Help with bartonella in my 16yr. old son! | ProHealth Fibromyalgia, ME/CFS and Lyme Disease Forums

Help with bartonella in my 16yr. old son!

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I have a precious son who has been struggling since he was 16 with extreme sleepiness, brain fog, lack of motivation. He failed 3 classes last year in school, missed alot of school. Now its even worse this year, with missing school, not turning in homework ect.

I have been heartsick for him, and researching on the internet for answers, taking him to the dr. and a psychologist. Both who say laziness and unmotivation and depression and anxiety, which has really made him feel worse. I stumbled upon pictures of bartonella marks pictures on the web that looks like steaks or stretch marks on his back! The N.P says it is just stretch marks,, he has only grown 1inch and gained 15 lbs in a year. He also has severe acne since 15 also with extreme flushing on his cheeks when exerting himself. This is also a sign of bartonella.

Last year we had fleas . Our cat goes outside alot, and since we got a dog 4 yrs ago, the cat has parked himself in my sons bed day and night. I believe my son when he turned 15 got bit by a flea infected with bartonella, this was the start of the acne, rash on his back, and school problems, and sleep issues, depression ect.

The closest holistic dr. around here is a nurse practitioner, who treats lyme. Should I let her treat him or go to another specialist? I'm going to insist he be tested for bartonella.

I would appreciate some advice on what to do, and some info in how to treat bartonella. This has ruined his freshman yr. and now affecting his 2nd yr of high school! And now the medical profession tried to convince us and him that he is mentally ill. His dad and our son believe this , I as a stigmatized fibro sufferer I disagree!!!!! I think he has all the signs and symptoms of bartonella.
 

Mikie

Moderator
Dear WeepingSparrow,

I found your post and just wanted to let you know it touched my heart. Our other moderator knows a lot about Lyme and infections and I will ask her to look at your post. She likely will see it anyway but I will PM her. Her username is Nanie46 and she is a real sweetheart.

I have a 15 year old grandson with ADD and I know somewhat the problems kids face in HS today. He struggles getting through his work. I'll PM Nanie and pray for you and your son. Please do not give up in your search for answers. Suggesting mental illness seems to me to be premature and likely wrong but I'm not a professional. Other conditions should be eliminated before settling on any diagnoses.

God bless you,
Mikie
 
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bct

Well-Known Member
Cat-scratch can also give you Bartonella, Weepingsparrow. Not just fleas.

Blessings,
Barry
 

Nanie46

Moderator
Hi Weepingsparrow,
I have to take my daughter for outpatient surgery this morning, but I will be back later today to answer your questions. So sorry you are dealing with this. I check the board every day, so please come back often.
 
Dear WeepingSparrow,

I found your post and just wanted to let you know it touched my heart. Our other moderator knows a lot about Lyme and infections and I will ask her to look at your post. She likely will see it anyway but I will PM her. Her username is Nanie46 and she is a real sweetheart.

I have a 15 year old grandson with ADD and I know somewhat the problems kids face in HS today. He struggles getting through his work. I'll PM Nanie and pray for you and your son. Please do not give up in your search for answers. Suggesting mental illness seems to me to be premature and likely wrong but I'm not a professional. Other conditions should be eliminated before settling on any diagnoses.

God bless you,
Mikie
 
Hi Mikie!
I remember you and Nanie from years ago when I would get on the fibro and lyme forum. I was Lynikns then, it has been so many years I had to register again.

I reread my post and and my many exclamation marks LOL..... The last 2 days I have been so frustrated with my own situation with fibro pain, and my son's situation. I had just found out in the last 3 weeks of starting school he has not turned in 40 assignments , quizzes and tests. He is on his way to failing this semester. This is not how I envisioned my dear Noah's high school years to be. Since he did well in middle school, last year was a bit of a shock and it is continuing on with more of the same things.

Thanks for replying and I will see you also in the fibro forum, I'm so glad for the support!
 

Mikie

Moderator
OMG! I didn't realize it was you. Sooo glad to see you here but am so very sorry for the circumstances you are struggling with. Please join us on the Chit Chat Forum on the Porch. We are on volume 1220 now. I am sorry for your Fibro pain. I am also sorry for your son's struggle. School isn't set up for kids like my DGS with ADD and especially not now. He is back to online only because a kid in his dedicated pod tested pos. for the virus. DD is losing her mind. She thinks a lot of kids this year will end up repeating the year. Some kids who suffer these conditions are just overwhelmed with school and its demands. Please don't be a stranger; it's so good to have you back.

Love, Mikie
 
Cat-scratch can also give you Bartonella, Weepingsparrow. Not just fleas.

Blessings,
Barry
Hi Barry,
That brings up memories for me , I have 2 kids now in their 30s , whom as children I took to a older Dr. when they were sick he would ask me if we had a cat and tell me it might be cat scratch fever. I bet he had asked me that at least 3 different times. Back then before the internet, I had no idea about bartonella, he just said you could get sick from a cat scratch. Before then I just thought it was a title of a rock song. LOL (now that I know about it I don't even want my cat) I've had outside / inside cats for 25 yrs.
 
