AGH!!! Am I the only one who hates the holidays?? I'm thoroughy convinced that Ebenezer Scrooge had FM/CFS!! But besides that, how many times can you tell a friend or family member that you CAN'T go shopping and stay out all day?? That you can't go to a party and be there for hours and hours??? That, God willing, you might just have the energy to make it at all!! I'm SOOOO SICK of this! I know that people are 'trying' to include us in what they think is a 'normal' life, but WHEN do they just STOP AND LISTEN TO US??? This is normal to us!! OK, here goes: if I don't get in bed for a nap by noon-forget the rest of the freaking day!! No matter what time I wake up in the morning, I HAVE to lie down again later for at least an hour or two. Yes, I used to work full time-for almost 30 years, but HELLO! I am on SSD now-DUH! There's a reason for that! Also, if I have to get in and out of your car, walk around while you are looking for 'deals' in the store, shopping for food, looking for the right color of make-up for more than an hour-forget the rest of the WEEK! I only have so much energy to go around, and I'm sorry, I don't want to waste it on YOUR SHOPPING! Why do they think they're doing us a FAVOR asking us to do these things?? I have explained to everyone close to me that I have to call the shots on how I feel-no one else in the whole world knows how I feel except for ME! I want and need to go to a church banquet this Friday evening-I'm doing it mostly for my husband. SO...it is absolutely essential that I stay as low as possible for ALL of this week in order to go with him, be there for at least 2-3 hours, and actually not be in excruciating, debilitating, screaming pain. And then our friends walk away and say that WE are the ones who want to isolate ourselves from society. When will they ever GET IT???? Sorry-I just NEEDED to vent tonight! THANKS!