WPI answered my email!!!

Discussion in 'Fibromyalgia Main Forum' started by skeptik2, Oct 12, 2009.

  1. skeptik2

    skeptik2 Member

    These people are so kind and considerate, and as you know, we with M.E
    are not used to that...

    I had asked about giving blood for their research, and getting the XMRV test
    for my grdau especially.

    They said they are working with a lab to do some limited testing and that they can't
    accept patients until next summer when the Institute is finished being built.

    They said to fill out a form on their website and they will evaluate them for
    certain criteria for studies.

    So, everyone, even though they say they have been inundated with emails,
    they seem to be on top of it all, and that they are working fast and furiously to
    help us all.

    Patience is a virtue; strength to us all who wait...

  2. nah.stacey

    nah.stacey Member

    Skeptik2 What are you doing up this late??????
    Every time I read one of your posts I have to laugh. You say what you feel and I think you are cracked and then in the next post you say what you want and I'm cracking up. Keep them coming. If nothing else your on top of it.
  3. hopeforcure

    hopeforcure New Member

    Thank you for the info. I agree it is rare to find helpful/supportive folks in the medical community.

    Looked for the form and don't see it. But I am glad for what they are doing. I hope their facility finishes early and is better than they hoped. They are doing God's work!
  4. skeptik2

    skeptik2 Member

    At these hours of the morning, I am usually cracked, no doubt.

    Don't know whether to take this as a compliment or a slam...

    However, I'll keep on writing what I find out, and then what I
    want...which is for all of us to be diagnosed with our REAL disease,
    and a brand new definition and criteria written up by the WPI, with
    the Cleveland Clinic and NCI involved. I want the CAA and the
    CDC to be in charge of the so-called 'CFS', which includes every
    disease known to man that also causes 'fatigue', which is not
    what I have.

    Mary Schweitzer wants the same thing, (researcher who are
    researching HER disease), and I have so much
    respect for her opinion and knowledge. She and Hillary Johnson
    have informed my opinions for many years now.

    I hope you are up late, too.....

    Love ya,

[ advertisement ]