Why is this happening to me again?

Discussion in 'Fibromyalgia Main Forum' started by sharina, Feb 6, 2009.

  1. sharina

    sharina New Member

    I have suffered from ME for 11 years. I was at my worst 5 years ago when i became bed ridden for 9 months.

    I have felt that my health has been going down, getting worse for the last year. However, the little breaks of feeling normal kept me going through the ruff days or times.

    Now the last week i been in hell with it. I wake up fatigues and light headed and have it all day. I not able to function in any way.

    My family keep saying, what brought this on. I keep telling them i dont know, i done or took nothing differant.

    Im struggling, i cant go back to being bed ridden again, it will kill me.

    I dont know what to do, please help!!!


    PS: Do you know if taking the same anti-depressant for long period like 5 years can stop working? I take Dosulepin 150mg a night.
  2. Shell36

    Shell36 New Member

    i'm so sorry that you're having a rough time.I was told that we go through remissions sometimes and "flares" sometimes.You didnt DO anything...its just this disease :( I do know that sometimes our bodies get used to antidepressants.I was on one for over five years and had to switch.please dont let anyone put the blame on you...no one would ask for this.
  3. MsE

    MsE New Member

    Sharina, I understand completely. I think the remission/flare business is enough to drive anyone nuts. I have had remissions in the past that have lasted up to three months. The flares last longer, None of this is regular.

    Now I am experimenting with a bit of estrogen, and either the timing was right and I'm in another remission, or it is working. No, I don't feel terrific, but I can manage, and sometimes I feel good. Sometimes, almost normal.

    So I'm hoping and praying that this isn't just another remission of a few weeks, but that my body hasn't been producing enough old lady estrogen and it is actually helping. It seems to be.

    Don't you get sick and tired of having to tell people who ask you to go someplace or do something, "I'll have to wait and see. I will if I can."? Never being able to plan has been a part of this I have really really really disliked. The estrogen, at this posting, is helping.
  4. toddm

    toddm New Member

    Sharina I'm sorry to hear you're feeling so bad, we all know how you feel and wish we could something. I'm coming out of my last flair and am very happy it was only 8 weeks, I hope yours is much shorter.

    I know we all try to blame drugs we're either taking, or not taking for our flairs but I'm starting to think this DD has nothing to do with any of it.

    Keep thinking positive and lean on your family, I know I couldn't make it through without mine and I hope you're feeling better very soon.
  5. Juloo

    Juloo Member

    A definite YES to your anti-depressant question. Zoloft suited me very well for a long time, and then...it didn't. Now I'm on Effexor, and things are smooth sailing in that department again!
  6. ladybugmandy

    ladybugmandy Member

    yes, antidepressants can certainly stop working over time..that has happened to me.

    are you seeing a CFS/FM specialist and trying any treatments? have you been tested for chronic infections??

  7. kellyann

    kellyann New Member

    I really pray you are feeling better. Don't give up hope, go to the doctor and get your meds adjusted. If you are anything like me, I put off going to the doctor until I'm real bad, and that makes things so much worse! I just hate going!

    Find little something that you enjoy doing, I like to watch funny movies, sew a little, crochet, or play music.

  8. sharina

    sharina New Member

    Thanks for all replys.

    I see my GP often, hes a very nice dr, he listens and cares but never comes up with any answers. I always walk out no better than when i walked in.

    There have been talk of changing my anti-depressants or putting them up in the past but i felt scared to change or to go up, i didnt want to go up as im on the highest dose possible.
    I read to go higher is only if your in hospital. But then i was not so ill with this ME as i am now, so i just went on coping with the bad times, knowing there are good times. But now im bad all day every day.
    My GP and Psychiatrist insist they dont stop working.

    Unfortunitly my family rarely help me and to be honest i hate to ask. It only causes friction so i push myself to doing what has to be done. I have 2 daughters and 1 son all over 20yrs living away from home. Im not married or have a boyfriend so every i need to do i do it myself.
    I hate going on and on saying im not well, they dont want to hear it. Probably because they dont know how to make me better so dont know what to say to me.
    So i usually suffer in silience.

    I hate being sooooooooo illlllllllll. I hate not being able to function, to do just every day things that healthy people do without even thinking about it.