You Will Never Believe My Doctor's Apointment, Horrible

Discussion in 'Fibromyalgia Main Forum' started by greatgran, Aug 31, 2009.

  1. greatgran

    greatgran Member

    The doc I was seeing moved away so thought I would try to find another one here in our small town. Made an appointment with an Internest, female , and before I made the appointment I ask if the doc saw CFS/FM pts. The receptionist told me yes.

    Well, get all my info together..previous records, etc. I typed up a list of all my meds, Test I have had , my complaints and Dx.

    She walked in and the first thing out of her mouth was where do you get your xanax (as that was one of the meds listed) I told her from my previous doc. She said well, I don't give xanax, I told her I wasn't there to get xanax just to find me a doc to follow up with my care and take it from there.. She then looks at my complaints and told me that they are all psych. and that CFS and FM are not a true dx but all Psych..and she didn't treat those pts.

    I got up and walked out and told her I disagreed but did agree there was nothing she could do for me and what kind of doc was she anyway.

    I was so shocked but wish I had said more.. I have never had such an experience..

    Oh, she did ask me if I wanted my records etc I had brought and I said yes then she said she would have copies . I said what it the h--- for you can't help me so just keep the darn things.

    Just had to let you know about my experience, its almost laughable..


  2. greatgran

    greatgran Member

    This appointment all stemed from my experience in my previous post " I Just Got Down in the Floor and Cried..Now I feel this was just a crash of CFS..

    So those of you who may seek a new doc don't mention anxiety/depression as one of your complaints on the first visit.

    God Bless,

  3. What a joke! I didn't think their were that many stupid uninformed drs on fibro anymore. Glad you walked out! MORON DR! Find another dr.
  4. TeaBisqit

    TeaBisqit Member

    Sounds similar to my Endo appointment. The first thing I did was to tell him the pharmacy couldn't get my Armour thyroid med in anymore and I needed to be switched to a new thyroid med. So instead of listening to what I just said, he spent ten minutes telling me how he doesn't give Armour. And I was like, I didn't ask you for Armour. UGH. He then told me that Hashi's is just inflammation and I should take NSAIDS and he said the thyroid doesn't cause pain. Yeah, right. What a complete jerk. He also said that if I wanted real treatment, I should go to John's Hopkins or Hershey Medical Center. And I was like, he just said he's too stupid to treat me. I should have shut him up right there. He also told me that since I'm overweight, I must have diabetes. And I was like NO. Every doctor, including the hospital this year has said I don't have it and I'm not pre diabetic. My sugar is fine. And he just kept insisting that since my mother had it, that I must have it. My mother never had a blood sugar problem until she went to quacks like this. Then, once they messed with her and told her to take that Metformin crap, then her sugar was out of control for the rest of her life. And the heart attack that killed her was probably related to it.

    These doctors are scary. And what's worse is they write crap in your medical file, so other doctors think the wrong things about you. This jerk put down that he wanted me off all my meds for two months just to see how I would do. No freakin way. The few days I was off the thyroid med, my thyroid blew up again and I was in horrible pain. I had to call my doc's office and cry to get them to give my new prescrip. She was giving me a hard time because of what he wrote and I told them he was a quack. And she finally gave in and gave me my meds. And low and behold a few days on them, the thyroid pain is nearly gone.

    I'm not letting this doc farm me out to anymore quacks.

    None of these docs know how to treat us, but they should say that BEFORE our visit so we can go some place else. They just want to steal our money.
  5. kinsie1

    kinsie1 New Member

    I have allowed myself to suffer with extreme anxiety for 1 year and 8 months ( I almost know to the day when it got the best of me). I went to my family doctor. He prescribed Xanax ( a low dose). I took it just like it was prescribed, and it helped, but it didn't help enough.

    I knew there had to be some help for me out there. I finally convinced myself that I need to see a specialist instead of a general practioner. I made an appointment with a psychiatrist. I had to wait at least 2 months before I could see him, that's how booked up he is. I knew it was going to be expensive, and my insurance was not going to pay a dime. But, I was desperate.

