When did you decide you could NO LONGER work?

Discussion in 'Fibromyalgia Main Forum' started by megchampagne, May 10, 2006.

  1. megchampagne

    megchampagne New Member

    I am SCHEDULED for 40 hours a week, but only work 25-30, due to appointments, physical therapy, and pure exhaustion.

    This is usually considered less than full time. I even find working the 25 hours very difficult.

    My question is, if you are on disability, how did you KNOW you had to stop working?
  2. puddin827

    puddin827 New Member

    I don't think you can work AND get disability. If you are able to work then you don't need to get disability.
  3. janieb

    janieb New Member

    I believe what the other people have told you is true. If you are working, you can't draw disability for a certain length of time. Your company may provide either/or short and long term disability. Usually the long-term disability is only good until you qualify for SSI and you must apply for it.

    In my case, I knew when I turned 50 that I was not going to make 65, but I had a very understanding boss and lots of unused sick leave. When it was time to renew my contract, I bagained for early retirement at 60 and my boss supported me. Since we are on a state retirement plan and I had met all the requirements, I began drawing that at 60. The Board gave me full family health insurance to 65 and a stipend for the 5 years intervening. At 62 I signed up for social security. It took a bit of planning, but it was better than having to quit a have no wages or benefits.

    The point where you can draw SSI is difficult to get to; especially if you're young. It usually takes at least 3 times and an attorney or advocate to help.

    Since I don't know your situation, this is the best I could do. If you have someone in the Human Resources you can trust, you could ask them for information. If not, perhaps you could do the one visit to an attorney to get information.

    Good luck.

    Mary
  4. jakeg

    jakeg New Member

    Was when I went in put my laptop in the docking station and could not turn it on because the pain was so bad. I stayed there for 3 hrs not being able to do any thing before my boss asked me what I was doing.

    I told him that I hurt so bad that I couldn't move anymore and told him that as soon as I could I was going home. He said just stay there I'll be back in a couple of minutes to take you home, including my truck.

    He got his assistant to follow us to my house so that he would have a way to get back to work. I tried working after that but it was a no go. I've been off ever since and have just finally made an appointment to go in and fill out the paper work for SSDI on the 25 of this month.

    Jake
  5. lil_angel1198

    lil_angel1198 New Member

    When my husband had to literally lift me out of bed so I could get up to go to work.

    I was a hair stylist, working full time. I got to the point where I was in intollerable pain each day after work, and during work.....when I couldn't get out of bed without my husband literally sitting me up and then lifting me out of bed, he said NO MORE! He told me it was time to give my notice and tell them I was done working.
    I've been home for almost 6 years and I do not regret quitting. Things are a little tight sometimes for us, but, he works hard for our family and he likes me being home.
    I also like it.
  6. Strawberry94

    Strawberry94 New Member

    When I literally could not make it anymore.
  7. zion1971

    zion1971 New Member

    as a teacher, i was missing more days than my truant students :)

    really, when i had used all of my personal and vacation days and started getting docked for days missed. each paycheck, i was losing around $200. that is a lot when you don't get paid that much in the first place.

    my students would wonder why i was missing days. my fellow teachers weren't always nice and understanding. i got word of things that were said about me when i was out.

    i was a good teacher before becoming ill; then i became an okay one. i knew i had to quit when i felt my students deserved more.
  8. lovethesun

    lovethesun New Member

    You start by missing days.Then you have to cut your hours just to work. Depending on what job you do-if it's physical or mental-you lose the capacity to work at all.You get out of bed one morning and your body says NO MORE..and you listen.Linda
  9. claudiaw

    claudiaw New Member

    i didn't my body did!

    The room started spinning and Icouldn't get out of bed!

    That was over 1 1/2 ago. was told to quit work by my doctor but pushed on another year. That was a bad idea. I still have not recovered.

    I hope better for you.

    best wishes,
    Claudia
  10. Michelle_NZ

    Michelle_NZ New Member

    I had a relapse in Dec 05, and returned to work after a month off. Well, after 6 weeks of only managing to work 15 - 20 hours a week, instead of my 40, I realised that I needed to stop work.

    My job was quite full on and requires someone full time, so I asked for 3 months off unpaid leave. I am due to return in a few weeks, however its not going to happen.

    Since I stopped work my CFS has continued to worsen and I am pretty much housebound most of the time now. It has happened so quickly, I am still in shock.

    I should probably have stopped sooner than I did, and I wonder if I would have improved if I had listened to the warnings my body was giving me, rather than trying to push through it.

    Take care
    Michelle
  11. fibrohugslife

    fibrohugslife New Member

    When I got fired from my umpteenth job and I thought hmmm I think this is the end of the line for me and I did not want my future resume to look any worse that it is did wth these short amount of times I was working.
  12. UnicornK

    UnicornK New Member

    I had surgery in January 2004 to fuse vertabrae in my neck. The pain still hasn't gone away. I took medical leave for the surgery and haven't been able to go back.

    It's so frustrating!

    God Bless.
  13. aquabugs

    aquabugs New Member

    You'll know when you can no longer do it.

