Who Subscribes to this theory

Discussion in 'Fibromyalgia Main Forum' started by NyroFan, Jan 13, 2007.

  1. NyroFan

    NyroFan New Member

    Hello all:

    I heard a woman in an elevator say that her sister has fibromyagia and she takes no pain medications at all.

    She said she is in agony when she wakes up, but gets started with her day anyway.

    Supposedly she gets through the day with little pain until she returns home and is aching like all heck.

    Has anyone heard of this as a way to live with fibromyalgia????

    [This Message was Edited on 01/13/2007]
  2. Lynna62

    Lynna62 New Member

    It sure soesn't sound like she is setting herself up for a very restful night's sleep if she gets home and is aching like all heck.

    I will be glad when the day finally comes when I no longer need pain meds. In the meantime, I have them and I use them.

  3. AllWXRider

    AllWXRider New Member

    Her FM flares up and down. She did test positive for Epstein-Barr virus and is taking Olive Leaf Extract, ALA, C and Systemic Enzymes.

    Her condition has improved to the point that she even has stopped using Neurotin (Gabapentin).

    Instead of treating the symptom (pain), we found that the problem was Epstein-Barr and attacked that instead.
  4. katvwolf

    katvwolf New Member

    I remember my biology teacher in high school used to say that you'd feel better if you just went about your day as normal if you were sick. I find this to be true when I have a cold or bug, but not my fibro!
  5. FibroPainSufferer

    FibroPainSufferer New Member

    She doesn’t take anything for the pain??? I’ve heard people say they have a high tolerance for pain but the few people I know who have fibro all take something for their pain.

    I can’t imagine going through my day with the way I feel when I first wake up in the morning! God bless her!!!
  6. enjoysue

    enjoysue New Member

    To me it sounds like she really doesn't have fibro but instead something at home is making her tense. She could also not be sleeping well at night which is making her stiff and sore and that could be something as simple as osteoarthritis. Just my opinion and not really knowing her or her story.

  7. musikmaker

    musikmaker New Member

    I use pain meds but have to say once I went on cymbalta my use of pain meds went to an as needed basis. So, I could say I have Fibro/CFS and use very little pain medication.

    Also remember that we all have different levels of pain tolerance. Also the symptoms wax and wane. At times in my life I have more pain and at other times different symptoms come to the fore front.

    We all handle management of our symptoms the way we find works best for us. If someone chooses to live with the pain, they have their reasons.

    For myself, I'll take the meds and be greatful they exist!
  8. FibroPainSufferer

    FibroPainSufferer New Member

    I have to agree with Enjoysue. If this woman doesn’t take anything during the day, then it’s probably something at home that makes her stressed.
  9. kriket

    kriket New Member

    Some can handle the pain and some cannot. That's what med's are for, for the ones that cannot handle it.

    Good for her. I'm glad that her pain is bearable enough so that she can limber up and shoot through her day. Sounds like she has a mild case of it to me.

  10. justjanelle

    justjanelle New Member

    I have a prescription for a pain medication that is totally ineffective, so I end up not bothering to take it. And it's all my doctor will give me.

    I don't start the day in "agony", but am sore and fatigued. I am less sore and stiff when I have been up an hour or so.

    I've recently tried going back to work part-time (substitute teaching), and I find that as the day goes on I not only become more fatigued, I also hurt more. By the end of the school day, I'm one solid knotted-up, spasming muscle and can barely move, let alone go home, fix dinner and fall into bed. I can only work about every other day -- I have to have the second day to recover.

    So maybe it's not the returning home that causes the pain. Maybe it's just that it builds up during the day and by the time she's done and heading home it's just built up so bad she has to complain about it.

    Because, remember, you were hearing this second-hand -- and heaven knows my family doesn't seem to really understand what I go through! Probably hers doesn't get it either!

    Best wishes,
  11. happycanuk

    happycanuk New Member

    NOBODY can judge another persons pain. Some people, need very few meds to get through their day, others use pretty heavy stuff and still have pain.

    As far As RA and OA - again pain is pain. If the person above thinks that people who have OA don't suffer from chronic pain, then they don't understand that. RA is painful, but so is OA. People who have OA may not be in jepardy of dying from it, but they live with extreme pain each and every day. I should know, as I am one of them!!!
  12. FibroPainSufferer

    FibroPainSufferer New Member

    What is “OA”?

