WHERE TO GO?

Discussion in 'Fibromyalgia Main Forum' started by mellow, Sep 24, 2002.

  1. mellow

    mellow New Member

    I have just come back from a visit to my rheumatologist. I have not seen him for a while but things have been getting worse as far as pain etc. goes. He says that I have FM and that it is primarily stress related. He did an examination but was not interested in listening to any other symptoms. He asked me to think back to when the pain first started and what might have happened in my life. The last ten years for me have been full of stress. He believes that I am still carrying a lot of this around with me and haven't come to terms with it. At the end of the session I was in tears and feeling sorry for myself. He said that pain meds. would not work for me. I am seeing a psychiatrist who is starting me on Aropax. I have tried other meds. but was unable to tolerate the side-effects. I know that stress can play a big part in a lot of conditions but I know that there is more to this disease than just stress. How do you account for some of the other strange symptoms?
    I feel that my visit was a waste of time. Everywhere I turn I hit a blank wall. No-one knows what to do with us.
    Can anyone offer any ideas?
  2. mellow

    mellow New Member

    I have just come back from a visit to my rheumatologist. I have not seen him for a while but things have been getting worse as far as pain etc. goes. He says that I have FM and that it is primarily stress related. He did an examination but was not interested in listening to any other symptoms. He asked me to think back to when the pain first started and what might have happened in my life. The last ten years for me have been full of stress. He believes that I am still carrying a lot of this around with me and haven't come to terms with it. At the end of the session I was in tears and feeling sorry for myself. He said that pain meds. would not work for me. I am seeing a psychiatrist who is starting me on Aropax. I have tried other meds. but was unable to tolerate the side-effects. I know that stress can play a big part in a lot of conditions but I know that there is more to this disease than just stress. How do you account for some of the other strange symptoms?
    I feel that my visit was a waste of time. Everywhere I turn I hit a blank wall. No-one knows what to do with us.
    Can anyone offer any ideas?
  3. Hidn

    Hidn New Member

    Mello,
    I just reade your post and it hit a nerve with me ((((((((((((((hugs))))))))))
    Sounds like your doc is like mone! Useless! I dont have any answers for you, I wish I did. Just try to find another doc? I know this is not easy when you are feeling lousy.
    Hang in there, I do know finding this web site has helped me, not cured me, but at least by reading the posts I know I am not alone. I hope you get some answers soon. Meanwhile we are here :)
    Denise
  4. weezo

    weezo New Member

    know exacty how you feel. I have just come back from my doc frustrated out of my mind as usual. Over the weekend my pain was unbearable, felt like I had two broken hips, one broken knee , broken arm and my whole body, even my head and teeth just ached and ached.It took me till now to get the energy to visit him. He just listened and looked cockeyed at me and said'you look fine' When asked for some painkillers he said theres nothing he and give me and anyhow he dosn't want to to become a drug addict. My rheumy was interested at first but lost interest when I did't respond to vioxx etc so now I am waiting to go to a pain managment centre, but have to wait 3mths for my appointment. Sometimes I fell I could scream. Well all the time I feel that way. By the way I also see a psych and he dosn't believe in fm but I still go and see him because I feel the antidepressants stop me from murdering the know all doctors who know nothing and don't want to learn new ideas and treatments
  5. weezo

    weezo New Member

    know exacty how you feel. I have just come back from my doc frustrated out of my mind as usual. Over the weekend my pain was unbearable, felt like I had two broken hips, one broken knee , broken arm and my whole body, even my head and teeth just ached and ached.It took me till now to get the energy to visit him. He just listened and looked cockeyed at me and said'you look fine' When asked for some painkillers he said theres nothing he could give me and anyhow he dosn't want me to to become a drug addict. My rheumy was interested at first but lost interest when I did't respond to vioxx etc so now I am waiting to go to a pain managment centre, but have to wait 3mths for my appointment. Sometimes I fell I could scream. Well all the time I feel that way. By the way I also see a psych and he dosn't believe in fm but I still go and see him because I feel the antidepressants stop me from murdering the know all doctors who know nothing and don't want to learn new ideas and treatments
  6. Mikie

    Mikie Moderator

    Welcome to our board. I can no longer personally welcome each new member, but I do try to when I respond to posts.

    Our illnesses are not rheumatological in nature though they have a rheumatological-type effect. More and more, researchers are finding our illnesses to be centered in our brains and nervous systems. Unfortunately, medicine, for the most part, has not caught up with research. Rheumies are still the ones who are usually best able to make the diagnosis. After that, they are pretty much useless.

    If you have pain, seek a pain specialist or rehab-type specialist like a psysiatrist who has knowledge of and treats CFS/FMS patients. This is not always easy to do, but they do exist.

    Stress may trigger our illness, but it is not the cause. Research is pointing toward a genetic predisposition and multi-factorial triggers. Learning to deal with stress will make a huge difference because no matter what we do to treat our symptoms, if we don't deal with stress, we will remain ill.

    Good luck.

    Love, Mikie