    I almost cancelled the appointment several times, telling myself that I didn't need a psychiatrist. Well, I did need one. I wrote down everhthing I wanted to discuss with him so I wouldn't forget. He knew exactly what I was talking about, he didnt' make me feel funny about anything, or question me about my medication, etc. He just said "what you need is Xanax XR ( time released), and Prozac". Well, when I heard the word Prozac, for some reason it didn't sound like a drug I would ever need. Oh yeah. I have been on both for 12 days, and I started feeling better right at first. The time released Xanax is only a 0.5 mg which he says isn't a large dose, but it works all day without a let down.

    For the first time in so long, I actually feel almost like myself again. The doctor told me that he would adjust the dosage to whatever it takes to make me feel well again.

    I do have one question I forgot to ask him. Will I ever get completely well, or will I always have to take medicine for this horrible anxiety. I will ask him at my next visit. He confirmed that the reason I got in this shape to begin with was being under too much stress for too long. Your brain tries to help you when you're stressed out, but if it goes on for years, the signals get all messed up ( just putting it in my own words!!).

    Anyway, I am very pleased with seeing a mental health doctor. It only made sense to me that a person needs to go to a doctor that specializes in anxiety/phobias etc.

    I am sorry you had such a bad experience at the doctors office. That's awful

  6. mbofov

    mbofov Active Member

    A few years ago I had to find a new doctor and picked a female osteopath - thought she might be up on new ideas - nope! She just bluntly told me she didn't treat CFS, she just dismissed it totally.

    You have lots of company, great gran.

  7. greatgran

    greatgran Member

    To each for your replies. Sorry, some have had the same experience. I thought doctors would have a little more respect or class and handle the rejection in a different manner..

    I would love to counter attack but it isn't worth it so will just laugh it off.

    God Bless,
  8. MsE

    MsE New Member

    Did walking out on the doc give you a certain satisfaction? I did that once, and it made me feel waaaaaay better. He was giving me the same old "exercise as much as you can, take your lorazepam, and live with it" spiel, and I said something like: "You know, Doc. I don't think I'm gonna be back for a good long time. You haven't been able to help and you don't seem willing to do the homework that might give you the info you need to help. So, I'll see you when I see you." That's what I said-- or something much like that.

    Later when I had to go back for bronchitis, I got a look at my chart. He had taken my earlier comment as something like "good humored understanding of the situation." That made me laugh, because at the time I was mad as a hornet. I never did tell him I had peeked at my records when he was out of the room. And this was my "good" doctor! The one who is usually quite sympathetic and understanding. But basically unhelpful.

    GG, I would advise you keep your records, though. You don't want them adding something to them or losing them or part of them. Get them back and hang onto them.
    PS. Getting another doctor in this town is impossible. I have the guy who is considered THE best, and no one is taking new patients.
    [This Message was Edited on 08/31/2009]
  9. JewelRA

    JewelRA New Member

    Here's a big, gentle cyberhug for you!!!! {{{{{{{{{{{{ }}}}}}}}}}}

    What a CREEP of a doctor!!! Good for you for walking out like that and telling her what to do with her advice!!!! What was her receptionist thinking, saying that she "sees" CFS/FM patients???? Just wanted you to come in and made fun of? Aaarrggghhh! I am getting furious just thinking about it.

    Hang in there. There are other doctors, and though we have to jump through some hoops, I believe you can find a better one.

  10. hottxxxtopp

    hottxxxtopp New Member

    I would report her to the medical board.
  11. Pansygirl

    Pansygirl New Member

    Sending a gentle hug your way special delivery.

    I'm also glad you walked out on that doctor..........Keep
    the hope that you will find a good doctor that understands what
    we are going through.

    I have been having more anxiety issues , I think
    I"m going to have to go back to my doctor and see
    about being on meds all the time. I don't want
    the anxiety to take over my life, which is where it's headed
    now . :(

    Hubby doesn't understand and thinks I should just relax.......well
    I wish it was that easy but it's not.

