Why do my arms and legs feel like lead?

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by Ninn, Jul 23, 2004.

  1. Ninn

    Ninn New Member

    Can anyone tell me? I've done nothing but sleep for 2 days now. I got my fibro diagnosis over a year ago, but my insurance just quit paying for the specialist and the physical therapy. Between the doctor, the therapy, the shrink, and the specialist , i see at least 2 docs a week. Sometimes more. Now my insurance says they don't have to pay because it's not a life threatening illness. Medicall Assitance, of all things!!! I have been out of work for over a year. No SSD or SSI, just my hubby's pay. We're just getting bacl on our feet after being homeless-(another side effect of not having my income anymore). I just don't think I can handle anymore. Now the doc is looking for a brain tumor to explain my damaged hearing. This meant I had to reschedule my ssi hearing. What am I doing wrong? I try to keep up with all of this, but I spend most of my time just writing in that stupid symptom journal they want. How am I supposed to keep up with what my family needs? TOday was just the last straw. The welfare caseworker came in and bitched cause the dishes arent' washed and the litterbox needs scooping. OF COURSE THEY DO__I"M NOT STUPID!! He just doesn't get it!! My kids are off swimming, and hubby is at work. I cant do it and he just gives me more stress!! Just means more xanax today-which means more sleep. Can't lift my arms to brush my hair cause they feel so heavy-but of course I can run right out and scrub the litter box and wash the brakfast dishes. Then I'll sleep for another 2 days to recover from it. I feel like I'm losing my mind. What do I do next?
  2. J-in-Ohio

    J-in-Ohio New Member

    but I can sympathize. I'm about in the same boat. My arms and legs feel like lead all the time (along with my eyelids). We're having a hard time making the bills on my husband's pay--I had to quit working (after 21 years at the same place) in Jan. 2001. I am so flippin' tired all the time, I just can't deal with it much longer. I don't have a welfare case worker to pour on the stress...just the person I'm married to. Trying to make dinner is such a sore spot with me. I'm usually in tears trying to fix something and sometimes I have a hard time just boiling hotdogs! I guess changing the diet has some positive affect on some people but I honestly don't know how they do it when I can hardly boil hotdogs.
    It seems a bit hypocritical for me to say "hang in there" 'cuz I sure don't feel like it; but I guess it's all we can do right now. Hope things get better for you.
  3. Lynda B.

    Lynda B. New Member

    I try to dissect things one at a time. Your situation is extremely overwhelming.

    I try to pick a time of day my head is the most clear. I have a seperate journal for this time that I do this. List all of your "challenges" (that is a code word for problems so you look at things positively). Then I began to try and think of a solution(s) for the various challenges. If I have insomnia it is in the middle of the night and I light candles for some serenity. Or when the kids and husband are gone during the day.

    I also try to find something that motivates me. Sometimes I just have to get piss-off about things and that actually is the stimulus to give me some energy to solve things. Even fight for whatever!

    Music is an extreme motivator for me. I make CD's that have songs on them that get me going. For example, the first four songs on the CD are upbeat but apply to MY situation.
    1. A song by Chumbawumba - It basically says over and
    over again, "I get knocked down but I get up again
    ...ain't never goin to keep me down..."
    2. Is by John Mayer - he sings about how other try to
    keep our thinking inside the box and what the
    "real world" is. What is real is different for all
    of us. Think outside the box.
    3. The next one is about breaking out of the mold,
    etc.
    4. The next is by Dixie Chicks called Truth No. 2. It
    starts "You don't like the sound of the truth
    coming from my lips...". It is meant to be em-
    powering especially for women.

    I also get terrible fatigue in my arms all the time. I break up tasks like folding clothes or hanging them up or just doing my hair into small increments.

    Maybe you could request a female social worker that does have children. I have often found that men just don't get it.

    I don't know where you live but I would take any help I could get from any friends, relatives or support groups.

    I hope others have tips for you too.

    Take care,

    Lynda B.




  4. Jean C.

    Jean C. New Member

    Sounds like you are having a tough time.

    I know what you are talking about. My arms and legs seems to be tied to the floor.

    It sounds like you need to have your children help with litter box and dishes. (I did not check their age) Maybe if they are to young ask them to brush your hair, even small children loves to do this.

    Maybe you could ask for a social worker that helps in getting your things in order so it would be easier to keep up.

    Just take care of your self your husband and children will have to help and in the end they will see how much better you get along.

    One day at a time for us.

    Jean C.
  5. linda123

    linda123 New Member

    Hello,
    I have had the same problem for 5 years now. What you have is severe fatigue. I too, sleep for 2-5 days at a time and limbs feel like weights on them. Then again, I will stay a wake for 1 to 2 days straight. Called a sleeping disorder. I live in Oregon and have tried now for 3 times to get help from S.S.A. I had to quit my job of 6 years 3 years ago. I'am single and thank god and my family help.
    I have printed out all info. on fibro. from the net. I have several 3 ring binders full of info. I wish you luck in the future.
  6. stillafreemind

    stillafreemind New Member

    I thought I would just address the legs and arms question. I hate that feeling! Like you have rocks tied to ya and can't move.

    I was wondering...have you ever had your adrenals checked? Not just your thyroid..that would probably come back in the "normal" range..but your adrenals?

    The reason I ask is...fatigue and that awful heavy feeling were my biggest complaints..they kept me on the couch. I got my adreanls tested and treated and those two problems have REALLY improved!

    I can judge if my adrenals are getting taxed or exhausted by my legs starting to get that feeling again. I treat them and seem to feel better right away.

    Hope this might help you in some way. ...Sherry
  7. LITEFLAMES

    LITEFLAMES New Member

    Hello,
    CindyG. Here ,I Also live in ohio as one of you'r other post's -r- from,Anyway ,AS Far As $$$$$ Cant help, But I know About the Arm's & Leg's,, I hate it, Cant hardlie stand the pain & heavness, This is what I'v Found For Myself Anyway: From our board , I herd & followed the advise (Magnesium)1200mg's twice a day, I was told to start off w/ 400mg's One Pill & have worked my way up to 3 pill's twice a Day, Its not Gone ,But I couldn't even think about taking a walk before then, And I keept Filling As if I Could / And needed to walk,, Well now I can,
    So I hope this help's
    cindy G.
    GOD BLESS
  8. DeeL

    DeeL New Member

    That is the feeling....like lead weights tied to your arms and legs. Some meds I've tried make it worse. I have high BP and just tried adding a second BP med (can't get the "white coat" BP under control) and boy that really made that feeling worse. So if you are taking meds that could be making it worse. I do think it is part of this disease however. There are days just putting my hands on the keyboard to type is really hard. It is also the feeling I get in my legs if I try to shop or walk too long. After a while they get so heavy I wonder sometimes if I'll make it back to the car.
    Hugs to ya',
    Dee