would like to hear TMJ stories OH the pain!

Discussion in 'Fibromyalgia Main Forum' started by Spacey, Sep 9, 2009.

  1. Spacey

    Spacey Member

    I would like to hear your stories of Tmj. What you may have done for treatments and if anything worked for you. I have had it straight for 4 years. Iv'e worn a splint and then braces for 2 years, done all kinds of physio and different meds. Nothing haS worked for me, but it has cost a lot of money. I fight the pain everyday and it is bad. Thanks Spacey
    [This Message was Edited on 09/09/2009]
    [This Message was Edited on 09/09/2009]
  2. jole

    jole Member

    I too have had it for a long time. When I was still working everyone at the table would stare at me when we were eating because they could actually hear the popping over the noise in the cafeteria!

    Yes, many times I'd be unable to eat anything but a bowl of oatmeal, soup, etc. that didn't need chewing because of the pain, and would hold my jaw to ease the pain. It feels like a really bad toothache, but is in the jawbone/joint area, only on one side. I've actually had my jaw lock open, and slip out of place once, so there is definitely something going on.

    My dentist said I could have surgery but it rarely helped. He said he could also do teeth alignment and that would "possibly" help, but he doubted it. He really believed that a person could spend their entire savings and get no relief, so I never tried anything. Just do the best I can. Mine is not an everyday thing....mostly with a flare, etc. Which makes me think it's the muscles pulling everything out of place, just like when my back muscles knot up and pull my vertebrae out of place.

    No fun at all......Jole

  3. bunnyrabs

    bunnyrabs New Member

    I am looking into Botox for TMJ. It works by relaxing the muscles of mastication (chewing) so that they aren't overly taut and tight (like the rest of our muscles). I know that is why my jaw clicks, because the abnormally tight jaw muscles aren't allowing for a smooth and proper joint movement, just like all the other joints in our body.
    [This Message was Edited on 09/10/2009]
  4. I had tmj severe headaches, pain etc yrs ago. I got a bottom mouth splint from a specialist my dentist sent me to, it took awhile plus alot of advil and soft foods. It cost me alot as then insurance didnt cover it, now?? I still have problems on and off when stress levels get higher. I was told the OTC splints help also? good luck.
  5. Spacey

    Spacey Member

    This all sounds so familiar, Iv'e tried splints and wore these invisiline braces for two years, (very expensive and neither have done anything for me) It just seems to go on and on, and yes a lot of the electric shock sensations in face and neck and jaw, It is so annoying, Thanks Spacey
  6. holiday16

    holiday16 New Member

    Every Dr. that asks me to open my mouth for anything cringes when they hear it. A few years ago I finally found a dentist that was able to use mouthpieces to reposition my jaw. I think it took almost 2 years when it should only take 1. During that time I was diagnosed with a parasite and once I got rid of it my jaw finally started responding to the treatment. I also started using Traumeel which is wonderful for the muscles around the jaw.

    The popping and clicking is still there, but the headaches and pain are greatly diminished. My damage is bad enough that the popping/clicking will never go away. One interesting thing I came across is teeth grinding has been associated with low dopamine levels and I take a med to raise mine for different reasons and I noticed that my jaw was not as tight and sore when I woke up. I think Tyrosine supplements are a way to raise dopamine, but don't quote me on that and make sure to do research before trying it.

    I do know that not sleeping well makes mine worse because I clench my jaw more. I also had to really work on keeping my teeth slightly apart during the day so I don't clench and that has helped.

    It really did help tremendously getting my jaw repositioned, but the hard part is finding a dentist that really knows how to do it. I lucked out that ours happened to be one of the few, but he has since retired although he might practice on a limited basis. If you're near Dayton I could check into it for you.
    [This Message was Edited on 09/19/2009]
  7. AllWXRider

    AllWXRider New Member

    My daughter has a mild TMJ, but it turned out to be an overbite. Jamming the jaw joint.

    Best wishes
    Allwxrider
  8. kgtexan

    kgtexan New Member

    My dentist fitted me with a particular type of nightguard that is known as "nti tension suppression system". You can find info on it by searching "nti night guard". Before I had this, my jaw would pop so loud when eating that others at the table would ask "what is THAT?" and after chewing awhile, especially anything hard, my jaw would lock up so bad, I couldn't open my mouth to eat anything else. I would also wake up with a headache nearly every morning. This particular night guard has been approved by the FDA for migraines. Since wearing this nightly, I no longer have the popping jaw and my jaw no longer locks up. I highly recommend it. It has been life-changing for me.
  9. I suffered yrs ago and went to a specialist dentist dealing in tmj. He made me a nightguard, insurance didn't cover one cent. It took awhile and was expensive and painful. He adjusted the guard wkly. Now I can't use it as I have had too much dental work. I recently went to a ENT dr for ear pressure/pain and was told it was tmj and to get a OTC guard.

    Has anyone had any luck with one otc?

