who diagnosed you?

Discussion in 'Fibromyalgia Main Forum' started by cczub, Dec 1, 2005.

  1. cczub

    cczub New Member

    What type of doctor diagnosed you with fibro? My PCP gave me the possibility of me having fibro. I go to the rhummy on Monday and I'm hoping he can give me a hard diagnosis.

  2. kch64

    kch64 New Member

    I was sure I had it due to the symptoms and all the tests that were run and came back negative.

    Then the Rheum Doc said yes.

  3. cczub

    cczub New Member

    That's about where I'm at... My doc mentioned it to me and I started researching it on my own and damn.. what a match!! Two of my wife's aunt have it and when I explain my symtoms to them they say it sounds like fibro too.
  4. dononagin

    dononagin New Member

    diagnosed with CFIDS 10 years ago by an oncologist.. Yeah.. I was that sick.. they thought I had cancer or aids at first because my lymph nodes were so swollen and I had awful lessions.. I was a very sick girl.. they tested me repeatedly for lupus as well as a host of other auto-immune diseases.. after 10 years of this I was diagnosed by a rhumie.. cfs/fibro..
  5. getfitat40

    getfitat40 New Member

    My GP concurred and sent me to a Rheumy who confirmed it. Since then I have 2 other Rheumy's confirm it too.
  6. Bailey-smom

    Bailey-smom New Member

    I still see both but tend to see Neuro more because PCP keeps taking me off meds that Neuro puts me on. lol

  7. tngirl

    tngirl New Member

    A physical medicine specialist
  8. cczub

    cczub New Member

    My PCP has been pushing depression for a while and I finally gave in and let him put me on the meds for it and figured it couldn't hurt. If on the meds the symptoms eased and I was able to sleep, then that was the answer. I did 2 months of Lexapro and Xanax with no change then he just told me to see a shrink. I told him that I didn't need to as I was not depressed so he stopped all my meds cold turkey. I asked him for a sleep aid like Lunesta or Ambien and he said, "let's wait and see what the rhummy thinks". So now I'm in a week window where I'm supposed to be off the meds.. but after some advice am still taking the Lexapro as I was told I shouldn't stop that cold turkey.

    Just trying to get an idea on who I should be seeing for this!
  9. nonnie1967

    nonnie1967 New Member

    came from a rheumatologist. Several months prior to that, I had suggested the possibility to my GP. He said it was possible, but he didn't see any benefit to diagnosing it if I DID have it because "all we can do with fibromyalgia is treat the symptoms anyway, and we're already doing that with you."

    Fast forward several months. By this time, I'm feeling much worse, and I've begun to experience severe pain and tingling in my hands. My GP sends me to an orthopedic surgeon to rule out carpal tunnel syndrome, then to a neurologist for an MRI to rule out Multiple Sclerosis and other nerve tests after the same symptoms begin in my feet. After all of these tests come up negative, I ask him "Don't you think it has to be fibromyalgia?" He says "There's just no doubt." I beg him for a referral to a rheumatologist - "I just need to KNOW, so I can stop WONDERING what's going on every time a new symptom pops up!" He agrees. A few weeks later, my appointment time rolls around. My husband goes with me, and my wonderful rheumatologist confirms our suspicions.

    She begins the appointment by saying "Tell me your story." (Wow! Where do I begin?) When I tell her that we had suspected FMS for some time, she says "But you tapdanced around it? Chickens!" with a merry laugh. And we ALL laughed. She spent nearly an HOUR with us...how FREEING it was to talk about the journey with someone who understood. :)

    ETA: Sorry, I realize you just basically asked what time it was and here I am telling you how to build a watch! ;-)[This Message was Edited on 12/02/2005]
  10. millennia

    millennia New Member

    My GP diagnosed me.
  11. lovethesun

    lovethesun New Member

    and then to a rheumatologist for 2nd confirmation
  12. hopeful4

    hopeful4 New Member

    CFIDS diagnosis in 2000 by my naturopathic doctor. This year diagnosed also with FM and Lyme Disease by an MD at the Fibromyalgia and Fatigue Center.
  13. libra55

    libra55 New Member

    I was diagnosed with FM by a rheumatologist, in 2000.

  14. JPach007

    JPach007 New Member

    My GP diagnosed me after I have been seeing him for 10 years (along with my sleep Dr!) and when I brought Fibro up, he said he thought thats what it was, and come to find out, I have been on just about every medication over the last 10 years that folks like us try! He thought my problem was due to my RLS at first..
  15. Musica

    Musica New Member

    Unfortunately, not all rheumies believe in FM and that can be a hard thing if you end up with one of those!

    My PCP believes in FM because he has mentioned it a few times. However, I was seeing a rheumy before PCP. Since PCP was making some conflicting and confusing statements about RA, I think rheumy asked him not to interfere and PCP has been very careful about how much he says. He just makes statements like "FM can cause overall muscle aching".

    I still don't have a firm diagnosis, and my rheumy not only firmly believes in FM, but that is his main interest. I don't have such obvious tender points that he can't help but make the diagnosis, but even if you do, don't be too surprised if you don't get a FM diagnosis right away. I have finally (this week) been indirectly told that I am on the continuum that leads to FM. I am concluding that he means I have mild FM since I don't have IBS, TMJ (although I do grind my teeth), and other conditions that can accompany severe FM.

    FM is often a diagnosis of exclusion, as you may already know. Some rheumies try to rule out other things first, or find out what else can be contributing to symptoms, like sleep apnea.

    I hope you DON'T have symptoms so severe that you can't help but get an immediate FM diagnosis! But, it can be a frustrating road, not having a firm answer. Believe me, I know, I've been trying to get one for at least a year! I have read many times that the average for a FM diagnosis can be 5-7 years...