    For me it took a while to listen to my body. I had worked hard to get my biology degrees and I had MY dream job...doing environmental monitoring of surface waters. It was a very physical outdoors most of my days type of job.

    After these diseases started I kept going and pushing myself. When I finally began to be so exhausted I was taking a week to recuperate after a day of working in the field, I was transferred to what amounted to a desk job.

    My fatigue and pain continued to increase over the next months, until Summer of 2005 I was missing more days than I was working.

    I finally begged the doc to put me off on sick leave in September 2005. I wasn't able to go back to work in November, as was originally scheduled, so I was relieved of my postion. I had used all my paid leave of all kinds and was in unpaid leave status when I finally exhausted all my FMLA leave.

    I keep wondering now if I will ever be able to go back to that work, but in my heart, I don't think I will. I haven't recuperated enough now to even do housework on most days. My 70 yr old mother moved next door to us so that she can do most of the cooking. I don't know what I'd do without her.

    All I can say is...take care of YOU. Don't wear yourself out cuz it will only make matters worse.

    Sylvia
  14. GwenGlo

    GwenGlo New Member

    ..that I could no longer work when I couldn't stand or sit longer than 20 minutes.

    Gwen
  15. Tigger57

    Tigger57 New Member

    A lot of you sound like me. I was let go from a job I was at for 10 years because I was sick too often.

    I still haven't applied for SSDI because I can't live on it, but you know what? I can't live without it either. Right now I'm working 6 hours a day and the gas and electric will probably be shut off soon, I am going to have to drop my medical insurance (and pray that somehow I can get my meds), and it has become VERY real that I will most likely lose my house and have no where to go.

    This is probably one of the sadest threads I've read in a long time.
    Tigger
  16. springrose22

    springrose22 New Member

    when I thought I would collapse and die. Marie
  17. rockinmama

    rockinmama New Member

    I went from working a 40 hour job as a nurse to working 3 hours a day/5days a week at a job folding mail and filing. After about 5 months of that I found myself sitting at my desk crying because I hurt so badly and my supervisor thought it was funny so she would try to pile more on.

    I must clarify this story with the fact that when I quit my nursing job I tried to work at part time jobs for about 5 years after that. This included a secretary, receptionist, and then the last job I just told you about.

    This was back when it was even harder to find people that understand then it is now. It took me 3 years to finally be approved for disability after the first judge actually called me a liar!

    There have been some small improvements even though it still is hard to find those with knowledge and will help.

    It's a hard decision to decide to quit working. It feels like giving up instead of giving yourself a break. I still hang onto my nursing license because I feel like it's such a big part of who I am.

    My prayers and support go out to anyone who is trying to or has made this decision.

    Chris
  18. sues1

    sues1 New Member

    It was bad, me, my body would not cooperate. You know what I mean.

    NO!.. I yelled when alone. I will get better! I will overcome this! First told I had FIBRO and later I got CFIDS. Funny, strange diagnoise I thought. THEY are crazy! There is a reason I am this way and ..I, Me,...will find it!

    My DH would help me get ready and take me to Drs. and clinics,various hospitals, etc. We went all over the place. I would barely make it into the Drs. offices. Sometimes I even saw everything in red tones. My eyes hurt. Darn, everything hurt. Many tests. Many Drs. of all sorts. I went on, as I just had not found the right Dr.!

    I missed so much work that I was embarrased. But I kept my head up high (when I could)and over looked it ( to the eyes of others) and faked it.

    I did do what was necessary, but not all I should do as I could not do it. I even asked to take a layoff, when they were going to layoff someone. My reason was to be able to see more Drs. and maybe, just maybe....a little more rest would help. I made good money, but we would barely get by,with unemployment.

    My husband's company downsized and he was now unemployeed.

    I had to pay my ins. to keep it and I knew I had to have it.
    It took a large chunk of my unemployment.

    But I still was going to find the answers. I would go to the library and book stores. I contacted many places for info. I went to more specialists. Meanwhile I was about like a woman made of jello. Wobbily. Ready to dissolve into the carpet. Could hardly see or walk,

    I had great insurance. Paid about everything. But even with my little that I had to pay....it still was in the thousands and my savings went.

    My husband, even before he was not working, would cook and even cut the meat on my plate, I could not. I hardly had strength to eat it. Eating seemed to sap my strength.

    I did not make a decision to quit working. My body did. I could go no longer. I felt betrayed. I was working on saving for retirement. What I had went fast for Drs. and tests. I was always a fighter in the right sort of a way. I could hang in through much adversity. My fight disappeared. I disappeared. I remember me and I liked her!

    Funny, but I look back so I feel validated and worthy now.

    I was "lucky" as I worked for city. PERS (Public Employment Retirement System). It is not as hard to get approved for that. Even has insurance with it. Better than SS.

    But I did not want it, I wanted to work. I guess this could be wrote by many here. God Bless all of us......Susan

  19. Roseblossom

    Roseblossom Member

    Please don't let your house get repossessed! Sell it - get your money out of it, and go from there.

    Roseblossom
  20. lovethesun

    lovethesun New Member

    Go to social services in your community.Sometimes they have programs to help when electricity is ready to be shut off.Linda