Why do Rhuemys insist on anti-inflammatories for fibro.

Discussion in 'Fibromyalgia Main Forum' started by mariac2000, Dec 6, 2002.

  1. mariac2000

    mariac2000 New Member

    I have read story after story about fibro patients being put on anti-inflammatories and get little to no relief. The docs must know this. I am refusing anti-inflammatories from my doc and asking for something stronger than what I am on, which is ultracet. It does little to nothing. I have not heard back from him (he's out of the office today) but I tried 2 times yesterday and all I got was his nurse trying to push more anti-inflammatories on me. I am suffering badly, and this weekend is my birthday and my 4 yrs old birthday, and because my doc will not give me the meds I need, I will probably miss his party. My heart is breaking, my fibrofog is intense, and if I don't get relief from this pain soon, I don't know what I'll do.
    Thanks for listenening,
    Maria
  2. mariac2000

    mariac2000 New Member

    I have read story after story about fibro patients being put on anti-inflammatories and get little to no relief. The docs must know this. I am refusing anti-inflammatories from my doc and asking for something stronger than what I am on, which is ultracet. It does little to nothing. I have not heard back from him (he's out of the office today) but I tried 2 times yesterday and all I got was his nurse trying to push more anti-inflammatories on me. I am suffering badly, and this weekend is my birthday and my 4 yrs old birthday, and because my doc will not give me the meds I need, I will probably miss his party. My heart is breaking, my fibrofog is intense, and if I don't get relief from this pain soon, I don't know what I'll do.
    Thanks for listenening,
    Maria
  3. catgal

    catgal New Member

    Hello Maria~~There are so many physicians and specialists that will not treat chronic pain with narcotic medications. Over a course of 3 years, my Rheumy would only treat me with anti-inflamatories, anti-depressants, and flexeril. None of which helped. He refused to give me any kind of narcotics. I quit seeing him because he was of no help to me.

    Then I saw physicians who either didn't believe in FM, or the ones who gave me benefit of a doubt would not prescribe anything strong enough to help.

    It wasn't until I was diagnosed with degenerative disc disease with several discs deteriorated and several other back problems that I found a physician who would treat chronic pain. He started me out on 10mgs of oxycontin 3x's a day along with 3 10mg percocets for breakthrough pain. The oxycontin provides around 8 hours of slow release long-term relief while the percocets are fast acting. However, after being on these meds for 17 months, the 10mg oxycontin has lost its effectiveness, and I need my physician to up the oxy to 20mgs. Except for the percocets, I feel that I am taking nothing and have to be conservative on how many percocets I take a day to relieve the pain or I will run short a week before my refill date.

    The pain relief from the narcotics has been a God-send, but the downside is the eventual physical dependency your body gets. Some people say they don't get physically dependent on their narcotic medications, but after 17 months of taking these narcotics without abusing them--my body is physically dependent on them.

    Keep looking for a physician or specialist that is willing to treat chronic pain with narcotic medications. They are out there, but sometimes difficult to find. I had to go through alot of $trial & error. But the immediate relief I got when I started on narcotic pain management was a miracle. Don't give up--just keep looking, asking around, and you'll eventually find a caring, concerned doctor who will help you. Best Wishes, Carol...
  4. pam_d

    pam_d New Member

    In my opinion the rheumys who continue to treat FM patients with anti-inflammatories (like Vioxx) in the absence of any other inflammatory condition (like RA) are either not at all knowledgeable about FM to begin with, completely misinformed, or do not believe in the existence of FM so refuse to treat adequately. Obviously there are good, FM-aware rheumys out there (some of our group have them) but many are not.

    I echo your frustration, Maria!! I hope you find some pain relief soon, and a doctor who really understands FM.

    Hugs,
    Pam

  5. LisaMay

    LisaMay New Member

    are a waste of my time. I have been given these time and time again, only to have absolutely no affect on me. I am not inflammed; I am in serious pain. Big difference. Good for you refusing them. Try to find another doc who is more informed about FM.

    I hope you muster up enough energy to celebrate you and your childs birthday this weekend. Maybe that's just what the doctor ordered.... good old fashioned fun! Try to enjoy yourself. Lisa

  6. Wreckless

    Wreckless New Member

    Maria
    I think many Rhuemy's, as did mine, use anti-inflamitory drugs as a way of diagnosing Fibro. Mine gave me Prednisone, after my primary physician gave me Relafen for tendinitis. He then told me that if it gave me no relief after a week, to discontinue it. In this way he could rule out arthritis, and tendinitis, if the medication gave no result. When it gave no result, he gave me Vicodin. Hope this helps.
    Rudy