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Burning pain in legs and skin sensitivity

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poohmle

Member
I am having a FM flareup. I have burning in my legs as well as skin sensitivity. My skin feels like it is sun burned. My doctor has given me Neurontin and it seems to be helping. This is the first time I have had this happen like this. I have had the burning skin feeling a little before but not like this. I am wondering how long this usually lasts. I know it is different for all but just wanted to know others experience.

Also, if you take Neurontin (gabapentin) how much do you take and how often?

Thanks for your input.
 

Goatwoman

Member
The burning sensations were the first symptoms I had of FM. I finally got onto a combination of Tramadol (one in the morning) and 600 mg. of Neurontin at night. This has kept the burning in check. Before I started the Tram these "burning" flareups would last about three weeks, subside, then come back again. Haven't had this symptom for quite a while.

Hope you feel better soon.

Georgia
 

poohmle

Member
The burning sensations were the first symptoms I had of FM. I finally got onto a combination of Tramadol (one in the morning) and 600 mg. of Neurontin at night. This has kept the burning in check. Before I started the Tram these "burning" flareups would last about three weeks, subside, then come back again. Haven't had this symptom for quite a while.

Hope you feel better soon.

Georgia


Thank you for the reply. I also take Tramadol in the morning and evening. Having just started Neurontin I have been trying to find the right dose. My Doctor told me I would have to try different doses to see what worked. So far I have tried 300mg at night but then have to take more during the day. I will try the 600 tonight and see how that works.

For you, does exercise affect it. I have been trying to exercise more and wondered if that has caused this. It's so hard to know what triggers flare ups with FM.

Thanks again.

Martha
 

poohmle

Member
I've been dealing with a milder FM since 1999 and recently for who can answer, no one, I get a flare thing, with some burning....it eventually goes away with relaxation and a kind of meditation work....I personally don't want to get on drugs, I take a lot of supps and I do stretching and riding my recumbent bike when I'm up to it....jam

Thank you. I completely understand trying to avoid taking meds. I have tried to limit mine to Tramadol. I have been trying stretching also.
 

poohmle

Member
Burning/freezing/tingling legs and burning of torso, etc, for me diagnosed as peripheral neuropathy. I take 600 mgs Neurontin in morning, and same at bedtime. So 1200 mgs. a day. I used to take 2700 mgs.,( 900mgs three time a day). I was able to reduce amount by taking alpha lipoic acid at the recommendation of an oncologist. It worked! I also take tramadol.

Barry

Did you have a problem with sleepiness during the day from the the morning dose of Neurontin?

Thank you,

Martha
 

Goatwoman

Member
Hi, Martha--I either walk or use my recumbent bike--if I do too much I do get a mild burning. I seem to feel better if I get in at least 30 minutes of exercise a day. Right now I'm dealing with a herniated disc in my neck, so am not doing much of anything! As to the neurontin, if I take take the 600mg at night I just sleep off the side-effects, and don't feel too drowsy in the morning.

Hope the increased dose of N will help. If everything else fails, I give myself a jab of Toridol, a longer-lasting dose of NASAIDs then Advil. Gave myself one this morning, and the neck pain is more tolerable.

Georgia
 

Beadlady

Member
Hi,

I've taken Gabapentin for about 12 years at various doses. I take 100 mg 2 to 3 times a day~~sometimes they do make me sleepy. I also take tramadol 100 mg 3 times a day too however my pills come in 50 mg. I can not take 2 pills at a time because the tramadol causes my jaw to be really tight & painful. I have found that if I take 1 pill and then take another one about an hour later it is ok--sometimes I forget to take that 2nd dose though.
 
I am having a FM flareup. I have burning in my legs as well as skin sensitivity. My skin feels like it is sun burned. My doctor has given me Neurontin and it seems to be helping. This is the first time I have had this happen like this. I have had the burning skin feeling a little before but not like this. I am wondering how long this usually lasts. I know it is different for all but just wanted to know others experience.

Also, if you take Neurontin (gabapentin) how much do you take and how often?

Thanks for your input.
I just started this.. Well where it is really flared up.. its in my feet and my hands.. they're hot and feels like burning.. comes and goes.. looks like on my hands its like reddish around the inside of my palms but up around and under the pinky fingers on each hand.. the feet.. they even hurt to walk on my carpet most of the time..
I thought maybe it was where I bought some sandals at the Thrift store but.. that wouldnt affect my hands. Seems like it did this a little last summer but.. when my Dr ordered blood work.. my folate was low.. so I started taking Vitamin B Complex with C.. and it seemed to help.. but now its doing it.. and its worse then before..
I've been feeling well not 100 percent but better then I had in a while..
I stopped eating meat.. pretty much.. and concentrating on Fruits and veggies and nuts and grains and beans.. still have some sweets.. but.. I can't seem to stop eating them completely..
I don't like to take meds either.. The only thing I take is my Synthroid.. and I wouldnt take that but I tried not to and Wow.. wont try that again..
But .. will keep tabs on this topic.. and see what everyone does for it.. Hugs and I hope You're feeling better!.
 
