Worst CFIDS crash – back to ER?

Discussion in 'Fibromyalgia Main Forum' started by ladude, Oct 5, 2006.

  1. ladude

    ladude New Member

    I have bad CFIDS crashes like any normal CIFDSer.

    Last night and today - beyond scary

    Began with hot and cold sweats, shivering like crazy - then the pain and almost in convulsions. Went to ER, (another nightmare) blood and urine all normal naturally.

    I was so weak at times I could not even pick up my legs. Ended up screaming like crazy in ER I was out of my mind in pain.

    Then it went away, then came back, and went away. they gave me iv and it after a while it passed till now. this cold sweaty clamy feeling comes over me and then its like my body starts to shut down or going into shock, I don't know.

    could it be just low blood sugar ie hypoglycemia ?



    [This Message was Edited on 10/05/2006]
  2. fathommm

    fathommm New Member

    I have had simular but WAY less severe things like that. Interesting that the IV helped.......was it saline or medicated.........maybe your body is shaking off the disease like a wet dog with water on his coat..........that's what I'm hoping, at least, hehe.

    See a pain specialist, maybe?

    When that stuff happens to me the accompaning fatigue is sooo bad that I just pass out in bed.........usually for a couple of hours, at least.
  3. ladude

    ladude New Member


    I'm afraid to go to sleep, so I don't wake up so weak and in pain (pain from CFS?)

    it was just saline in IV

    do this symptoms still happen to you?

    life is weird and getting weirder

    [This Message was Edited on 10/06/2006]
  4. ladude

    ladude New Member

    2 ER's in 2 days and never again.

    cold hands bad sweats all over, violetnt shaking and pain so bad weak Can't walk or even lift my legs when attack happens.

    have CFIDS 5 years and never anything like this.

    ER said just breath like you are having a baby, (right).
    and come back if you feel bad again, I did.

    blood work normal again.

    I knew it might be a joke going to ER, they way they talk to you like it's all in your head, they discust me.

    Just when you think you have a handle on this thing. wondering if it could be type 1 diabetes.

    eating salt gator aid and milk seemed to help

    used to go weeks or months w/o a crash, now 4 or 5 times a day, what is going on????????

    take care

  5. findmind

    findmind New Member

    Do you have a regular dr? I really think you need to get to one, poor thing.

    I had those exact happenings at one time. I found eating better really helped me, so it may have been low sugar.

    You also may have low blood VOLUME. It's not found by regular blood tests, and saline IVs are temporary solutions.

    Dr. David Bell had a patient who went to ER two times; the third time, he met her there, and proved she had only 1/2 normal blood volume.

    Please do not suffer with this for too long; try to eat more, and more often to see if it stops the attacks...do NOT worry about gaining weight right now, you need FOOD if you're hypoglycemic. Keep a candy near you at all time; if feel the shaking and chills, pop it into mouth while you get a glass of milk, a piece of whole wheat bread with peanut butter.

    If food stops or lessens the attacks, you have a big clue, so get your diet in order, ok?

    I hope you get the answer to your symptoms and get better real soon...

  6. ladude

    ladude New Member

    Hi Findmind

    yes I think you may be correct, thanks for your kind words.

    Lost 50lbs since CFS so more weight would be acceptable.

    Food just does not look appealing, but my eating needs improving since it seems I feel better if I keep eating. Perhaps just tired of my cooking.

    Afraid to go to sleep last night hoping to keep it at bay. slept 4 hours awake and weak, ate but not balance.

    Rich carlsons letter to immunesupport people was great this month.

    now if I can get through one morning/afternoon with out getting wacked out...........would be a blessing.

    feeling better now, not shaking, sweaty or as stupid -

    thank God and you guys!


  7. lease79

    lease79 New Member

    "this cold sweaty clamy feeling comes over me and then its like my body starts to shut down or going into shock"

    Yep, I get this too, scares the living daylights out of me :( My pulse goes spacko too & I end up to weak to get up or even move. I feel at times like I have to fight to stay conscious.
    Thankfully it has happened less since I changed my diet & got myself onto vitamins & pro-biotics. Not totally gone, but deffinately better than what it was.
  8. spacee

    spacee Member

    Dr. Cheny recommends sipping gatorade throughout the day for low blood volumn.

    I tried chugging gatorade...I am not good at following directions and twice I had chest spasms bad enough for me to wonder about going to the ER. But I think that is an oddity and that the gatorade is of help usually.

    Findmind is really right about that low blood volumn thing.

    And, of course, we are what we eat......which you know.

    Hope you get better very soon.

  9. findmind

    findmind New Member

    thought i'd check up on you...I remember those spells so vividly...once my SO had to pile 5 blankets on top of me so I could get warm and stop shaking.

    I couldn't remember my best friend's name,or answer other questions either; it seemed like a stroke.

    Look, a simple nourishing diet for just now, would be oatmeal (with frozen fruit?) in a.m., or whenever you get up and take meds and vitamins.
    You could add some cinnamon, a few walnut pieces, too. Easy, ok?

    Get a crockpot. Throw in 4 chicken skinless breasts, with or without bones;1 can chicken broth (no low salt for you unless you have high BP) and 2 cans of green verde salsa. Cook on hi for 2 hrs, turn to low for about 4 more. Easy.
    Have any ole kind of veggie with it; if you don't have the energy, broccoli is easy, or snow peas, in nuker until strong enough to steam.

    If up late, snack on apple and pretzels: apples help with pain and pretzels give you more salt to retain more water in body, so blood volume stays up.

    I also eat a banana 2-3 times a week; if at all hungry, eat fruit and nuts.

    I hope you're feeling better! Let us know how you're doing, ok?

  10. Sandyz

    Sandyz New Member

    I`ve been getting these cold sweats a lot and it has been scaring me too. I haven`t goin into my doctor yet because he just will act like its all in my head again. I have been having a lot of upper back and neck pain and I sweat really bad on my beck. Its like my body is trying to sweat out some germs.

    I am going to go to an orthopedic doctor because I can`t stand the neck pain anymore. I have to keep ice or heat on it all day just to be able to tolerate the pain. So, I hope he is of some help to me.

  11. ladude

    ladude New Member

    Thank you and God bless you for all your good suggestions and concern.

    Things have stabilized. Now I just have mini crash every 20 or 30 minutes, So I just stay on couch with feet up, eat every 2 hours, drink gookinade and pray.
    Thank you for all your suggestions, crock pot sounds easy enough for even a dude.

    Even sitting at the pc saps my energy

    This food thing is such a pain in the wig wom, it just does not look good to me, appetite just not there but am forcing myself.

    Feet becoming ice cubes so thank you again for you concern and helpful suggestions they really help, plus knowing others understand and care it really makes a difference


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