Which US doctors are prescribing antiviral pharmaceuticals

Discussion in 'Fibromyalgia Main Forum' started by cristine04, Oct 16, 2006.

  1. cristine04

    cristine04 New Member

    I am wondering which doctors are currently prescribing antivirals such as Valtrex, Valcyte, Kutapressin/Nexavir, Isoprinosine, etc.







  2. cristine04

    cristine04 New Member

    Thanks so much Dale. For some reason, many of the doctors I've seen here in Northern California have been reticent to prescribe them. The one doctor who was interested in prescribing sort of fell off my radar when his schedule became so busy....So I'm looking elsewhere!

  3. Sheila01

    Sheila01 New Member

    Doctor here in wisconsin prescribes them. It got me out of bed.
  4. Jeanette62

    Jeanette62 New Member

    I see a rheumatologist/internist Michael Powell DO in Sacramento. He is an exceptional doctor that knows a lot about treating Fibro/CFS. He runs a lot of blood work after the initial appt checking for chlamydia pneumonia, mycoplasmas, thyroid and several other things. He is now checking the Herpes viruses as well and has added that to the treatment for those whose tests show high levels. He prescribed Valtrex for me. His physician assisstant is also excellent.

    I have been a patient since Dec. 05 and would highly recommend him. I have never had such excellent service from a doctor's office before. His office returns calls the same day sometimes within the hour. They have called right away anytime my monthly blood tests were abnormal or if I called because of any unusual reactions or symptoms from herxing or medications/supplements.

    Hope this helps.

    Jeanette
    [This Message was Edited on 10/16/2006]
  5. PVLady

    PVLady New Member

    I will not see him until January but I know Dr. John Chia in Torrance, CA is prescribing antivirals. He is a well known doctor for infectious diseases.
  6. Lolalee

    Lolalee New Member

    Cristine, I am also trying to find a doc who will treat this. I saw an Infectious Diseases Specialist and he was really negative about the connection between virals and CFIDS. I finally convinced him to check me for Rickettsia and Heavy Metals, specifically Mercury. I'm waiting for the results. I've only seen him once and he is very nice so I think I'm going to keep pursuing the viral connection with him. I finally washed my hair (it'd been a week) and my hair is short (see my profile) and it took so much energy that I feel so sick I just want to cry right now. I feel like my body has an infection. Good luck finding a dr who will help you.

    Jeanette, consider yourself blessed. I mean this in the nicest way.

    Lolalee
  7. JenniferAnn539

    JenniferAnn539 New Member

    Lolalee,

    Are you saying that you have been tested for Rickettsia? When I did some research on it, since it has been discussed in the last few days on the board, it appears that it is not seen so much in the US. Do you know or feel differently?

    Was it easy for your doctor to find the correct test? Would you please let me know when you get the results back? I find this interesting. I have tested negative for Lyme but have wondered if it could be something else, such as Rickettsia.

    Thanks.

    Christine,

    Dr. Derek Enlander uses Hepapressin (generic Kutapressin) in his practice in NYC. Dr. Cheney uses Isoprinosine in his practice. When I was being treated by Dr. Cheney my local doctor was able to get the drugs for me once he had the information and correct forms. Hope this helps.

    Jennifer





  8. cristine04

    cristine04 New Member

    Thanks Jennifer!

    I am so surprised there aren't more doctors in california who are prescribing this stuff!

  9. Lolalee

    Lolalee New Member

    Yes, the Infectious Diseases Specialist I saw last week ordered lab work to check for Rickettsia. He seemed to know exactly which test to order. I don't know if I have this or not. This was the first time I saw this doctor and I went to him because I've gotten no help from any doctor when I tell them I've been diagnosed with CFIDS and FMS. I feel so ill and have seen more and more info here and other places on the web that viruses play a role in CFIDS.

    I took him info on research done by doctors treating for viruses when patients have CFIDS. He was not very optimistic about any relationship between CFIDS and viruses. However, he was very nice and he clearly wished he could help me. I think he ordered the Rickettsia test just to do something for me. I talked to him about research being done by Dr. Jadin in South Africa and he told me that he knew of someone locally who was researching this virus.

    I also showed him a report I got off the web on Dr. Johnson in Evansville, Indiana who suspects the chronic pain of diseases like fibromyalgia could be caused by a series of viruses. Dr. Johnson came up with a list of 17 viruses and found that his fibro patients were all testing positive for anywhere from 3 to 9 viruses each. My doctor was not receptive to this info because it was just one doctor doing the research.

    I didn't want to get too pushy on my first visit, but I have a follow-up appt with him and I will again try to make a case for him to check me for more viruses.

    Lolalee
    [This Message was Edited on 10/17/2006]
  10. maedaze

    maedaze New Member

    Oh I thought i was the only one having trouble getting these antivirals being in new zealand. First the doctor barrier, but i think i am now on to a specialist who will prescribe them for me.

    We don't have antivirals here!!! but we do import a few from Ireland!!! Very expensive and not covered!

    So sounds like its a long expensive road, but it is still something i want to try.

    good luck to all of us!!
  11. spacee

    spacee Member

    Through my local pcp. The kutapressin, I had to take in an artical on how it was to be taken. The CFIDS Journal had published it....way back then.

    The other antivirals were known to them and in the PDR so he was willing to give them a try.

    But do admit my labwork showed so much viral activity that he was willing to help in anyway that he felt was reasonable.

    The TF's that Rich Carson took (takes) have helped me the most.

    Spacee
  12. Slayadragon

    Slayadragon New Member

    What lab work were you using? Which prescription antivirals did you try? What were the effects?
  13. spacee

    spacee Member

    As early as 1988...EBV and CMV. The EBV has stayed elevated, the CMV shows positive at times. Not at others.

    Then there were alot of testing of my t-cells T&B and NK cells by the Cheney Clinic in 1991. NK Cells were normal. Plus Lyme and HHV6, Lyme neg. HHV6 positive.

    My WBC...low lymphs,neutros, Leuks and Platletes.
    My RBC...low red cells, low hemoglobin, low hemocrit. High segs.

    Anyway...someone is at my door. Let me know if you need more info. Alot of stuff was done too at the National Insititutes of Health. But bascially this is the main stuff.

    Spacee

    PS. My ASO titer was always high. I had forgotten that. I am digging into my OLDDD lab stuff.


    [This Message was Edited on 10/18/2006]