Who else has nerve issues with these DD?

Discussion in 'Fibromyalgia Main Forum' started by kat-E, Feb 18, 2006.

  1. kat-E

    kat-E New Member

    I know we suffer from pain in muscles joints tendons gut head bladder and female parts and we are totally exhausted much if not all of the time...

    I was just wondering if any others deal with neuropathy or nerve pain as well? I do not know for sure if this is from FMS/CFIDS or something else.

    Come to think of it when I went to the neurologist he said it was from FMS. I guess I am confused by this. If it is not supposed to effect nerves, how do I have nerve pain?

    Also, could the incessant itching be a nerve issue?

    Sorry all, just thinking out loud here...

    Thanks for any replies in advance.

  2. Crispangel66

    Crispangel66 New Member

    I know I have pain from nerve problems but I also have diabetic neuropathy.

    However my sister in law has firbo but doesn't have neuropathy but she does have the nerve pain.

    So I do believe it comes with this DD.

    I also believe the incessant itching is nerve related.

    Know that you are not alone.

    I suffer alot from this, more lately than usual.

    I hope this helps you, Pamela
  3. Wilted_rose60

    Wilted_rose60 New Member

    Could be a pinched nerve. I have FM and also pinched nerves in my foot, hand and my shoulder. I also have nerve pain from the herniated disks in my back. It's bizzare, but I've got to the point where I can actually tell what the pain is caused from. Each type of pain is unique in how it affects my body. That makes me kinda sad.
  4. i do think its a nerve damage issue.this is what the neurologist told me back in 1999,id been told in 1995 that i have fibromyalgia and ME chronic fatugue syndrome.anyway ill just tell it to you the way it was explained to me back then.
    i was asked has anyone in my family got or had reumatic fever.i told them yes my mum got that when she was 14 years old,this would be 1940.she had woke up with a very high fever and couldnt move any part of her body,total paralasis,thats what i got too.
    anyway after being told by my specialist that my blood work hadnt shown up MS and other things.i was told this..
    have you heard of a illness called fibromyalgia and ME chronic fatigue syndrome? i said i hadnt.well he said,a virus has traveled up your spine to your brain and you have this horrible condition,and because you have had to cope with the pain for many years you have now gone onto develope the depression know as ME chronic fatigue syndrome.theres no cure so you must just try to live with it im affraid.
    he then said have you noticed any knumbness in your fingers? i said yes in the middle finger of each hand,but id thought it was due to my hobby of playing guitar.
    anyway next he asked me..can you tell the difference between walking on a warm carpeted floor,and then walking on a cold concrete floor (if its dark) i said no.and when i stand in a room with my eyes closed,i get sort of dissorientated,my husband said he notices that while im standing there my body is swaying backwards and forwards,although i myself am not aware of this,then my body falls over.
    so he concludes that i am one of a rare group of people at this hospital that has got nerve damage due to my fibro/fatigue illness and my nerve endings have died off and so my brain isnt getting signals from certain parts of my body..im now not getting sensations of my bladder and bowel needing to be emptied.
    i have no sensations in my legs,you know the sensations of feel and touch,but i can tell if someone was to kick my leg or pinch the skin on my arms.
    i do have a very large swelling on the lower spine.my mum used to have this also.i wonder what it is caused by,but cant get the doctor to be honest with me,he just ignores my question.it comes and goes so i wonder if its some spinal fluid collecting,,who knows.
    i can stick pins in my body and not even feel them.the neurologist says thats due to this rather baffling illness of which they dont much understand at this moment in time.
    so id say nerve damage does definately happen,but how did it happen in the first place? i still dont know.i just woke up one morning paralised just like my mum had years earlier.

    kind regards
    fran xx
    [This Message was Edited on 02/19/2006]
  5. matthewson

    matthewson New Member

    is what I am mostly left with after a hysterectomy triggered my FMS almost 3 years ago. That may be why tramadol and neurontin together work so well for me. I don't get the excruciating spinal pain I got early on, but am only left with a pain I can only describe as skin pain that feels like all my nerves in my skin are on fire or frost bit. It is so hard to describe actually. And I also am extremely itchy all the time!

    I have tried to go for awhile without my tramadol to see if I could stand it because really, the pain is not intense and horrible, but I can only stand it a few hours because it is SO ANNOYING and hard to deal with for any length of time. So, I resort back to the tramadol and neurontin which keep it mostly at bay. It just amazes me a pain that isn't sharp or cramping pain, can still be so debilitating!

    I liked one of the previous posters info from her Dr. about knowing when you are on carpet or hard surfaces. My jaw dropped when I read that! My feet are one of my worst problems and the podiatrist kept telling me it was plantar fascitis and I really kept thinking it was more of a Fibro. foot type of thing. I think I was right! On carpet, my feet feel fine. Put me on a hard surface and my feet kill me after awhile.

    I guess I have come to the conclusion that I am left with the neuropathic pain and if tramadol and neurontin work okay for me I should be grateful that they do and just take the meds. It is SO frustrating though to have the initial BAD pain go away, only to be left with this.

    Thanks for listening to my rant! Take care, Sally

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