Why can't I sleep?

Discussion in 'Fibromyalgia Main Forum' started by meowee, Mar 13, 2006.

  1. meowee

    meowee New Member

    I don't understand how I can be so extremely tired but cannot sleep. I go for 24 hours at a time now without sleep. I am exhausted, I go to bed and as soon as I begin to drift off my mind sort of jerks awake and then that's it. My body is so tired but my mind doesn't seem to be.

    I hate to take sleeping pills all the time so I am trying to see if I can finally fall asleep on my own at some point.

    Does anyone else have that sensation of your mind jolting you awake?

    Thanks..
  2. Sue50

    Sue50 New Member

    yes, I have the "mind jolt", not often, just sometimes.
    I take trazodone to sleep and it usually works.
  3. jbennett2

    jbennett2 New Member

    I have racing brain all the time and can't sleep without meds. My body was recenlty covered with a rash that my doc suspected was from the meds so he took me off them. I never would have thought it was humanly possible to go for 2 weeks without getting any sleep. He finally took pity on me and gave them back for 2 nights, now we're expiramenting with other meds, but so far, no luck. My butt is dragging.

    Lack of sleep causes so many other issues that you would think docs would spend more time trying to come up with a solution. My doc keeps telling me I need to relax a bit about not sleeping. HELLO!!! I have a life here, I just can't lay around every day, I have a job I have to get too in order to keep my health insurance.

    I do Yoga, listen to relaxing music, take walks, read, pray, go to Ai CHI....all to help with relaxation and sleep. It's a constant battle.
  4. achy

    achy New Member

    I suppose you have, but I'll ask anyway...

    Have you tried Chamomile Tea? Take about 1 hour before bed.

    Do not read, watch TV or do anything in bed other than sleep (well, sex is ok...lol lol) You train your body to be ready for TV, etc....not sleep

    Some ppl use Benadryl or Tylenol PM. Neither are addictive and it seems to help.

    I use flexeril, a muscle relaxant. I've been on it for 5 yrs. I still wake up, but I can go back to sleep.

    Hope you find something...you NEED sleep for your body to repair. Go to the doc if need be. Meds are better than no sleep!!

    achy

  5. meowee

    meowee New Member

    i will try the tea.

    I have tried all over the counter meds and several RX meds, too. Lunesta did nothing for me, Ambien worked very well but after a few days it made me begin to shake and I did't like that.

    good luck to you
  6. AnnJ

    AnnJ New Member

    Hi,
    I have had lots of sleep problems too. I went to a new Dr recently and he took me off of Trazadone and Amitriptylene and put my on Flexeril and it is truly doing the trick. I sleep like a baby now that it has kicked into my system. Hope this helps.
    AnnJ
  7. spiritsky

    spiritsky Member

    See my last posting on my "progress notes 4 months after starting at FFC" (the link is attached below). It has some information on what I'm doing for sleep and how it's helping.

    http://www.immunesupport.com/chat/forums/message.cfm?id=781262&B=FM#781262

    hope your doing better...
  8. 1sweetie

    1sweetie New Member

    For over 2 years, I rarely slept. I would wake up because of pain, because of Restless legs, because of dreams,nightmares,night sweats, and just because. I would always go to slept. Kind of pass out from fatigue but usually by 2am by was awake.

    I had a sleep study and it showed that when I slept, my body was moving 42 times a hour. Requip for restless legs made my migraines worse and as I tried to gradually increase Mirapex by body went into serious jerks. I had been taking Trazodone for years to help me sleep because of migraines. I was taken off of it for a couple of months to see if it would help my cognitive problems(it didn't) & am taking it again. Oxycontin was added for pain and then Klonopin to help with the Restless legs since I can't take normal doses of Mirapex and to help with soothing the brain. I still did not sleep. Lunesta kept me awake from the beginning and the nights I tried that I had no sleep.

    So I was taking Oxycontin, Klonopin,Mirapex, & Trazodone and still waking up with barely any sleep. By chance my PCP, not the specialist, decided to start me on Lyrcia for the pain in my feet. I was to begin taking it 50 mg for 4 nights & then add day time doses until I reached 300 mg per day.

    Halleugh!!! The night I added the one 50 mg pill of Lyrcia to the rest of meds, I slept all night & did not wake until 10 am the next day. The following 3 nights the indentical results. I do not know why this particular combination works for me but it does. It is a great deal of medicine but that is all the medicine that I take beside supplements which did not work for sleep for me although I still take magnesium in the evenings and B-12 injections every other night.