  13. happycanuk

    happycanuk New Member

    OS is Osteoarthritis. This has had me disabled for the past 10 years, along with FM, for the past 7.
  14. lenasvn

    lenasvn New Member

    I have OA in my lower spine and hips as well as knees. the pain in my spine can be absolutely horrible and I have high pain tolerance.

    Either way, I am not sure what you guys will think about this, but my mother have severe FM since 30 (?) yrs back, and she doesn't take much for pain. I think it's also about finding effective treatment. If you have other health issues, like my mom hhas an enlarged heart, she have had 2 strokes- there is a risk in taking heavy pain meds that she is not willing to take.

    Her pain tolerance is enormous, I have seen her skeleton mis-shape from years of pain and tense muscles. In her back it has caused scoliosis. Muscles have torn off in the shoulder so an arm fell limp, it had to be surgically re-attached. I am just saying that because someone doesn't take pain medication doesn't mean that their case is mild, or wrongly diagnosed.

    I don't know the person these people were talking about so I couldn't say "Nay" or "Yey" in that case.

    Many hugs to all!
    [This Message was Edited on 01/13/2007]
  15. CanBrit

    CanBrit Member

    Some people, overtime, develop a state of psychological control over pain. While this may sound like a good thing, it can also lead to great injury. I've known some people, those with severe arthritis, cancer and other chronic pain conditions such as ours, who've suffered severe burns, broken bones and new health concerns that have gone untreated because they are able to shut the pain down.

    What scares me about this, is that they are really difficult to treat with medications. The same impulse that mentally fights the pain also fights the medication.

    I think a person's pain is almost impossible to define by degree. We all have different levels, controls and therapies that come in to play. For myself, I make my decisions on the use of pain medication as a part of my quality of life. If pain is reducing that quality, then I take meds.


  16. Mini4Me

    Mini4Me New Member

    From all the research I've done on pain, and my talks with pain management specialists, the reason you want to get your pain under control is so your brain doesn't rewire itself and make treating the pain even that much more difficult!

    When I balked at taking a long acting painkiller, and told the doc that I should just take a painkiller as needed, he said, "No, the idea is to keep chronic pain under control at all times so your body doesn't rewire itself, thus making it harder to keep the pain from getting out of control." So, I am now on the long acting med and am a believer.

    Twenty-seven years ago I went through the worst pain of my life during childbirth when the doc pulled my daughter out with forcepts without any painkiller. It broke my tailbone and put my body in shock. They wouldn't release me from the hospital for 5 days! During that time, natural childbirth was "fashionable", and being young, I was determined to show the world I could give birth without so much as an asprin!

    Yes pain is very personal and variable. Each of us should listen to our bodies and react accordingly, and never let the pain take over our lives, even for short periods of time.

    A good site on pain is: americanpainfoundation.com

  17. California31

    California31 New Member

    Pain specialist I went to, who helped me tremendously....indicated: pain begets pain.....so very important to get it "under control" as best as possible...to short circuit it...if you will.
  18. Dee50

    Dee50 New Member

    It sounds more like CF to me. I've lived that way in the pasted. Push..push..push til you can't push NO MORE :)
  19. Jordane

    Jordane New Member

    If she can live without pain meds; Good for her!!!

    I cannot,but everyones pain tolerance is different.Without my pain meds I would NOT be able to function!!!

    Would Not get ANY sleep!!!

    It IS necessary for ME.But again each one is different!!

  20. aubrygreen

    aubrygreen New Member

    Like Prickles, I really don't take many pain meds. I have subscriptions for vicodin and tramadol as well as a multitude of over the counter pain killers, but none of them work effectively. The tramadol might as well be sugar pills, and the vicodin's not much better. The best I can do is when I'm in more pain than I can stand, I take a couple vicodin and that usually puts me to sleep. It's not really a painkilling effect, but at least I don't have to actively deal with the pain while asleep.

    I used to take over the counter meds like candy, until I ended up with a stomach condition from it. Now taking them just makes me feel sick, and doesn't do a damn thing for the pain.

    I suspect that this woman may be in a lot more pain than her sister realizes, but she hasn't found anything that works for her to treat her pain, so she just endures it.

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