locate and gate these alternate pathways. Pain coming through the alternate pathways feels garbled, unstoppable, and bizarre. In severe cases, the result is unbearable pain, what one physician called "a neurologic Auschwitz."

    Patients use very different terms to describe central pain. It most often follows stroke or spinal cord injury but can be seen in conditions as diverse as multiple sclerosis or AIDS. Tasker has stated that it can be the "worst pain known to man."

  2. nancyneptune

    nancyneptune New Member

    I'm so sorry! I don't think I've ever experienced that kind of pain. I would assume I was dying too. Maybe the neurologist will see you right away if you call and tell them it's killing you. My doctors always say come in today if I'm desperate. God, I hope you get some relief! Hugs, N
  3. MelG

    MelG New Member

    Pain specialist is out, talked to his nurse practioner. I was told to take an extra Soma during the middle of the tight if the spasms/pain wake me up.

    I think his must be some sort of torture.

    Can't stand on my feet at this point. Mentally holding up very good considering.

    Neuro. can't see me until Tuesday. :-| Shrink is out until Monday.

  4. sheri

    sheri New Member

    I am sorry you have to wait til tuesday to see a doc!I have had spinal surgery and there have been times when my entire body,(I describe it as every cell in my body) is burning, but not on a constant basis, and not 'like acid'...I feel so bad for you..I pray you will get relief soon! blessings to you, hang on...sheri
  5. Fibromiester

    Fibromiester New Member

    I am so sorry you are in so much pain! And no Dr. til Tues!Please know that everyone here who reads your post, even if they don't write, I'm sure will have you in their thoughts & prayers. I have FM and Chronic Myofascial Pain Syndrome,etc, and I thought My Pain got Unbearable!!! WoW. I'm going through a great deal of stress right now, and my whole body is tense-and my muscles hurt-and I tense-and my muscles hurt worse-and I tense... and so on... So all I can say, is Relax- close your eyes and detatch from your body- think about God, or a valley and mountains, or a place you have visited...Relax your whole body and try not to worry, or fear "what you have". Just do your research, tell your Dr.s the symptoms, and Relax! May god bless you and bring relief soon, Mel! [[[[[[[[[[[hugs]]]]]]]]]]] Fibromiester
  6. Shirl

    Shirl New Member

    If its Fibro pain, along with all else that you have, I know the feeling. If you can, get in bed and stay warm!

    Try watching tv, reading, or something to occupy you mind till you can get to the doctor.

    Could it be one of your meds causing a reaction? If nothing else, call the pharmacist, he can tell you if you are having a reaction to one of your meds ASAP!

    Take care, have already said a prayer for you.

    Shalom, Shirl
  7. MelG

    MelG New Member

    This is not a "normal" pain signal. Not saying the FM is but heat, i.e. warm bath, moist heating pad, is making the prickles worse.

    It's the most difficult sensation to describe. I put a call into my neuro. This is inhumane. There is something called Baclofen (sp?), for this.

    It's like muscle spasms but that doesn't describe it right. When I try to do my gently stretching, it causes cramps (you ever had your big toe go one way and all the others go another), that's what I mean by cramp.

    I put Lidoderm on the arms. To complicate things, my son is getting what looks like Coxsackie again.

    It seems to help the situation to go sit in the cold. I mean no jacket, no socks or shoes. And no it's not like hot flashes because I know what that is.

    Today, for the most part, I'm not able to walk. What kind of assisted device works for this? Like a cain or something? I don't want to fall (again).

    I love you guys,
  8. MelG

    MelG New Member

    The burning has been going on, on and off since February 2002. The legs never get better. They got bad around Thanksgiving when my son got another "non-specific" rash, and never got better.

    The arms are on and off. It's in the upper outer arms. It hasn't stopped now since around the 3rd. I got a upper respiratory infection and I figured it would go away.

    Instead, the legs and arms having gotten worse and won't let up.

    I wake up in the night with my entire body huddled into a little ball in spasm, sweating.

    God I feel "toxic".

    If your muscles make lactic acid (?) when you excercise, how do you get rid of excess from muscle spasms?

    That is the best way to describe it, you know a good burn you get during a work out, that is the sensation, but continous.

  9. griswoldgirl

    griswoldgirl New Member

    I am sorry you are in such pain. I do hope you find some relief soon. Relaxation exerises and deep breathing help me when it gets unbearable. I know though when it is that bad it is hard to concentrate and do this, but try--it may help. Go somewhere in your mind peaceful and beautiful away from the ugliness of your pain. God bless

  10. MelG

    MelG New Member

    Thank you so much. You know that makes a lot of sense, because the last week or so, there is just the feeling of acid, in my muscles, i've had heart burn a lot the last few days.

    My doc, who is a psycologist, but also an MD and very knowledgable about the metabolism, etc., will have an idea of what's wrong. I had some minor blood work abdomalities a week ago. Not feeling much better than I was actually. No more coughing stuff though.

    I want to read about that. What should I eat to reduce acid in my body?

    You know it MAY JUST BE SOMETHING SIMPLE but any doctor who just dismisses you as having JUST FM OR CFIDS is IMHO, doing something criminal. It's like they stop thinking as soon as they hear these labels. You must be a nut case and not have any valid complaint.

    Try to stay composed.

  11. Mikie

    Mikie Moderator

    OMG, I am so sorry. I cannot help because I have no idea what could be causing this, but I am sending up a prayer for you.

    Love, Mikie
  12. MelG

    MelG New Member

    Just called me. They are going to call Baclofen into my pharmacy. This is a bizarre kind of pain. Narcotic pain meds do nothing for this kind of pain.

    My doc will probably increase the Trileptal but that's not until Monday afternoon :-| and that will take weeks to work.

    Pain specialist saved the weekend. Lidoderm, warm water, moist heating pad, etc., nothing was working. Feels better to sit in the cold. Should I get into a cold bath?

    The metoblic acid problem is a very good possibility.

    We'll see. I have to drive to go get this. lol.

    Gotta laugh right?

    Cyber hugs,

  13. lmn

    lmn New Member

    so sorry to hear how bad you're feeling. I will remember you in my prayers. May God bless you and keep you.
  14. MelG

    MelG New Member

    Can email Mickie or Shirl email me immediately at