Why do some see Reheumy's and others Neurologist's?

Discussion in 'Fibromyalgia Main Forum' started by shelby319, Jun 15, 2006.

  1. shelby319

    shelby319 New Member

    As I see a Neurologist and he treats mostly Fibro patients, and of course neuro problems, but I was wondering for some time now why I hear almost everyone here see's a Reheumy instead. And I also hear alot of horror stories about seeing your Reheumy's too and how bad you have been treated.

    Do anyone of you have a preference in your Dr's and why? The main reason as I said, is because of the many problems I've heard about how badly you are treated by them or that they can't help you. My Dr. had recommended this great Neurologist, who I really didn't know much about with the Fibro myself and didn't know why I was going to see him over a Reheumy, but my Dr. said these type of Dr's know quite a bit about Fibro and this one he thought was the best in what he did with his patients and this disease.

    Can anyone explain the difference of why you go to one and not the other? As I'm not sure myself!! Or do any of you see both?

    Thanks for any help you can give me!!
    Shelby
  2. ilovecats94

    ilovecats94 New Member

    I was seeing a neurologist back around 1995/1996, and as soon as he realized I had FMS, he didn't want to treat me anymore.

    Never was it ever recommended that I see a rheumy and back then, we had an HMO and I would have needed a referral.

    I've seen a pain specialist with no good results, a psychiatrist with not any decent results, PT with no help from them. The only real help I've gotten is from my family doctor and yet, now he isn't in our insurance network, but we are still seeing him.

    Hugs,
    Faye
  3. hambys97

    hambys97 New Member

    I guess I am seeing both simply because that is what my family doctor recommended. He said it would be a wise thing to have both doctors on board, in case of any future problems they would both have my medical info. I guess I am lucky in that I currently have my family doc, a chiropractor, a neurologist, a rheumatologist, and an endocrinologist. That is in addition to my dentist and gynecologist. I guess I should feel really special.

    Angela
  4. jenni4736

    jenni4736 New Member


    I think it really depends on a certain doctors training and knowledge.

    In general Fibro is treated usually by a Rheumy. Some Rheumy's have just a Rheumy (arthirtis) practice and others are actually Internists with Rheumy practices.

    I think that many (if not most) of the people who see Neuro docs probably have Neuro issues as a primary symptom.

    Perhaps your doctor has done specific training and /or research in Fibro and how it relates to the Neuro field , therefore giving him a broader understanding to help his own patients.

    The bad stories are the one's we remember the most. There are idiots every where including the medical profession. If someones story was reallly bad then we want to warn others to stay away.

    Really exception and compassionate people are hard to find these days (except all here who are wonderful :) ). It makes it truly harder to find a doctor to click with who is easy to communicate to. That is the key, I think.

    I also believe part of the bad experiences are our fault sometimes. We do not always think clear from brain fog. We hurt so we are probably easier to frustrate and maybe sometimes less patient.

    We do not intend to be this way I just think between the meds and brain fog it goes with the bag of goodies and sometimes I know I am not always good at making my point.

    I have either explained this fairly well...or confused you more....HAHAH! This is my best guess. I am sure there are others who know more than my self.

    Hugs to ALL,
    Jenni
  5. Fibrqny15

    Fibrqny15 New Member

    Personally I only see my own Doc because there is so many other issues that go along with fibro and ....
  6. Lolalee

    Lolalee New Member

    I think that most often a Rheumy is recommended for FMS because it has been dumped in the Arthritis "bucket" Since FMS is not an Arthritis illness, many Rheumys don't know what to do with us. This is my own personal experience. I have seen at least 5 Rheumys and not one was able to help me. I think if you have had good results with a Rheumy it is because he/she has taken the time to do research and treats FMS out of the Arthritis "box". I saw a Rheumy for a while who insisted that my memory loss had nothing to do with FMS.

    I've seen 2 Neurologists with good results. They seem to research the neurological connection with FMS.

    Lolalee
  7. shelby319

    shelby319 New Member

    Of why some see Rheumy's and other's see Neurologist's or just your family Dr. I see mostly my family Dr. who is so amazing with all aspects of my health, that he actually surprised me when he came up with my diagnosis and treatment plans!!

    He also wanted to know if I would add him to the list of Dr's who treat Fibromyalgia and CFS. He has been my godsend, that's for sure!! And like you said Jenni, communication is so important even with our brain fog, that he doesn't mind when I come in with a whole list of questions...I just make sure I have called ahead and said to set aside some extra time for my apt. I've never seen a Rheumy, and if there are any good one's I find, then I'll go, but until then I think I'll stick to the Neuro and my family Dr. Of course I have to see the Ortho surgeon for the shoulder surgery, but I've seen him so many times before, he also is very good. I guess I'm one of the lucky ones of people here who have so much trouble finding the right Dr's. That bothers me so much that we have trouble finding the help we need and these Dr's need so much more knowledge about these diseases and stop wasting our precious money!!!!

    Thank you so much for all your help and understanding!!!
    Have a sparkling day!
    Shelby
  8. Yucca13

    Yucca13 Member

    I reffered myself to a physiatrist (in a pain clinic setting) when my general M.D. retired. I knew that I was going to need pain meds and other doctors I had been to had a real problem prescribing them. The other doctors even balked about giving me Ambien for sleep. I didn't want to feel like I was begging and/or apologizing when I had a good idea about what would help me with certain problems.

    I've been with this doctor for a year now and he is wonderful. He listens and is willing to try many different modalities for treating pain. He has the credentials to prescribe opiates and not worry about the DEA.

    He has not been judgmental about trying things that I suggest - whether it be a different pain med or something for energy. I guess he figures it is worth a try.

    There is a real scarcity of rheumatologists in this area. I've been to a neurologist for Reflex Sympathetic Dystrophy, but he wasn't very helpful for treating pain which is my biggest concern.

    Hope everyone finds a helpful doctor!

    Val