Where do I fit on Dr. Lerner's Energy Index Point Score?

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by needtobreakfree, Jul 30, 2014.

  1. I keep reading about Dr. Lerner's Energy Index. I really can't figure out where I would fit in, because I don't really need naps, but my physical capacity is very small.

    http://www.treatmentcenterforcfs.com/energy_index_score/index.html

    If you look at the scale, I fit high on some levels, but very low on others. A few months ago I was at a 0 for sure. Now I have the mental capacity to read, watch TV without a problem, can talk on the phone, surf the web, all without getting too tired at all. I don't need naps and sleep 8 or 9 hours per night.

    But physically, I have such neurological problems, pain, and PEM, that I can only walk through the house a couple of times a day before the nerves in my legs go crazy, I can sit up, but need to have my feet up. As long as my feet are up, I can sit up for a few hours. I spend the majority of my time in bed, but spend half of that time sitting and half laying. I get up to get myself some food, but my arms barely work because they are so painful and weak and go numb. Standing upright is difficult because I have POTS and muscular chest pain that is pretty severe. I'm trying to track my progress, but Lerner's Energy Index isn't totally making sense for my case. What do you think?
  2. fight4acure

    fight4acure Member

    Hi! I'm not sure how to answer the question, but your chest pain is not part of any FMS or CFS pain, in that it should get looked at by a specialist, as we often have co-comorbity of other illnesses, such as respritory problems. Never ignore chest pains.

    I have much chest pain, but it's not the FMS/CFS causing it.

    Love,
    Fight ;)

    (Disclaimer: Not a doctor, just a patient)
  3. Thanks for your response. :) I can't figure out what the chest pain and heaviness is, other than a fibromyalgia type of problem, because I had an EKG, chest x-ray, echocardiogram, and a catscan and nothing was found. I think it's a neurological problem, because all of my symptoms seem to be neurological in nature. I'm sorry you have chest pain, too. :( I hope it's not serious. I know how hard it can be to deal with it constantly.
  4. ljimbo42

    ljimbo42 Member

    Hello Lisa- I just looked at the energy index and I fit into parts of 2-3 separate categories, so it is very confusing. As far as the chest pain goes, that is very common in cfs/fm and is called Costochondritis.

    I use to have it and it was very painful at times. Sometimes it would be a burning pain, other times it would be an aching pain and feel like someone was sitting on my chest. It is caused by inflammation and inflammation is a big part of cfs/fm. Curcumin might help to some degree.

    I take 500mg Turmeric Phytosome 2 times a day and it gives me enough relief that I spend $11 a month on it. :) If you google "cfs and Costochondritis" you will get a lot of info. on it. Take care---Jim
  5. Well that's very interesting, thank you for sharing that info. That's the first lead I've had regarding the chest pain. I'll definitely look into it more. I do have some Zyflamend I haven't tried yet, and it has a whole bunch of anti-inflammatory herbs. I wonder if that would work. If not, I may have to order the turmeric you mentioned. Thanks Jim!
  6. ljimbo42

    ljimbo42 Member

    Hi again Lisa- The Zyflamend might help, but like many supplements it takes time for it to work. You might not notice any improvements for 2-3 weeks, but I would give it a try. Also, I just googled "fibromyalgia and Costochondritis", there seems to be more info. and it seems to be clearer about what Costochondritis is and the connection to fibromyagia. :)