    I just wish these doctor's and maybe a few of our non understanding
    family had to walk in our shoes for even a day they would change their
    tune pretty fast, at least I hope that they would.

    Sending very gentle hugs your way, pansy

  12. rockgor

    rockgor Well-Known Member

    Good thing you didn't run into one of those arrogant doctors we all keep
    hearing about.

    When I was young doctors were pillars of the community, respected and

    Nowadays doctors can do more for you, thanks to the scientists and
    technicians, but you have to be able to afford them. And you have to
    find one who will condescend to treat you.

    I don't think much of the modern world. Expect to be leaving in the not
    too distant future; that's fine with me. I hope it's before the country

  13. gb66

    gb66 Well-Known Member

    We sure have some stories to tell. I could write a book on crazy doctor experiences. The last one I went to was a young woman who I thought was very intelligent. She listened to everything I told her and was going to run a lot of tests that I hadn't had before. She is a general practice doc.

    The first thing that happened was that I developed a bladder infection, went in for antibiotics and gave a urine sample. I waited two days and hadn't heard back. They were supposed to call me within 48 hours. Made three phone calls and no one would return my phone calls. The weekend came and went and on Wed. I finally got them to return my call. They said my sample had been "misplaced" and never got to the lab. Didn't even apologize. Never said why they didn't return my calls or even inform me. When asked if I needed to return to give another sample, was told= if you're not having a problem anymore, there's no need to come in.

    They doc had told me she was going to send the sample for a culture, originally. Then, 3 weeks later they moved to another office 20 miles away. P.S. I haven't had that urine test yet. This was a month ago. Guess I'll have to find another doctor, again. GB66
  14. karynwolfe

    karynwolfe New Member

    We really COULD write a book about this stuff. I say we pull together all of our horror stories, and how much HARM has been done to us because of doctors who don't believe and don't listen, and then try to go public with it! Ugh. It's ridiculous.

    It really is laughable, gg. I'll tell you what I told TeaBisqit and that's to go online and give them the review they deserve on all these doctor rating websites.

    *hug hug*
  15. stinker56

    stinker56 New Member

    I walked out on a rheumatologist that once asked me what made me think I had RA or FMS, even though I had been diagnosed years ago with both by a very good rheumatologist, that there was nothing wrong with me except I was deformed.

    His office help called me at home and asked why I had left the office. When I told her how I was treated she said she was sorry and said she was sorry for bothering me.

    I believe we hire our doctors to care for us and should be able to fire them if they treat us with anything less than respect and in your case...I sure think you were treated disrespectful!

    I don't mind a doctor disagreeing with what another doctor has diagnosed or suggested but to insult you or even in your case as to be so bold as to tell you it was basically all in your head is another thing entirely.

    Sounds like she might have maybe been in trouble with prescribing Xanax you think?

    Hope you are feeling much better today.
  16. Mikie

    Mikie Moderator

    I am so sorry for what this moron put you through. I have been very fortunate with my docs. Neither of the PCP's I have had since I got sick knows much of anything about our illnesses. The first one was willing to learn and work with me. My present PCP gives me whatever meds I require and leaves it up to me and the specialist I use for my illness-specific problems. He's kind of a strange man, good looking and nice but a bit "removed." Not aloof, just a bit different.

    When I was ready to leave last week, he began talking to me in fluent French. I began talking with him fluently in French. Now, I speak a wee bit of French but haven't practiced it since I left the old store where I spoke with the baggers from Haiti. I'm certainly not fluent and yet, here I was speaking with him like a Frenchwoman. As we reached the checkout counter, the woman there, who was a dead ringer for Laverne on "Scrubs," gave us a very strange look, especially when he bowed formally from the waist and bid me adieu. I told her that we were in a French frame of mind. She just said, "Uh huh, obviously."

    I'm tellin' ya it was like something out of a movie. I'm starting to think this doc is even stranger than I had thought him to be. Perhaps he's a witch doctor or he put a spell on me. OK, again, I'm sorry to be making this all about me but I thought you might be ready for a bit of humor. It really did happen but it's sooooo strange that I think it's kinda funny. Sometimes we cry and sometimes, we just have to laugh. You had a horrible experience; I hope this makes you smile.

