Where are you all finding CFS symptoms????

Discussion in 'Fibromyalgia Main Forum' started by Kathleen12, May 29, 2006.

  1. Kathleen12

    Kathleen12 New Member

    I have been reading on here of symptoms of cfs which I have not heard before....
    low body temps??? (mine..96-97)
    low bp?? (mine..90/58 or 60s)
    heat intolerance??? me too
    I just never knew that these,too,were related to cfs. I always wondered about my low temps and bp. Why aren't those ever mentioned in the writings about cfs/fm I wonder.
  2. UnicornK

    UnicornK New Member


    Warning! It's very long! Don't let it scare you! This is comprehensive. We don't have all of them, just some of them. I used the list when I was interviewed by my local paper. They were impressed, to say the least! LOL

    Good luck.

    God Bless.
  3. JLH

    JLH New Member



    * Exhaustion, made worse by physical exercise (100%)

    * Low-grade fever in early stages (60-95%)

    * Recurrent flu-like illness (75%)

    * Frequent pharyngitis (50-75%) (sore throats)

    * Joint and muscle pain (65%)

    * Severe muscle weakness (40-70%)

    * Stiffness (50-60%)

    * Post-exertional fatigue & flu-like symptoms (50-60%)

    * Multiple sensitivities to medicines, foods, and chemicals (40-60%)

    * Severe nasal & other allergies (40-60%) (often worsening of previous mild allergies)

    * Frequently recurring, difficult to treat respiratory infections (40-60%)

    * Dyspnea on exertion (labored breathing or hunger for air)

    * Painful lymph nodes (30-40%) (especially on neck and under arms)


    * Sleep disorders & unrefreshed sleep (50-90%)

    * Headaches (35-85%)

    * Visual blurring (50-60%)

    * Intolerance of bright lights

    * Parasthesias (30-50%) (numbness or tingling feelings)

    * Dizziness/Light-headedness (30-50%)

    * Ringing in the ears


    * Impaired cognition (50-85%)

    * Attentional difficulties

    * Calculation difficulties

    * Memory disturbance

    * Spatial disorientation

    * Saying the wrong word


    * Worsening of premenstrual symptoms (70% of women)

    * Nocturia (50-60%) (excessive urination during the night)

    * Tachycardia (40-50%) (abnormal rapid heart action)

    * Chest pain (25-40%)

    * Cough (30-40%)

    * Weight gain (50-70%)

    * Nausea, especially in earlier stages (50-60%)

    * Diarrhea, intestinal gas or irritable bowel (50%)

    * Intolerance of alcohol

    * Night sweats (30-50%)

    * Dry eyes (30-40%)

    * Dry mouth (30-40%)

    * Rash (30-40%)

    * Frequent canker sores (30-40%)

    * Herpes simplex or shingles (20%)

    * Symptoms worsened by extremes in temperature

    Here's another

    The numbers in parentheses are the percentage of CFIDS patients who experience those symptoms.

    Fatigue (100%) - usually made worse by physical exertion

    Cognitive function problems (80%)
    - attention deficit disorder
    - calculation difficulties
    - memory disturbance
    - spatial disorientation
    - frequently saying the wrong word

    Psychological problems (80%)
    - depression
    - anxiety
    - personality changes, usually a worsening of a previously mild tendency
    - emotional lability (mood swings)
    psychosis (1%)

    Other nervous system problems (100%)
    - sleep disturbance
    - headaches
    - changes in visual acuity
    - seizures
    - numb or tingling feelings
    - disequilibrium
    - lightheadedness (feeling "spaced out")
    - frequent and unusual nightmares
    - difficulty moving your tongue to speak
    - ringing in ears
    - paralysis
    - severe muscle weakness
    - blackouts
    - intolerance of bright lights
    - intolerance of alcohol
    - alteration of taste, smell, hearing
    - non-restorative sleep
    - decreased libido
    - twitching muscles ("benign fasciculations")

    Recurrent flu-like illnesses (75%) - often with chronic sore throat

    Painful lymph nodes - especially on sides of neck and under the arms(60%)

    Severe nasal and other allergies - often worsening of previous mild problems (40%)

    Weight changes - usually gain (70%)

    Muscle and joint aches with tender "trigger points" or Fibromyalgia(65%)

    Abdominal pain, diarrhea, nausea, intestinal gas "irritable bowel syndrome (50%)

    Low grade fevers or feeling hot often (70%)

    Night sweats (40%)

    Heart palpitations (40%)

    Severe premenstrual syndrome - PMS (70% of women)

    Rash of herpes simplex or shingles (20%)

    Uncomfortable or recurrent urination - pain in prostat (20%)

    Other symptoms:
    - rashes
    - hair loss
    - impotence
    - chest pain
    - dry eyes and mouth
    - cough
    - TMJ syndrome
    - mitral valve prolapse
    - frequent canker sores
    - cold hands and feet
    - serious rhythm disturbances of the heart
    - carpal tunnel syndrome
    - pyriform muscle syndrome causing sciatica
    - thyroid inflammation
    - various cancers (a rare occurrence)
    - periodontal (gum) disease
    - endometriosis
    - easily getting out of breath ("dyspnea on exertion")
    - symptoms worsened by extremes of temperature
    - multiple sensitivities to medicines, food, and other substances

    The FMS check list is just as extensive. So is Lyme, GWI, Candida, and a multitude of other illnesses. The symptoms overlap.

    Testing is an important factor. Keep in mind that some tests don't measure things very accurately. You do need to rule out things like Chiari Malformation, etc.

    There is an extensive library here at this site with more information that you can possibly swallow in a year. But give it a try.

    Learn how your body works. It's all connected. If the "gut" doesn't work properly, then a lot of other things aren't going to work right either. Likewise, if the adrenal glands, or thyroid, or liver, or hormones, or pituitary, or colon, or...or..or.. you get the idea. If any one part is not working properly, there is a domino effect, and systems start to fail. Each part is dependant on another part in order to function properly.

    No two people have exactly the same symptoms. What works for one may not work for another. So much depends on what exactly is happening in your body. If there are viruses running rampant, your treatment may be different that someone who seems to have FMS but may really just have a bad case of candida. (I considered that for myself for awhile. Turned out to not be the case.)

    There is hope. For all of us. Together we are learning so much about how it all works. Someone here is trying most everything. From difficult protocols to the very simple. Ask lots of questions. That helps all of us learn.

  4. Pianowoman

    Pianowoman New Member

    If you want a really good list along with an explanation of the symptoms, get the Journal of Chronic Fatigue Symdrome, Volume 11 , No 1, 2003. This contains the Canadian Clinical Working Case Definition, Diagnostic and Treatment Protocols. This is considered, at the moment, to be one of the most comprehensive documents of this kind available.


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