Discussion in 'Fibromyalgia Main Forum' started by sweetpotato, Sep 5, 2003.

  1. sweetpotato

    sweetpotato New Member

    I was told Provigil has helped alot of people. I mentioned it to my doctor and she said "That drug is made for people who can't get out of bed." No shit! Aren't I one of those people. How do I get help from doctors who aren't open to new things? She completely dismisses what I say sometimes and it is very frustrating. I want o change doctors, but I have been with her for a while now...and every time I want to leave she claims she is doing everything she can. Somehow I don't believe this. Anyone have advice.....?

    EZBRUZR New Member

    Have ya investigated other DR's that treat your Conditions in your area. Maybe a phone call or 2,check their Sites,ASK What they do for what you have. So many DR's So Many Treatments,no cure or cause. Big World ,please do not stay Confined.
    Is this the DR that has treated ALL of your issues?My medical Record says my sister is a street drug abuser,do to this, MY dr is Very cautious when giving Any meds to ME that may be misused or addictive.

    [This Message was Edited on 09/05/2003]
  3. jat

    jat New Member

    Hi Sweetpotato,
    I can't tell you how sorry I am that your doc doesn't see that Provigil can be a key component in vastly improving your quality of life. No one wants to spend all day in bed.

    Yes, it IS a controlled substance and the FDA are watching for over prescribing of it. It was designed for narcaleptic patients. That should mean exclusively. It's a relief for us poor fm/cfs folks.

    I didn't know what Provigil was, it was my small town rural doctor (fresh out of med school) who recommended I try it in order to keep getting up and going to work. Plus ... it turned out I tested positive for epstien bar, but we didn't know that at the time.

    It has changed my life (you can tell her that for me). I found that most the the other meds they use to treat fibro tend to make me more tired (you know what I mean). Provigil counters them nicely. I was about to give up on trying to work, but now I can make it through the day.

    Try finding an article on Provigil and it's positive uses to take to her, maybe she just doesn't know enough about it. Maybe she does and is just afraid it's too strong. She's never been in our shoes ... how could she understand.
    Good Luck!!
  4. keeponsmiling

    keeponsmiling New Member

    Sweetpotato: Your doctor needs to be educated a bit on Provigil. It isn't just for people "who can't get out of bed". Although it was orginally marketed for those with narcolepsy, a serious sleep disorder where individuals have uncontrollable urges to sleep during the day, the definition of the disease itself has broadened significantly over the last year or so to include such disorders as sleep apnea and CFIS. (Incidentally, I've been using a CPAP machine for sleep apnea for close to a decade now.)

    Provigil works directly on the portion of the hypothalamus that controls our sleep/wake patterns. In CFIS/FM patients, this balance is many times completely out of whack. Provigil helps to "re-set" our body's natural clock.

    I have been on a very low dose of Provigil now for over a month, and it has literally given me back my life! Of course, it's not for everyone. What works for one doesn't mean it will work for another. But my doctor felt I met the criteria for Provigil, so we gave it a try.

    Let us know how things go for you. :)


  5. smiles4miles

    smiles4miles New Member

    Hi Sweetpotato,

    If I did not take provigil everyday I would never leave my bed. It is the only thing, so far, that keeps my brain alert enough to function. I had not heard of it prior to my doctor's recommendation of it. I have had my share of doctors who do not care to investigate other possible treatments other than those they are familiar. But there are many doctors who are willing to work with the patient and go along with any suggestions if it would help the individual. Keep searching... Since I don't know the details - is your current doctor a specialist or gp? Maybe she could recommend a specialist who would be willing to comply with your ideas & suggestions?
    Best of luck in your decision making.
  6. kjan9

    kjan9 New Member

    Hey girl, hope your doing better did you get my message the other day? When you were at wits end. I have issues with dumb doctors myself. Read what happened in my doc visit when I asked for my vicodin refil and wanted to try provigil. It's under Want to vent take charge of your life. Although I forgot to touch base on the taking charge part.
    Reply I'd like to hear from you. could use a friend.
    Kjan9 (Karen)
  7. Maple

    Maple New Member

    I take provigil and without it I wouldn't be able to crawl out of bed. It helps keep me awake enough to sometimes drive myself to a doctors appt. Without it my life would be totaly over. My problem is I can't tolerate a high dose, or my feet, legs, hands, arms get all pin prickly. Thus I need to stay on a low dose.
    My other problem is my insurance refuses to pay for it because I don't have a diagnosis of narcolepsy. I have sleep apnea, and fibro but my insurance refuses. In my opinion they are only saving money with total disregard of my health. Within 1 more week I will loose any source of income when my short term disabiltiy runs out. Right now I am paying $148.50 per month for my providgil. I am not going to be able to pay for another refill and don't know what I will do.
    Tell your doctor you want a providgil prescription or find a new doctor. This is your life.
    [This Message was Edited on 09/10/2003]
  8. reva727

    reva727 New Member

    I would love to get Provigil but I have Blue Cross insurance and evidently I don't have the right disorder to qualify for it. My doctor gave me a prescription and I got ten of them just to try it out. It did give me a little bit of a headache but right now, I'm taking ritilin and it just isn't doing the job.