    I use to dread the night time so bad. Each night I though I could not stand one more night like the one before. I was not able to take the Lyricia during the day. It reacted like Neurontin did with me & made my cognitive problems worse and I had headaches but I treasure that 1 50 mg pill each night and thank God that on most nights, I can get a sufficient amount of sleep.

    Sleep is a prescious thing and I treasure it now. I hope each of you keep trying and find something that will help.
  9. meowee

    meowee New Member

    so many great suggestions and ideas. I thank you all. I am willing to try anything.
    I know that getting no sleep only makes your symptoms worse. Sleep is so important.

    [This Message was Edited on 03/14/2006]
  10. Tisha1976

    Tisha1976 New Member

    I started taking flexeril 1 year ago. It helps me Sleep well. Before that I took benadryl because I didn't know that I had CFS.
  11. OptimusUndead

    OptimusUndead Member

    This is just my opinion.. but if your asking why you can't sleep, and you really want to know. I blieve its our sympathetic nervous systems on almost 24/7. There's been a good amount of studies done on people with CFS and FM, and the semi conclusion is that the Sympathetic nervous system doesn't shut off, so your constantly in a "fight or flight" situation, and your parasympathetic doesn't switch over, or at least not long enough. This IMO is why our brains are constantly "racing" while its being bombarded with impulses from the nervous system, taking away those most needed deep stages of sleep. Interesting stuff.(both part of the ANS nervous system)

    Does me telling you this help your sleep, nope. But if your interested in studies and why, there there it is. Its a little more in depth, thats about it.

    just some FYI

    if your interested

    http://www.immunesupport.com/chat/forums/message.cfm?id=720554&B=FM#720854
  12. Hope4Sofia

    Hope4Sofia New Member

    It's actually an anti-depressant but they've found it to be more succesful as a sleep aid. It helps you get restorative sleep. It definitely helps me.

    Sounds like you've tried a lot of things so I don't know if this helps at all.

    Sofi
  13. meowee

    meowee New Member

    I will definitely look into this. I always feel like my brain "misfires' some way.

    Thank you all so much.
  14. onedaymagpie

    onedaymagpie New Member

    Hi there - I found your description about the brain misfiring or the jolting awake to be very similar to what I have felt. I actually had an EKG done and the Dr said that it showed that my brain waves were uneven from front to back, causing part of the waves to speed up to balance it. He prescribed Nuerontin to even out the brain waves. When I take one before bed, it eliminates that problem - so you might want to ask your Dr about trying Nuerontin. (I know others on this board take it too, some to help pain.) But in my experience, it stops that feeling of drifting off to sleep, only to "jolt" awake.
    Hope this helps
    Mag
  15. kittycamcj

    kittycamcj New Member

    hi, i take 100 mg. of trazadone, i guess it works, i just don't sleep very well at night. i'm thinking of taking 150 mg. of trazadone, maybe that might work better, since i've been on 100 mg. for so long. i think we all have some sort of problem relaxing.
    take care,
    carol
  16. meowee

    meowee New Member

    I am planning on asking the dr about Nuerontin my next visit. I have tried about everything else, but this may just be the ticket.

    THank you all soooo much for your help.xoxo
  17. lauralea443

    lauralea443 New Member

    Klonopin, it has done wonders for me. It really shut off my brain for awhile so i can sleep.

    Laura
  18. onedaymagpie

    onedaymagpie New Member

    sorry - it is actually spelled "neurontin."
    An additional note: given your concern about sleeping meds (which I understand) this might be a good alternative . . .
    if i can answer any questions, let me know
    hugs, Maggy
  19. mbofov

    mbofov Active Member

    I think it would be good to have your cortisol levels checked. Mine were high, which caused wide awake middle of the night insomnia. I was edgy and anxious a lot. I had a saliva test done, and after the high cortisol levels were discovered, I started taking Seriphos (phosphorylated serine) and it helped immediately. It's not a prescription drug. I foudn it worked best when I took the Seriphos in the morning, it has something to do with the natural cortisol cycle of the body. I had the testing done through Clymer Healing Research center in Pennsylvania (they're on the web, we did everything by mail and e-mail, and phone) and I get the Seriphos from them too.

    Also, l-theanine is an amino acid which helps the brain produce alpha waves, it is very calming, and I take two 100 mg. capsules before bed. I think it helps racing brain.

    I also take calcium and magnesium, and 5-htp, and melatonin and with all of this I sleep pretty good.

    Mary
  20. TwinMa

    TwinMa New Member

    It has helped lots of people sleep. Do a search for The Shake or Stormyskye's Protocol.

    It's not meds. It's just a shake you make every morning. It helps balance the brain chemistry, improves mood and does wonders for your GI tract.