Forgot to add.. I do take my Vitamin D3 every day.. that is low.. or was.. time to get that checked again... I take 2,000mg a day..... Maybe I need another different brand of Vitamin B complex.. ?
 

tamsyn

Member
I've had ME/CFS and fibro for about 14 years and often get that awful burning in hands, feet and legs -- also get tingly nerve pain, and shooting, crawling nerve pain travelling all up my legs. Yuk. This is accompanied by physical weakness in my legs. And overall crushing fatigue. I take Gabapentin (basically same drug as Neurontin, I believe??) and find 300 mg at night helps a great deal. If I take a higher dose, or take it by day, I am so spaced out I cannot function. Alas, it doesn't make me sleepy and I haven't been able to nap since about the year 2000. I only sleep at night with a sleeping pill. I am like many of you: I don't really want to be on meds -- but after years of pain so bad that I'd be in tears, I knew I needed help. And I had already tried every herb, vitamin, supplement, and etc known to humankind :) without any improvement whatsoever. So if Neurontin helps, then don't worry; my doc says Gabapentin considered a very 'safe' drug (ie few SE's and well metabolized.)
 

poohmle

Member
I appreciate everyone's help with this. This is my first experience posting on a fibro blog and I am finding it very helpful. I have tried different doses of neurontin and found that 300 mgs at bedtime and 300 the next morning work pretty well. I tried 600 mg at night but I couldn't function the next day but less than that at night was not enough.

I am not over the flare up but I am doing better. I hope everyone else is having a good day without much pain or fatigue.
 

sunflowergirl

Well-Known Member
The doctor started me on 300 mg gabapentin at night about a month ago. After 3 days I started a stomach upset which seemed to increase daily. It was helping me sleep but how do you function for about 5 hrs. in the morning with this awful stomach.

So he cut me back to l00 mg. at night. That's been about 2 l/2 weeks and so far it's still helping with the FM pain. I find I'm not as loopy in the mornings but still fight the dizzies. It just feels like my brain is very foggy. And it's done nothing to help the crushing fatigue that comes out of nowhere in the late afternoons. Sometimes I need 2 to 3 short naps a day.
 
I have burning in legs and feet. This is fairly a daily feeling. It's driving me crazy. My sister was diagnosed with fibro twenty years ago at univ. of Wisconsin and the doctor made a point of coming from the office and said to me, " your sister has fibro and if she has it, so do you because fibro is inherted. " I have not been able to walk on grass for years , but could deal with that. I never had this burning until my doctor had me taking statins. My sister , when I told her, said she never takes statins . I wish I had known this before , but she has three degrees in nursing and said , "no statins , no steroids " I hate this burning and wish I had never taken a statin.
 

Mikie

Moderator
Hi, Mary,

I'm so sorry you are dealing with this. I don't know whether this is a side effect of statins but it sounds like it could be neuropathy. Do your legs ever tingle as though they have gone to sleep? Neuropathy seems to run in families too. I would suggest researching statins and talking to your doctor. Some people have found that by going on a low carb diet, their cholesterol is reduced. Good luck to you.

BTW, there is an excellent book, Diabetes Without Drugs, that has info on this. It isn't necessary to have diabetes in order to benefit from the info in the book.

Hugs, Mikie
 
Thank you for responding. I know I am not diabetic, have been tested several times. My cholesterol was in my doctor's words , "a tad high" . I actually asked her if tad was a knew medical term. She gave me some statins and said I could take them or not it was up to me. What?? I guess my cholesterol couldn't have been that high if that was her response. I took them until I got this terrible burning, then threw them away. I have thought about neuropathy. This could be peripheral neuropathy , but since the same symptoms present with p.n. and fibro and my sister's fibro , I just assumed that was it. You make a good point about neuropathy, though and you could be right.I am trying to avoid a doctor because our rheumatologist stinks and am trying to deal with this on my own. I have started taking b12 which seems to help. Thank you again.
 

Mikie

Moderator
Dear Mary,

I'm not sure I was very clear in my response. Research on diabetics or prediabetics who cut the carbs show they often lower their cholesterol. The book I mentioned is loaded with good info for those without diabetes too. Good luck to you.

Hugs, Mikie
 
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