Wuamme and all - More info on psychiatrist-chronic pain specia

Discussion in 'Fibromyalgia Main Forum' started by judee, Oct 26, 2002.

  1. judee

    judee New Member

    Wuame, you said that this specialist you are going to now is you PCP, Has he really helped you with your chronic pain and managing meds? More input please, I am uncomfortable about sending my 11 year old who has FM on this route. However, I have to do something, she is not doing well and getting no relief from anything, her PCP is not helping and not grasping the magnatude of her flare ups, I just don't know whether to go the neuro route or what next. She has tried neurontin but had terrible headaches. This is the difficult part of this illness. It is hard to know if her symptoms are a reaction to a drug or just FMS. It seems like every med she has tried has caused headaches, so therefor she isn't on anything but then this voice inside me says well maybe its the FMS causing the headaches. I am so confused, and feeling helpless!! I have to so something to improve the situation, it has become unbearable for her.
    Thanks for your replies,
    Judee
  2. judee

    judee New Member

    Wuame, you said that this specialist you are going to now is you PCP, Has he really helped you with your chronic pain and managing meds? More input please, I am uncomfortable about sending my 11 year old who has FM on this route. However, I have to do something, she is not doing well and getting no relief from anything, her PCP is not helping and not grasping the magnatude of her flare ups, I just don't know whether to go the neuro route or what next. She has tried neurontin but had terrible headaches. This is the difficult part of this illness. It is hard to know if her symptoms are a reaction to a drug or just FMS. It seems like every med she has tried has caused headaches, so therefor she isn't on anything but then this voice inside me says well maybe its the FMS causing the headaches. I am so confused, and feeling helpless!! I have to so something to improve the situation, it has become unbearable for her.
    Thanks for your replies,
    Judee
  3. Wuame

    Wuame New Member

    Judee:

    You're right that is the problem--everyone is different & different things will or won't work at different times. I've still had plenty of pain & problems, but that's partly my failure to stay the course on the things my PCD said I should do. Failure to stick to my prescribed diet & regular water aerobics & stretches. Overall he has been a big help with managing the pain & the meds. Complimented of course by a T, massage, some chiropractic, and a rheumy.

    Its gotta be really hard finding someone for an 11 year old, and my thots are with you all.

    Wuame
  4. contessa

    contessa New Member

    Best thing that ever happened to me. Therapist and psyciatrist both dismissed me. Said I didn't show any signs of an illness they could treat. (Ruined my disability claim) They didn't know what to do with, quote-unquote!! I live in rural area with limited choices. Next stop was to see a neurologist. Got into a migraine clinic (5 hours round trip-same hospital as my rheumy) but specialist is also treating the depression, panic, anxiety, pain and related areas due to fibro. She has elimated some meds recommeded by other docs and replaced a couple that are more worthwhile given my conditions. She recommended a specific physical therapy (myofascial release) which I'm able to receive locally; my headaches were gone for three weeks. Very gentle process. Stopped that and started moderate exercise program and headaches returned. Now I have proof that migraines are from fibro and related stress. Combined with rheumatologist, I now have a three-way chain of records, therapy, medications that will justify/prove my disability claims. I'm in the stage where I know I will have to adjust to living within a degree of pain and fatique (working on it now). But I'm so happy to have three specialists that are listening to me and believe in my illness. Don't hesitate to look elsewhere if you aren't getting results. The comfort you gain will be your own benefit - go for it. (fortunately, my husband drives and I only need the 5 hour trip once every 6 weeks)

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