    Love, Mikie
  17. Elisa

    Elisa Member


    I have posted about the ridiculous doctors I have seen - how hurtful and ignorant and useless they can I just chalk it up to saying to myself that certain doctors are just:

    "Bananas in Pajamas!"

    Just like the cartoon!

    God Bless and Keep the Faith and Keep Going and Keep Looking!


  18. teller7

    teller7 New Member

    It is almost laughable. How disgusting to have to put up with that kind of treatment!! And from an internist. I've had similar experiences with alot of doctors too. Here's a funny one. I crashed in Jan. 2003. In June 2004 my doctor sent me to Oregon Health and Science University because he just couldn't figure out what was wrong with me. I saw an endocronologist (don't know if I spelled that right). Anyway he told me that I had a really bad case of Chronic Fatigue Syndrome and it's robbed me of my life. I said yea doctor so what do I do about it? He said there's nothing that can be done about it. He did find out that I have nephrogenic diabetes insipidus. It's a kidney duct disease very rare so he put me on large doses of potassium and a water pill. AND he said I want to see you next year. I made the appt and the next year I went. Now I realize that drs see so many patients they can't remember everyone but he had my chart right in front of his face. My husband asked if they had come up with anything yet to help CFS. This doctor said I don't specialize in CFS and your wife is obese and having brain strokes because she smokes. I couldn't believe it. I weighed 164 at the time and have had many MRI's and no sign of strokes. I got down off the table and told my husband to come on we're leaving and I never went back. We should all get together and write a book about our experiences with doctors concerning this disease. Do you think we'd LAUGH or CRY after reading it.
  19. steach

    steach Member

    I've been through this and I feel for you. It is humilating for us and substandard care. Keep searching and you will find a dr. who actually believes FM/CFS is a real illness.

    When looking for a new doc and placing that phone call, not only do we need to ask if the dr. treats FM/CFS -but- does he/she BELIEVE they exist.

    It is such a shame that we are doubted. A person who has a dx of diabetes,... is not doubted -and- treated.

    When will this ever stop?! Knowing me, I would have asked this dr. to view his/her credientials and given this site as an educational resource!! :) :)

  20. HarleyRidingGal

    HarleyRidingGal New Member

    Wow, after reading all the stories and comments about doctors, I realize that I am not alone. I was misdiagnosed, poked and prodded for seven years before I finally got a diagnosis. I've been officially diagnosed as of seven years ago and the FM is just now really rearing its ugly head.

    Before my diagnosis, I made a detailed spreadsheet of all symptoms, doctors throughout the years, medications, treatments (if any), etc. only to be told by my doctor at the time (In Tampa, FL) that she only had one FM patient and that patient couldn't even get out of bed and that I did NOT have FM. She just gave me a huge bottle of Vicodin and sent me on my way. Wasn't even interested in all the research and chronology of things. I had thought back and believed I had FM even as a teenager.

    I moved to the Northwest (WA state). I saw a doctor here and the first thing out of her mouth was that I had FM... What a relief!!

    It was necessary for me to change doctors because of insurance and I, too, specifically asked the receptionist about the new doctor treating FM patients and that I was on pain meds, etc. I went in, the doctor looked at my paperwork, told me she did not treat people like me, that her receptionist would NEVER have told me she would see me, etc. I walked out extremely upset but then realized that everything happens for a reason and when I took a second look at her office sign...I saw that she was in practice with her husband, a plastic surgeon and she had had soooo much botox and lip work done, I felt out of place anyway. How could I take that seriously? So I laughed it off.

    Anyway, I'm so glad to find a message board for this. It's comforting. If anyone wants a message support partner in the Northwest part of the country, I would love to offer support, respect, prayers, listening and encouragement. I've been through a lot mentally, emotionally and physically and am looking forward to sharing with others who have as well.

    How cool is this? That there's a place for all of us to share!

    I look forward to many messages!

    God Bless to All!!