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Hi Weepingsparrow,
I have to take my daughter for outpatient surgery this morning, but I will be back later today to answer your questions. So sorry you are dealing with this. I check the board every day, so please come back often.
Hi Nanie!
I remember you and Mikie from the fibro and Lyme forums many years ago! I was Lynikns back then... and I lost touch over the years, I remember I got much needed support, when I needed it.

I am looking forward to taking Noah to a holistic Nurse practitioner who treats Lyme and bartonella. His appointment is tomorrow and they will be doing blood tests for both. I got the idea that he might have bartonella because of the red slashes across his mid back. There are many of them and look like stretch marks but they stay really red. And I saw the same marks on the web with those with bartonella. He also sleeps 13 hrs a day and has no concentration or motivation.

I have always had cats, and for the last 25 yrs we have had indoor/outdoor cats. We have a cat now that is in our sons bed most of the time with him. Last year the dog and cat got fleas because I didn't get the flea and tick meds soon enough to them, not sure , but that might of been when he could of gotten it. I guess we are just trying to figure why he is so unmotivated to do school, whether it is bartonella or depression , or as my husband says stubborn rebellion. We both hope it isn't the latter, because that will be a hard thing for us to face and deal with.

I will let you know how tomorrow goes with Noah's appointment. I am so glad to hear that you are 80 percent better since you have been treated for chronic Lyme. I would like to know what treatment plan they used. Latter on I hope you don't mind if I ask you some questions about your journey, right now all I can handle is Noah's situation and getting him some help.

I hope your daughter's outpatient surgery went well. Looking forward to keeping in touch again.
 

Nanie46

Moderator
Hi again weepingsparrow,

Wow, I just read your message that you are really a member from way back! Welcome back and I'm so glad you thought to come here for support.

I am so sorry to hear about your son's struggles. Many others are going through similar situations.

Your son could have Bartonella alone, or in combo with other infections. That depends on the source of his infection.

Bartonella is known for causing mental health symptoms such as anxiety and depression, along with many possible physical symptoms, including the stretch mark-like rash you mentioned.

First, I will list some possible options and then I will post information for you.

Options to consider:

1. Find a Lyme literate healthcare practitioner who is ILADS trained. That can depend on where you live. Some states have more and others have none.

2. Find a Functional Medicine practitioner (they look for and address root causes of illness)

3. Find a Naturopathic doctor

4. Find an Herbalist with experience in tick-borne diseases

There are herbal protocols online, such as the Cowden protocol, Buhner protocol and the Rawls protocol. They recommend having a practitioner to guide you during treatment, even when not treating with prescription drugs.

Lyme literate ILADS trained practitioners typically use antibiotics and other anti-microbials along with supplements.

Most of these options would probably not be covered by insurance.


Here is some info on Bartonella:




Lots of good info in this booklet, including a section on Bartonella: https://www.lymebasics.org/wp-content/uploads/2019/01/Lyme-Basics-7th-Edition-2017-eng.pdf

You will find 3 brochures in the next link. All of them may be of interest to you. Bartonella is in the one titled "Tick-borne diseases other than Lyme".

I want you to know that there is HOPE. It is possible to recover from this illness. It can take time, patience, perseverance and the right practitioner.

Let me know if I can help you further in any way.

I will pray that your son is able to get all the help he needs to regain his health and feel optimistic about his future.

Big hugs,
Nanie
 

Nanie46

Moderator
Hi Nanie!
I remember you and Mikie from the fibro and Lyme forums many years ago! I was Lynikns back then... and I lost touch over the years, I remember I got much needed support, when I needed it.

I am looking forward to taking Noah to a holistic Nurse practitioner who treats Lyme and bartonella. His appointment is tomorrow and they will be doing blood tests for both. I got the idea that he might have bartonella because of the red slashes across his mid back. There are many of them and look like stretch marks but they stay really red. And I saw the same marks on the web with those with bartonella. He also sleeps 13 hrs a day and has no concentration or motivation.

I have always had cats, and for the last 25 yrs we have had indoor/outdoor cats. We have a cat now that is in our sons bed most of the time with him. Last year the dog and cat got fleas because I didn't get the flea and tick meds soon enough to them, not sure , but that might of been when he could of gotten it. I guess we are just trying to figure why he is so unmotivated to do school, whether it is bartonella or depression , or as my husband says stubborn rebellion. We both hope it isn't the latter, because that will be a hard thing for us to face and deal with.

I will let you know how tomorrow goes with Noah's appointment. I am so glad to hear that you are 80 percent better since you have been treated for chronic Lyme. I would like to know what treatment plan they used. Latter on I hope you don't mind if I ask you some questions about your journey, right now all I can handle is Noah's situation and getting him some help.

I hope your daughter's outpatient surgery went well. Looking forward to keeping in touch again.
Hi! I see we were both posting about the same time. I replied above. I'm glad you got an appt for your son. Look over the info in the links if you can. Bartonella can be difficult to detect on standard blood tests from local or hospital labs, so keep that in mind. He could get a false negative. Everything has a cause and it sounds like he has many symptoms of Bartonella. Galaxy lab is considered the best for bartonella testing. You can even call them to ask about the tests. Other specialty labs, like Igenex, can test for Bartonella too. There is a urine provocation test from DNA Connexions that some people are using. It does not require a Dr order. I think it costs about $650.
You can ask me any questions that you want when you are ready.

Take care,
Nanie
 
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