Search results | ProHealth Fibromyalgia, ME/CFS and Lyme Disease Forums

Search results

  1. F

    Waiting to see Dr Lapp CFS/FMS Specialist Any want me to ask question for them?

    Goodmorning All, I thought I would give you all an opportunity to pose a question to Dr Charles Lapp. He is a renowned ME/CFS, FMS specialist and I could ask him a question for you if you would like. My appointment is @ 9:00 but I may be in the waiting room for a bit also so please feel free...
  2. F

    Ampligen anyone?

    I just finish talking to Dr Lapps office. He is the Dr in Charlotte who is world renowned for treating ME/CFIDS, FM and does actually treat lyme too, to my surprise and delight. I have an appointment next week. He also will treat ME/CFIDS with ampligen injections. They treat with 2 injections a...
  3. F

    Is there not a lyme forum here anymore?

    There used to be a lyme forum. Did that go away when this board changed? Im looking for a lyme literate MD in the Triangle area of Raleigh NC. I tested positive with lyme and other co-infections a few years back. I began to see Dr Jemseck but it was right at the time the powers that be shut him...
  4. F

    Need article to bring to pain clinic Dr tomorrow-they dont think FM is real

    I have an appointment with a pain clinic whom I have grown very frustrated with due to their lack of properly treating my FM, ME/CFS and severe back pain. Well I spoke to them on Friday confirming my appointment for Monday and the receptionist/assistant said they dont believe FM is a REAL...
  5. F

    Can not keep up with housework. Anyone know of help available?

    I have been down for a while, in so much overwhelming pain and bone crushing fatigue. I'm pushing myself just to get out of bed each day. I haven't been able to get out in weeks, even to go to the grocery store never mind being able to clean my house. My husband helps out so much ,bless his...
  6. F

    Silver Sol

    Better then the old colliodal silver. Kills viruses, bacteria and yeast. Wonderful product and could benifit so many here.
  7. F

    Considering going to Dr Charles Lapp. Input anyone?

    I know Dr Lapp deals specifically with Fibromyalgia and M.E/CF but I don't know what his specific protocol is. Has anyone here been to see him? I would appreciate any input. I'm leaning on going but it's a big financial commitment. It costs $ 1300. for the first visit and doesn't accept...
  8. F

    Considering going to Dr Charles Lapp? Has anyone else gone to him?

    If anyone has any experience with him and knows his regimen I would love to here from you. I would appreciate any input. I am so tired of getting my hopes up only to have them dashed. He is 3 hrs away so my husband would have to take a day off work to drive me and it is very costly. The first...
  9. F

    What work for sleep? Cant take meletonin.

    Right now I'm just taking the ingredient found in the over the counter sleep aide. It's basically benadryl. But it's not working. I'm only getting at best 4 hrs a night. And that's broken up. I have used calms forte in the past but it doesn't work well either. Ambien worked the best but the Dr...
  10. F

    What work for sleep? Cant take meletonin.

    Right now I'm just taking the ingredient found in the over the counter sleep aide. It's basically benadryl. But it's not working. I'm only getting at best 4 hrs a night. And that's broken up. I have used calms forte in the past but it doesn't work well either. Ambien worked the best but the Dr...
  11. F

    Wasn't there a good Dr list here before? What happened to it? How do you find a good Dr?

    I need to find a good Dr fast. I had waited to see a pain management Dr only to be totally disrespected ,humiliated, totally misunderstood, invalidated, uhg...you all know how it feels. They leave you with a pots feeling. Anyway I really need help finding a Dr. Any suggestions?
  12. F

    Searching for a Good Dr in Raleigh NC Desperate! Please Help! Please respond!!

    Please help. I'm desperate. I had been going to the same Dr for 15 yrs and he prescribed all the meds I needed, then the "powers that be" above him threatened his position due to prescribing narcotic meds. that kept me functional. Since then I have been going from pain clinic to pain clinic just...
  13. F

    need doctor

    I realize i am in the fibro board but my wife is running out of hope. Yes I am speaking for my wife here. She is in dire need for a lyme literate doc in the Raleigh Durham Chapel Hill area of NC. She is suffering from Fibro., CFS., and lyme as well as co infections. She is of course in...
  14. F

    scalp hive size bumps on scalp that are painful ,burning,itchy,scaley,oozy

    YUK!!! Anyone else have this I have never had anything like this before. My scalp has always been fine before this. My hair started to fall out for the past year. Its a good thing it started out thick because I can easily collect a baggy full in a few days Then out of the blue I developed a few...
  15. F

    Does anyone else seem like they just cant live with this disease anymore?

    I used to be so happy had so many freinds full of life and energy and now i cant even play with my kids and orgaize my house.I cant have freinds couse they dont get it of course. what do you do to survive?
  16. F

    How to handle kids when so sick? FM,CFID& Lyme!

    Please Im at wits end. I am in so much pain, so exhausted, and my mind and body just are failing me. I have no family, have been so isolated have no freinds, no help. My kids are 13 & 15 and both have severe ADHD. My 13 yr old daughter just wants to go,go,go, and I cant. I cant even take the...
  17. F

    Anyone feel trapped in relationship because of FM/CF/LYME?

    I am feeling so trapped in my marriage because Im disabled and cant work with these diseases.And no higher education to fall back on. Im virtually stuck. I only get a little disability and that wont get me very far as with rent utilities ect. And then there is the fact that their are alot of...
  18. F

    Have IGX test kitWhat should I tell my PCP to test me for?

    I have an appointment this morning and just recieved the kit via express mail. There seems to be alot on here that could be tested for. I was tested CDC posative last year and was going to DR J a LLMD but He had to close his doors. I finally convinced my PCP to do a test using Igenex. Can...
  19. F

    Thinking of going to Atlanta FFC Comments Please

    Hi All, I need advise, comments from anyone who has been to the Atlatnta FFC clinic Please, Please! I have been so so sick and progressively getting worse. Im almost needing a wheelchair because my legs have become so much more painful and Ive been falling much more. Ive been getting postcard...
Top