    I get terrible head pain in the back of head and dont want to go through that again. OMG! I can't afford to go to a specialist again!
  10. Spacey

    Spacey Member

    Thanks Everyone, It sure is a painful issue. I keep trying things including a night brace but haven't had any luckwith anything and it has cost me a small fortune. Well I'll keep trying and yes, I get the headaches and a lot of eye and ear pain also. Spacey
  11. TaniaF

    TaniaF Member

    I just had a flare up, causing me an earache and jaw pain. Went and had a session of myofascial release and with some moist heat it went away within 2 days. not to say that it will come back again.
  12. LISALOO

    LISALOO New Member

    I had tmj around the time I got split. Seriously spend thousands on mouth guards, therapy etc. Nothing worked, only got worse.

    What changed, I switched dentists when my insurance changed to my husbands. He looked at my mouth and thought all the fillings had lowered my teeth. So my next fillings he build them up and the teeth around them. Seriously, the pain was gone!!!

    So if you got a lot of fillings before you came down with the issues, think about this.
  13. brains

    brains Member

    THE PROBELM WE HAVE WITH CHRONIC FATIGUE IS EVERYTHING IS BEING DRAWN OUT OF OUR BODIES IF WE DO NOT PUT IT BACK WE ARE IN BIG TROUBLE. IT IS LIKE WHAT A SPIDER DOES TO A FLY WHETHER IT IS THE HHV6 VIRUS OR ONE OF THE OTHER WHO KNOWS.OUR CARTILAGE IS DIS-APPEARING.WE HAVE KNEE ,NECK SHOULDER PROBELMS eTC WHEREVER THERE IS CARTILAGE WE HAVE A PROBELM.THAT INCLUDES THE JAW...TMJ ...WHAT WORKS WELL FOR THE CARTILAGE IS MSM BY ITSELF DO NOT BUY IT IN SOME OTHER SUPPLEMENT 1500 MG THE BRAND IS NOW.THIS WORKS !!!!!TAKE WITH A MULTIVITAMIN WITH MINERALS.LET ME KNOW HOW THIS WORKS FOR YOU.BECAUSE IT WILL.
  14. victoria

    victoria New Member

    I had braces for 3 years when I was an adolescent. At age 14, after they were removed, I soon found that my right jaw would go 'out' and I would have to massage it back into place, altho no pain.

    Then when I was 22 I had 3 wisdom teeth out at once (since I'd already had one out and all were impacted). What I didn't know was that to make it fast, they dislocate your jaw so they can really get 'in' there. After that I started to have pain that kept escalating for 20 horrible years. I even had to quit a job as it involved so much talking (sales).

    After journeying to see the 'grandfather' of TMJ treatments in 1980 and many others after that-- none of whom gave me any lasting relief despite various splints and even grinding down "high points" on my teeth(!)-- I finally found a competent dentist in about 1991 who was a member of the functional dentistry association. Instead of teaching just one way of fixing TMJ, they taught a variety of ways so that the dentists could fit the treatment based on a patient's individual problems and needs.

    Basically what worked for me was first using a splint 24/7 (even for eating) that opened and slid my jaw forward a bit out of the joint so that it was no longer grinding into the pad in the joint. Within a few months the pain was greatly lessened, but it took 2 years to stabilize.

    I elected to then have braces to make the change permanent, tho I could have just continued wearing the splint 24/7. The interesting part (to me) was that by selectively removing parts of the splint, the teeth actually do 'grow'/jawbone thickens to meet each other if there's no opposing surface. So he carefully manipulated my teeth into place to keep my jaw in the same position that the splint had it in. That took another 3 years.

    Yes, it was expensive, but worth every penny. And no surgery needed; prognosis is poor for it anyway in general. I only took valium occasionally in the very beginning (as needed) to help things calm down.

    I saw him perform other minor miracles, ie, one of the girls in his office had had an accident and her bottom jaw was really badly out of line, and it was very obvious. By the time I was finished, she was as well, and she now was back to normal-looking and pain free.

    There was an Assoc for Functional Orthodontics (or similar name) that used to have referrals to dentists that were members who had attended their seminars, but I can't seem to find it on google now unfortunately.

    good luck, I know exactly how painful it is, it definitely is no fun.

    all the best,
    Victoria



    [This Message was Edited on 10/02/2009]
  15. Spacey

    Spacey Member

    WOW! Thanks again everyone. Spacey
  16. Stephen Gorham

    Stephen Gorham New Member

    If you suffer from TMJ problems then check this site www.headaches.com
  17. munch1958

    munch1958 Member

    My TMJ was the first thing that went away when I started on antibiotics for Lyme. It's been gone for 3 years now. Like you, I spent a lot of money and tried lots of treatments including the night mouth guard. That would almost always be found under my bed where I yanked it out and tossed it in the middle of the night.

    If I still had a problem now I would look more into osteonecrosis of the jaw bone? and possibly Prolotherapy for treatment. I've been getting prolo on my wrist tendons which has been a problem for about 25 years. Plus I'm seeing a cranial sacral osteopath. So far this treatment is
    helping.
  18. Spacey

    Spacey Member

    I'm going to see an osteopath next week, and see if she can help at all. Thanks Spacey