Discussion in 'Fibromyalgia Main Forum' started by sapphire, Jan 8, 2003.

  1. sapphire

    sapphire New Member

    I finally got to see my Neurologist yesterday. He diagnosed me with POTS. He said it was caused by the Diabetes.
    He said he wanted me to see a Neurosurgeon for my stenosis and herniated disc. I said fine, thinking it would be awhile before I could get in. You know how long it usually takes to get in to see a specialist. Anyway, they called today and said I have to be in Louisville tomorrow. She said they thought I needed to see him soon.
    The problem is, either he's no good so he hasn't got many patients or I'm worse than I thought I was. I just really don't know what to think.
    When I was diagnosed with Diabetes Dec.20th, I never dreamed it would be the end of Feb. before I can see an
    Endocronologist. When I had to see a Hepatologist it was at least a month. Even my Dermatologist was a month.
    I am really scared. I don't want to have surgery on my neck. I will check out this Dr really good before I decide to do anything, that's for sure.
    Sorry this is so long. I'm just really scared and worried right now.
    Please tell what you think about this.

  2. joannie1

    joannie1 New Member

    Sorry so many things are hitting you all at once it seems. I have seen many Neurosurgeons and to be very honest I don't think this is too abnormal. I know you are very worried though. I think with Neuros they tend to leave slots open for Doctor referrals such as yours. Of course do all your researching and figure out if this is the best thing for you to do. You will have the gut feeling whether he is saying the right thing or not. Just try to not get too upset and like my Doctor says any advice we can get was worth trying. She always says just think of it as getting information to help educate us more. I wish you much luck and let us know how it turns out okay.
    Take care,
  3. sapphire

    sapphire New Member

    Thank you for your concern.
    I saw the Neurosurgeon today and he had had a cancellation so that's why I was able to get in so soon. Am I glad to have that over with.
    He is going to try PT first and gave me muscle relaxers and anti-inflammatories. I hope this helps.
    He does not have an explanation for the weakness in my right leg and the difficulty walking. That concerns me but I will just have to wait and see what happens. That's what he said anyway.
    One good thing was that he does believe in CFS. I was already prepared for him not believing in it. He was very nice and took his time. I also saw a Neurologist Tuesday and he was also very nice but CFS was never mentioned. I'll save that for another day.

    Jelly, I usually like rollercoasters but can I get off this one? It isn't much fun.

  4. joannie1

    joannie1 New Member

    things went well for you saffhire. I knew you were pretty worried about that appt. I hope that PT and the muscle relaxers help you. I have always been pretty confident in Neurosurgeons. Knowing they preform brain surgery I think puts them in a world of their own.
    Best of luck.
  5. ssMarilyn

    ssMarilyn New Member

    is always a last ditch effort to fix your problem. Usually, time, weight loss and some exercises to strengthen your back would help somewhat. I notice that when I put on a few pounds, my back flares up. I have two herniated discs, (It took 10 months from the time of flare-up for my herniated discs to improve to where I felt normal again. That's a loooong time!) and I also have degenerative disc disease, like everyone else does, but mine is advanced due to hard work on the farm, YES, the FARM, when I was a younger person. Too much heavy lifting and handling livestock. Hindsight is 20/20.

    Marilyn :)
  6. sapphire

    sapphire New Member

    Sorry you have back problems but it's good to hear that it can get better without surgery. I also have stenosis and I don't know much about that.
    I don't have any weight to lose. I've gone from a size 9 to a size 3 in about 2 or 3 months. At least that problem is solved. LOL Hopefully the exercises will help.
    Thanks for the support and encouragement. I need all I can get right now trying to deal with all this new stuff.